CharlieEDS

Hi I'm Charlie, I live with a life long condition called Ehlers-Danlos Syndrome.
I hope to share my Highs & Lows, as well as some tips on how to manage EDS

[CharlieEDS @CharlieEDS1]

What an amazing day! Look who we managed to get in! I would like to thank everyone for their support but more importantly I would like to give a huge thanks 👏👏👏 to @damiensanders at @fusionfest for the change of heart

[CharlieEDS @CharlieEDS1]

When your pain meds aren't working so you #CrossStitch & watch @GreysABC for distraction. #EDS #TMJpain #Neckpain #Backpain #DistractionTechniques

[CharlieEDS @CharlieEDS1]

@ChloeJones132 Or ply yourself with alochol so it's worth the vomit? That should also relax your shoulder 🤷win win

[CharlieEDS @CharlieEDS1]

Really impressed with how quick I was seen at Liverpool royal A&E yesterday. Thank you for relocating my right shoulder & telling me about the Cunningham Technique to try on my left shoulder at home. https://t.co/iyyGPo6Qy7 @AidanKehoe1 #EDS

[CharlieEDS @CharlieEDS1]

@ChloeJones132 It was just what I needed!! X

[CharlieEDS @CharlieEDS1]

@katewarriner @RNOHnhs Yeah but I got myself sorted no problem 😀

[CharlieEDS @CharlieEDS1]

Nothing like going out for the evening with a quick pit stop at A & E with a shoulder dislocation.

Fed up of this now ....shoulder Please behave #EDSproblems @RNOHnhs please hurry up & sort this out. I've been to A&E 4 times in this week alone.

[CharlieEDS @CharlieEDS1]

Getting so fed up of this now. Been less than 8 hours and I'm back in A&E @RNOHnhs with another dislocated shoulder!
#EDS #TakingtheMick #WantmyLifeback #ShoulderDislocations #Southport #hospital

[CharlieEDS @CharlieEDS1]

When you have to be ready for Patient Transport #NWAS at 8am and your carers haven't turned up ..... 😣😠

[Russell Howard @russellhoward]

My #Back2School @AntiBullyingPro advice is, always tell someone because no one should stop you getting everything you can from school. Also, avoid photos of yourself from the 90s.

[CharlieEDS @CharlieEDS1]

Paying for @fusionfest with a #ShoulderDislocation. So worth it to see @TheVampsband @yearsandyears @ShawnMendes @JamesArthur23 life is never boring with EDS!

[CharlieEDS @CharlieEDS1]

I'm in shock!
I need a new walker as I can't walk without an aid. I was in @AbleworldUK & met Jean from Hyde. Cut a long story short, she bought me the walker! I tried to say No, but she wouldn't let me.
Jean from Hyde I will always be very grateful for your act of kindness.

[The Ehlers-Danlos Society @TheEDSociety]

NOT INVISIBLE
"My EDS story is ongoing and complex, as all of our stories are. I am a nurse, a daughter, a girlfriend, a niece, a friend, I am an Ehlers Danlos fighter. I am not invisible. WE are not invisible!"
A #myEDS story by Erica.
https://t.co/DoN7Vr9tsM

[CharlieEDS @CharlieEDS1]

Can't believe it's already two weeks tomorrow since George, my mum and I went to @CorrieTour2018 @jonnygforce can you please confirm for @fusionfest George didn't damage any of the set, in the hope they change their minds about Sunday #corrie #gorgeousgeorge

[Kate Warriner 💙 @katewarriner]

@InsideHealthCIO @fusionfest @CharlieEDS1 Can’t believe @CharlieEDS1 continues to be treated in this way by @fusionfest - @Bill_Esterson has been trying to help to sort this discriminatory behaviour. Fingers crossed George is allowed in & Charlie doesn’t end up in @RoyalLpoolHosps A&E when she needs George’s help. 1/2

[Kate Warriner 💙 @katewarriner]

@InsideHealthCIO @fusionfest @CharlieEDS1 Our brilliant team @RoyalLpoolHosps A&E would obviously do an ace job but @CharlieEDS1 and George do a brilliant job of managing Ehlers Danlos Syndrome without A&E too keeping Charlie at home👍 2/2

[David Walliker @InsideHealthCIO]

@katewarriner @CharlieEDS1 wonder how @ShawnMendes @yearsandyears @MNEK @JamesArthur23 @TheVampsband @AllyBrooke and the rest of line up feel about George not being allowed in.

[CharlieEDS @CharlieEDS1]

Can't wait for @bbcstrictly to Start!

[BBC Strictly ✨ @bbcstrictly]

He's smooooth, but has he got the moves? 🤔 Here's what @ChuckyVenn has to say about starting his #Strictly journey...

[CharlieEDS @CharlieEDS1]

#EDS #Raisingawareness