An email sent to An Taoiseach @SimonHarrisTD this morning. I’ll keep you all posted if I hear back ❤️
Hi Simon, I am writing to you as an incredibly concerned parent of an 8.5 year old boy, Harvey. Harvey has Spina bifida and scoliosis which in itself is challenging, but when those conditions are coupled with a lack of access to therapy, a hospital that is potentially misappropriating funds, and incredibly long wait lists for urgent and life changing surgeries, then it becomes impossible to adequately care for your child.
Harvey had an Xray in January 2024 that showed his scoliosis curve is at 110°, if you have read in to scoliosis then I am sure you are aware how this is at a point where it is detrimental to his health and quality of life.
Harvey was under Connor Green and was listed for urgent surgery in February 2022 after repeated pneumonia infections, 30 months later he is still only on the surgical list under Connor Green as he does not have a surgeon willing to operate.
The task force you hold in such high regard has not made contact with my family, nor is there any details online of how to contact them to enquire as to when your child will finally be treated.
You continually tell families like ours that you care, and you have been promising to fix this since 2017. 2017 was the year we were told that Harvey’s ribs were crushing his lungs and controlling his scoliosis was life and death.
Here we are in 2024 and nothing has changed except we now have a surgeon under investigation, longer wait lists, more children waiting, a still not complete hospital, and funds not being spent as intended and no answers yet as to where the money *we* fought for went.
You say you care but your actions have left us feeling anything but.
We as a family also have a child facing open heart surgery next month and this is just more stress and concern that we do not need.
Another summer has just passed and Harvey has spent the majority in his room, often needing to go back in to bed because he is in so much pain. Is that the life you think the children of Ireland deserve? Would you accept that if it was your own child?
Can you imagine being told your child has a potentially life threatening condition but that it will be years before it would be treated?
We need actual action, not more empty promises.
You need to engage with all advocacy groups, not just those that are currently working with the task force. There are very valid reasons why the other groups have chosen to not engage and they need to be heard.
We need contact details and open dialogue with the task force so that we can actually feel its existence.
We need answers as to where the funding for scoliosis and spina bifida services went.
Most of all, these children need to get their quality of life back before their whole childhood passes.
I look forward to hearing from you.
Kind Regards.
Gillian Sherratt
Harvey was definitely unique. But what isn't unique is the way he and other children and people with disabilities are being failed. It is up to us to stop it. When we say #JusticeForHarvey it means Disability Justice. It's time for Change. #HarrisResign
Harvey was 9.
He had scoliosis.
His spine curved to 130°.
He waited 3 years for surgery
then finally got it.
But by then, it was too late.
Last week, Harvey died.
This isn’t a tragedy.
It’s a national failure.
#JusticeForHarvey
A disappointing result but a battling performance full of grit and determination.
Thank you for your brilliant support. Back at it next week, together ✊🔴
🚨Waterford @IcelandFoods Store just received notice of closure. Workers are still in the store.
Solidarity to them. A disgraceful way to treat workers. The owner, Naeem Maniar, has already been committing wage theft across Iceland stores in Ireland.
@OfficialAndy_G@SportsJOEdotie The issue is that another Pre-Season Friendly was scheduled for the day before the Dublin match after the Aviva sold out. People bought tickets for Dublin thinking it was the last friendly of the season which generally means mainly first team players- hence the disappointment.
We are currently running a free grinds course for students badly affected by the #LC#Maths Higher Level #Paper1 fiasco on Friday. Retweet this if you would like us to reach out to you about getting involved! We have expert tutors who will run through #Paper2 with you!
@PositivDee@NormaFoleyTD1 There is no point in talking about student wellbeing during the year and then setting such an LC Maths exam that erodes student confidence. @NormaFoleyTD1
@NormaFoleyTD1 How dare Norma Foley talk about mental health and its importance in education while allowing a paper like LC maths paper 1 be administered yesterday. If she could only have seen the scenes of devastation when students emerged from the exam.
@NormaFoleyTD1
You should be utterly ashamed of yourself and your department of that maths paper 1 today. After all these LC students have been through you allowed that paper to be issued
@IrishTimes I’m all for a robust exam paper but todays LC Maths Paper 1 Higher in no way offered students a chance to show their mathematical abilities. An exam paper should contain graded elements of difficulty but if most students can’t even attempt most questions the problem is the exam!
@NormaFoleyTD1 in my 30 years teaching - I have never seen such traumatised crying girls coming out of the Maths Paper 1 exam today. They felt broken after that paper. SEC shame on you!
Devastated 18 year olds, their dreams and hopes shattered by a horrendous LC maths paper 1. They didn't do JC due to COVID! Sky high nerves for whats ahead! Be very ashamed! @NormaFoleyTD1@Education_Ire
Shame on whoever set #MathsPaper1#leavingcert2023 These kids worked so hard and wanted their ability to be tested fairly. My daughter loved maths now feels completely deflated So well done @Education_Ire@NormaFoleyTD1 for turning kids love of STEM into a f@cking nightmare.