The medical profession has long had issues with some people being outright dismissive of patients' concerns, even gaslighting them rather than being open-minded and taking them seriously. Any practitioner that calls a disease "trendy" needs their diagnoses reevaluated.
It makes me so mad when I go on Reddit and see doctors and health care workers bashing those with chronic illness.
Calling us mentally ill. Saying we’re faking. Mocking our diagnoses. Acting like we want to be sick.
These are actual comments from medical professionals discussing patients with POTS, EDS, MCAS, ME/CFS, and other complex chronic illnesses 😡
“MCAS is one of the most frustrating new age fake diseases… absolutely insane patients that need a psych consult more than a medicine patient.”
“No, these people are lying. It is part of the EDS/POTS/dysautonomia psychogenic illness cluster. They are almost always self diagnosed after learning about those disorders on social media.”
“Most of these patients suffered a post viral illness… then instead of getting out of bed and shaking it off they just plugged into the online echo chambers and stayed in bed. Forever.”
“When I read EDS and POTS in the same history, I know what I’m in for.”
“POTS, EDS, MCAS, and don’t forget gastroparesis. They all need feeding tubes and central lines and opiates and benzos are the only thing that helps. It’s mostly young women and, from what I’ve seen, a lot of them start out with eating disorders.”
“ I find these types of patients incredibly annoying.”
“ It’s all part of the sicktok trend.”
“The people with MCAS need psychiatry, not a medical doctor for their problems.”
“Each one is trying to outdo the other in the ‘who’s the most ill’ game.”
“In psych, the unholy TikTok triad is DID, autism, and Tourette’s. … Many of them ask to be worked up for EDS, POTS, and MCAS. Blue hair is a frequent marker. The underlying diagnosis is almost always borderline personality disorder.”
“It was fibromyalgia. Then it was chronic Lyme. Now we see MCAS, EDS, dysautonomia, POTS.”
“POTS patients can be fucking exhausting. They’re putting ports in a lot of them now for their fluids… You are a fucking 21 yo with good veins, why the fuck are you trying to bully me into sticking a port?”
“I refuse to see these people.”
If you’re a doctor or medical professional reading this, these comments aren’t harmless.
You don’t have to understand every illness but you do have to treat your patients like human beings.
We do NOT want to be sick.
@AmyWolpers@ThePOTSPostman That level of "deep-dive" VR technology is still well inside the realm of sci-fi. When that technology ever becomes a reality, I can only hope sims like this become a thing so people gain some much-needed empathy and open-mindedness.
The frustration of hearing people--strangers, family & friends, doctors--accuse chronically ill/disabled people of rejecting life, rejecting work, rejecting challenge or courage, when in truth the accusation is how *they* reject us & reject the work of difference & difficulty.
PSA to certain researchers and doctors:
Just because exercise can help a disease does not mean the disease is *caused by* deconditioning
I know you know this because many diseases can be improved by exercise (e.g. MS, cancer) & no one claims these are from deconditioning
The fans got Deadpool off the ground so many years ago. Yesterday, 10 years after the first film and exactly 2 years after Deadpool & Wolverine, I felt so lucky to be on the #SDCC floor with everyone whose unapologetic devotion brings so much joy to this world.
@eepyteepee @verytallmaddy I get the whole giantess fetish thing, but I seriously can't stand all these "totally real" garbage accounts faking this shit. This one is particularly ridiculous.