We listen, we care, we keep things as simple as possible, we are professional and we give value for money, we're proud of what we do. @CharityDEBRA supporter
'It impacts on obviously the sufferers, it impacts on the families too, they are looking at their child suffer'
Former footballer Graeme Souness and 17 year old Isla Grist spoke to #BBCBreakfast about the search for a cure for the skin disease Epidermolysis bullosa (EB), as he prepared for another challenge two years after taking part in a relay swim of the English Channel
https://t.co/Gn8Z17KhEJ
Liverpool legend Graeme Souness is swimming the Channel for charity DEBRA shem fight against epidermolysis. bullosa.
Isla Grist shares her experiences living with the condition.
#Rarecondition#epidermolysisbullosa#graemesouness@LFC
Liverpool legend Graeme Souness is swimming to Calais and back to raise money for @CharityDEBRA for research into treatments for the rare skin condition Epidermolysis Bullosa.
Isla Grist, who lives with the condition, talks about her friendship with Graeme and how much his support means to her.
'This was a disease sent by the devil himself.'
Graeme Souness becomes emotional as he describes the impact of the painful skin condition Isla Grist lives with.
He tells @adilray & @charlottehawkns why it's important to raise awareness and funds for research into treatments.
What a day at @Tbrotherstrust’s exclusive screening of Spider-Man: No Way Home! 🎥 🌟
A huge thank you to @TomHolland1996 and The Brother’s Trust for inviting 22 of our members to share in this unforgettable experience, and for everything they do to help #StopThePain of EB 💙
Delighted to be running in the 2025 London Marathon for @charitydebra who supported my cousin Mick and wife Sarah. Their son Oliver had EB, a rare and debilitating skin condition. He sadly died aged 32. Donations welcome via my @giveasyoulive page. https://t.co/NP2T3EZGgk
Today marks the start of #RememberACharityWeek 💙
Gifts from supporters like you bring us ever closer to research breakthroughs that will change of lives of those living with EB.
Find out more 👉 https://t.co/GMUhdh5Sjr
I'm raising funds for @charitydebra. They do great work supporting children & families living with EB. It's going to be a tricky run given my current health, & I'm a little behind on fundraising. Grateful for any donations via my @giveasyoulive page. https://t.co/V1fTrHQdRx
The countdown is on for #TeamDEBRA's 2024 challenge!
Graeme has been finding his training for the gruelling 85-mile bike ride from Dover to London tough, but he's determined to do it for his friend Isla, and everyone living with EB.
Please donate today: https://t.co/PlUua6X2BP
🚨UPDATED Research Opportunity!🚨
I'm working with @CharityDEBRA , seeking parents & siblings (aged 7-16) of children with Epidermolysis Bullosa (EB) to participate in my research.
Email [email protected] to get involved/find out more.
#EB#EpidermolysisBullosa#Research
Win a car!🚘
Yes, that’s right. Enter this raffle for £5, and you have a chance to win a classic 1998 BMW E36 M3 Evolution Convertible: https://t.co/c4wIDdqyMO
Car SOS TV presenter Tim Shaw is kindly raffling off his own car, with proceeds going to DEBRA UK - thank you Tim!
The sun was shining at our Newquay holiday home opening on Friday! 🌊
We were joined by DEBRA President, @SimonWestonCBE, Geoff and Fiona Squire, who generously funded our Newquay home, and some local DEBRA members.
Read more about our holiday homes: https://t.co/oP8683vVDi
🦋 Together we can BE the difference for EB 🦋
Our aim? Raise £5 million in 2024 to provide enhanced EB community care and support for today, and effective drug treatments for all types of EB for tomorrow.
Please donate today: https://t.co/io4o7NHjgK Thank you for your support.
Absolutely thrilled to become an ambassador for @CharityDEBRA
So much work has been done to help #Stopthepain for those with EB. But there’s way more to come and it’s a privilege to be working alongside everyone at #TeamDEBRA ❤️
Check out their website https://t.co/f2y7zDwdov
A special shoutout to our four Vice-Presidents, @FrankWarren, Graeme Souness, Lenore England & @ProcterStuart, and our Royal Patron, HRH The Duchess of Edinburgh GCVO, for their unwavering support for the EB community.
Together we can #StopThePain of EB 💙