Millersville Echelon

Chiari is now a family affair; Echelon is teaching my kids that our lives may be short, but they can count. Thx TSTM for renewing hope here.

[Millersville Echelon @CharliesCourage]

@JaredLeto Today, you have read my mind and spoken exactly what I needed to hear. It's always the moment to fight for some of us.

[Millersville Echelon @CharliesCourage]

@staniaszverra great fundraising ideas for the Sept. walk. It's time to sign up! Conquer Chiari this year!!!

[Millersville Echelon @CharliesCourage]

@ArnoldChiariNL I love your background! How'd u make it? I found someone few out there that feel my pain...literally. I'm not alone

[Spoonie_Lioness88 @spoonie_lioness]

Check out what Chiari is!!!! You can Save US

[Spoonie_Lioness88 @spoonie_lioness]

This is me

[Spoonie_Lioness88 @spoonie_lioness]

My boyfriend made this for me ND all my Chiarian's Soldiers WW.. <3 made by C.P.

[Spoonie_Lioness88 @spoonie_lioness]

I have to say i'm proud of my zipperscar, cause i'm a Chiarian soldier, my power goes beyond every star.... #LadyChiariNL#

[Ehlers-Danlos Support UK @ehlersdanlosuk]

Can you help us get to 3000 followers? RT & share with friends & lets make our invisible, visible,for more info visit http://t.co/JBkQb86Bg3

[Millersville Echelon @CharliesCourage]

@skilletmusic Heard u on Octane today. I'm sick of people judging others. Me n my kids r sick n when no one understands, they r harsh

[Millersville Echelon @CharliesCourage]

@staniaszverra now it's time to think about getting our crew together for the Conquer Chiari walk. I think we have to go to NoVa

[Millersville Echelon @CharliesCourage]

@staniaszverra yeah, you only had the brownies...wait till you try the fudge and the pie :) best hangover food for you! <3 u

[Millersville Echelon @CharliesCourage]

Are there any other vegans out there? Sometimes I feel like we are all just talking to ourselves....

[Millersville Echelon @CharliesCourage]

Made gluten free,vegan pd n choc fudge and pb pie from sticky fingers last night. Holy crap...best stuff ever!

[Millersville Echelon @CharliesCourage]

May was EDS awareness month. Super news about the new treatment center in MD. It's the only one in the world. Happy to live in MD :)

[Millersville Echelon @CharliesCourage]

Ok,just made gluten free,vegan brownies. never tasted anything so good in my life.Anyone who thinks vegan is boring go to stickyfingers, DC

[Millersville Echelon @CharliesCourage]

"The pain;put it down,get it out,put in in your notebook,just get it out of you so you can't curl up with it anymore."Anyone get that quote?

[Millersville Echelon @CharliesCourage]

Thx to @DC101; yest was the 1st time I have ever heard @30SECONDSTOMARS on the radio in Baltimore. Give us more!!!

[Millersville Echelon @CharliesCourage]

Can't believe I live in the hell that is EDS while taking care of 3 sick kids and one little tetanus shot hurts so bad! Feeling wimpy

[Millersville Echelon @CharliesCourage]

<3 LLF+D;don't 4get how we got here.Be the vox populi, Echelon.still a world of ppl who need your help

[Millersville Echelon @CharliesCourage]

@flyleafmusic How do we get tix? Some of us missed you the last time you hit Baltimore :( http://t.co/y9lfx4k017