Chloes Fight

Chloe's Fight is a growing nonprofit with an objective of raising funds to support rare disease research.

[Chloes Fight @Chloes_Fight]

Tag your running buddy and sign up for Chloe's Fight 5K on Fri, Sep 8th. The most beautiful and fun 5K of the year!👉 https://t.co/KCS5ESHGz9

[Chloes Fight @Chloes_Fight]

So exciting to participate in #sicklesmart summer series presentation! @SickleCellMN is improving care not only for families living with sickle cell, but also the entire rare community. #strongertogether #RareDisease

[Chloes Fight @Chloes_Fight]

@AC360 @andersoncooper I lost my 2 year old daughter nine years ago. It is the paradox of faith to mourn her death and also embrace the depth of understanding it gives me each day.

[Chloes Fight @Chloes_Fight]

Great opportunity to learn about the most transformative technology in medicine

[National Organization for Rare Disorders (NORD) @RareDiseases]

Our first webinar in a series of 5 on #genetherapy is taking place next week, Thursday, August 29. Please register to learn more about the history of gene therapy, current therapies & what the future may hold. https://t.co/GiJSG9AoND

[Chloes Fight @Chloes_Fight]

Why we support the work happening here!

[M Health Fairview Pediatrics @mhfvpediatrics]

�� World leader in blood and marrow transplants
✅ Minnesota's largest fetal cardiology program
✅ Home to more than 50 pediatric specialties

Look inside and see our difference. We invite you to tour our nationally recognized children’s hospital. ➡️ https://t.co/Kkwn4qT3TO

[Chloes Fight @Chloes_Fight]

Come on out, everyone!

[Broken Clock Brewing Cooperative @BrokenClockbrew]

Auction Items for this Saturday’s CoHop Fest benefitting @chloes_fight 💗 Tickets available on Eventbright. Drink rare beer, win rare prizes, fight rare disease! #abeerrevolution

[National Organization for Rare Disorders (NORD) @RareDiseases]

"Medicaid won’t pick up night nursing on our [vaation] b/c it is out of state. So the respite grant will pay for someone to monitor Danielle and her equipment while I get some sleep. It will allow us to vacation as hard as we can!” https://t.co/NmQoR4Sa0c

[Chloes Fight @Chloes_Fight]

"comfortable doesn't have new ideas" CFRDF isn't comfortable with only 5% of treatments for rare kids @americangiant https://t.co/svFHvrgEUO

[Chloes Fight @Chloes_Fight]

Love to be a part of the giving community supporting this great hospital

[M Health Fairview Pediatrics @mhfvpediatrics]

When coffee and football combine, our families win!

Watch as @cariboucoffee donates $10K in proceeds from its #RowTheBoat coffee blend to a special fund set up by @Coach_Fleck to support our patients and families!

#Gophers #Giving

[Chloes Fight @Chloes_Fight]

https://t.co/15Ttl6JMRc

[Chloes Fight @Chloes_Fight]

love our business partners! Join us as @BrokenClockbrew helps support our mission to provide education to medical professionals for rare diseases

[Broken Clock Brewing Cooperative @BrokenClockbrew]

Less than 2 weeks until Co-Hop Fest! Do you have your tickets?! Join us for rare beers not available in Minnesota and help us raise funds for @Chloes_Fight to fight rare disease. Tickets availabe on Eventbrite https://t.co/T1woD6Zvn0 🍺
#abeerrevolution

[Chloes Fight @Chloes_Fight]

@FairviewHealth @MedicalAlley @IMRIS_Inc Wonderful to see the best technology being used for patient care!

[Rare Action Network @RareAction]

#SB26 has been signed by @GovEvers ! Thanks to #steptherapy reform #WI patients now have strong protections in place to ensure the patient/doctor’s voice comes first! #rareaction https://t.co/6tvNBe2eu2

[Chloes Fight @Chloes_Fight]

https://t.co/fjZtlJ90Vn

[Chloes Fight @Chloes_Fight]

@KrabbeConnect Wonderful!

[National Organization for Rare Disorders (NORD) @RareDiseases]

The time is now...

- To address affordability for patients,
- To drive progress with a unified voice,
- To understand the role of advancing technology in rare disease, and
- To register for the 2019 #NORDSummit!

Visit https://t.co/vEDNBX0lOZ to register today! ⏳

[Chloes Fight @Chloes_Fight]

@RareDiseases Welcome!

[Chloes Fight @Chloes_Fight]

@13Mikey So incredibly thrilled for you guys

[Chloes Fight @Chloes_Fight]

Gene Therapy: The 'Forever Fix' For Genetic Diseases? https://t.co/jJPFLpHgXx

[National Organization for Rare Disorders (NORD) @RareDiseases]

HAPPENING TODAY: Members of the House Committee on Energy & Commere are holding a hearing today on the #NewbornScreeningSavesLives Act! Now is the time to show your support for this crucial legislation that saves millions of babies' lives each year. https://t.co/xnwNFJnyrW

[The Calliope Joy Foundation @caljoyfndtion]

It's pretty awesome to spend the afternoon with 200 men and women who are trying to kick the butt of your kid's rare disease. #HomologyMedicines #genetherapy #leukodystrophy