Care4BB

Stichting Care4BrittleBones heeft ten doel het bevorderen van wetenschappelijk onderzoek naar Osteogenesis Imperfecta om de kwaliteit van leven te verbeteren.

[Care4BB @Care4BB]

Check out this project! Participating is free of charge and gives you the oppertunity to use an app with workout routines especially designed for people with OI (any type) for 4 months! Sounds pretty good doens't it?
#OsteogenesisImperfecta #physicalWellbeing #PhysicalActivity

[Care4BB @Care4BB]

Tomorrow, before our dance party starts, we will have a live singing act with Giorgia Meneghesso!!
@giorgia_meneghesso

#wishboneday #osteogenesisimperfecta #1voice4OI
#singforOI #breattlebonesdisease

[Care4BB @Care4BB]

Don't forget about our dance party at the end of
the livestream tomorrow!
By Tony Jacobsen💛

#wishboneday #osteogenesisimperfecta #1voice4OI
#danceforOI #brittlebonesdisease

[Care4BB @Care4BB]

Check out tomorrow's line-up for wishboneday!💛

#wishboneday #osteogenesisimperfecta #oiawareness #care4brittlebones #care4bones #brittlebonesdisease

[Care4BB @Care4BB]

Join us this Friday for our livestream!! #wishboneday #osteogenesisimperfecta
The aim of Wishbone Day is to raise awareness to the varied lives of people with OI and the challenges and solutions to living full and happy lives.
For more info check out: https://t.co/qyJ91PPwkq

[Care4BB @Care4BB]

On the 15/10, at 17 CEST, we will be holding a talk on Successful rehabilitation in adults with OI by Dr. C. Raggio.

The webinar will focus on professionals supporting adults with OI but is open to OI community participants as well.

Preregister at : https://t.co/Uynwj6HS95

[Care4BB @Care4BB]

Our next Quarterly update on the Key4OI Outcome Measure set will be held on the 28th September, at 4pm CET.

While this call is open to all interested Healthcare Providers and Researchers, people with OI are also welcome to join!

To preregister, go to: https://t.co/mWRWzPh0qO

[Care4BB @Care4BB]

THE IMPACT STUDY - TAKE THE SURVEY
If you have OI, or are a parent/caregiver of a n OI child, the IMPACT Survey wants you.
It is conducted by OIFE/OIF in collaboration with Mereo Biopharma, who is preparing to provide a new medical treatment for OI.

https://t.co/seSdHISK7R

[Care4BB @Care4BB]

For more info - check out: https://t.co/89O2QNn6J3

[Care4BB @Care4BB]

In Care4Bones we believe that strong personal and leadership skills are very helpful for developing ourselves and the teams we work in. This is why we are offering Care4Bones members a free online 2 hour very interactive workshop called “The World of Difference”.

[Care4BB @Care4BB]

Care4Bones friends,
You are warmly invited to join our OI World Café! These café sessions are all about getting to know each other! Join us on the 05/09 at 8 CET to meet other members of our OI community!

If you are not yet a member, you can register at https://t.co/imRc4E5pOg!

[Care4BB @Care4BB]

IMPACT STUDY
If you have OI, or are a parent/caregiver of a child with OI, the IMPACT Survey wants to hear from you. Conducted by OIFE and OIF in collaboration with Mereo Biopharma, who is in an advanced state of providing a new medical treatment for OI. https://t.co/s3YkgZmZT5

[Care4BB @Care4BB]

Are you interested in joining a global community of people with OI?

Join us on https://t.co/xBY440eHBq - a new innovative platform to bring together the OI community.

Find out more on https://t.co/xBY440eHBq or by joining our Welcome Session on the 8th of August 15 CEST!

[Care4BB @Care4BB]

THE FIRST GLOBAL PROJECT ON OI
If you have OI, or are a parent/caregiver of a child with OI, the IMPACT Survey wants to hear from you! Make an IMPACT on the future of treatment and services for OI by completing the first-ever GLOBAL OI survey at: https://t.co/s3YkgZmZT5

[Care4BB @Care4BB]

On Wishbone Day 2021, we held a 13 hour zoom call, involving more than 100 people with OI from around the world.

As part of this we interviewed Jo Ragen, the full interview can be found here: https://t.co/UqceKwFIa5.

[Care4BB @Care4BB]

THE FIRST GLOBAL PROJECT ON OI
If you have OI, or are a parent/caregiver of a child with OI, the IMPACT Survey wants to hear from you! Make an IMPACT on the future of treatment and services for OI by completing the first-ever GLOBAL OI survey at: https://t.co/s3YkgZmZT5

[Care4BB @Care4BB]

THE FIRST GLOBAL PROJECT ON OI
If you have OI, or are a parent/caregiver of a child with OI, the IMPACT Survey wants to hear from you! Make an IMPACT on the future of treatment and services for OI by completing the first-ever GLOBAL OI survey at: https://t.co/s3YkgZmZT5

[Care4BB @Care4BB]

Care4Bones is an innovative new space to
connect with other OI community members,
participate in OI-events and learn
about quality of life in OI.

Join now at https://t.co/M5KVvhk6DM!

Also join our info sessions on the 3/7 at 11 CEST or 4/7 at 17 CEST, for a run through!

[Care4BB @Care4BB]

Would you like to join Care4Bones, but would
like a little introduction to the platform?

Join us at 11:00 CEST on the 3rd of July, to get a brief
introduction to this new innovative platform.

https://t.co/89O2QNn6J3

[Care4BB @Care4BB]

TWO MORE DAYS:
Please fill out this survey on physical activity and exercise for folks with OI! The aim of this survey is to better understand the needs of adults with OI regarding physical activity, exercise, sports and sleep patterns.

SURVEY LINK: https://t.co/cz45Ifp3GH