Rachael

BHSc, MSc | Patient Advocate | Chronic Patient

[Rachael @ChronicRach]

My insight into being a patient in a fragmented healthcare system. Everyone in #healthcare plays a role in facilitating change in our system. I'm ready to make changes, are you?

#4patient #CanadianHealth #HealthCareReform #GregsWings #MedTwitter

https://t.co/Ov5D1CTLxU

[Dr. Nicole Alberts @NAlbertsPhD]

Help us spread the word about our newly launched study CCHIP - led by @Concordia graduate student @ClaireRGalvin !

Open to adult survivors of childhood cancer in 🇨🇦 and 🇺🇸.

@ConcordiaSoH @SPP_HemOncBMT @rqrd_qprn @accorg @ChildCancerSurv @picardonhealth @ChronicRach

[Nicole Lee Schroeder, PhD @Nicole_Lee_Sch]

Stop pretending complex patients are missing a coordinator when medical education had eradicated the role and split the body into separate systems (which somehow apparently don't interact???) 4/4 #MedTwitter #MedEd #EhlersDanlos #DisabilityTwitter

[Rachael @ChronicRach]

@AlexMunter My Boston is wondering the same thing

[David Fisman @DFisman]

40% of Canadians have “underlying medical conditions”

I’m not sure people understand how offensive this is, and how it devalues a large segment of the population.

[Jennifer Baumbusch (she/her) @GERONursing]

If no one brings peanuts into a classroom because a student has an allergy why can’t everyone wear a mask so the student who is medically complex can attend?

[Rachael @ChronicRach]

@suerobinsyvr @vmontori Excellent book from the patient perspective of @MarcusEngel

[Toronto Star @TorontoStar]

Canada, it’s time for us to accept the truth, one so many of our communities have known for a long time: Politics are broken; the moral authority of our institutions is broken.

#Opinion by @JillianHortonMD https://t.co/UFdMeitsf3

[Rachael @ChronicRach]

You know you've become That Patient when you call a clinic and they greet you by name

#DifficultPatient #PatientCare

[Rachael @ChronicRach]

@dpepe88 @DocSarahJ Recently, a referring doctor told me to follow-up with the clinic I was being referred to if I didn't hear from them in a couple weeks. I never heard. We're at a low point in healthcare when docs know that referrals will be lost before they even send them. #AxeTheFax

[Dr Paul Gill @drpaulgill]

***Find your vaccine proof online***Ontario, Canada

Asked several times how to find vaccine proof/receipts online as it is very hard to easily find via Google etc

So here is a direct link

https://t.co/fzM4aKZkfB

@PatientsCanada @OntarioHealthOH @SolidFooting @HuronPerthOHT

[Mark Lewis, MD, FASCO @marklewismd]

One of the most important threads on #medtwitter in recent memory, with real tension between frictionless real-time delivery of data to patients taking ownership of their health information vs. clinicians’ gestalt that some news is best relayed in person & with some forethought

[Rachael @ChronicRach]

@marklewismd And I thoroughly enjoy reading about my unremarkable brain 😉

[Rachael @ChronicRach]

@marklewismd I do think it's about patient preference. Personally, I check my patient portal religiously. I am a "need to know now" type of patient and I find having the information allows me to have more effective conversations with my doctors.

[Rachael @ChronicRach]

@ThatEricAlper Runnin' Back to Saskatoon- The Guess Who
I'm Not Running Anymore- John Mellencamp

[Rachael @ChronicRach]

@MaggieKeresteci This is something I struggle with greatly with my own healthcare. Being a patient or a caregiver in this system is a full time job. It's exhausting.

[Rachael @ChronicRach]

@Elise_ekd @spedassist Maybe try https://t.co/gSKZqCtrv2 by @EmpowerHlthcare It allows you to search by vaccine type and area and gives a map of pharmacies in stock

[Rachael @ChronicRach]

@JWailling Yes, along with the issue of patients having to pay to see their own medical information!

[Healthcare Excellence Canada @HE_ES_Canada]

This week is National #AccessAbility Week. #DidYouKnow!? If you use capital letters for each word in your hashtags, screen readers used by people who are visually impaired will hear the words individually rather than as a long incoherent word.

[Rachael @ChronicRach]

Just got a call to set up an appointment with a doctor I was referred to... in July 2020

The admin was not surprised when I told her I'd already been seen at different clinic, had imaging done, and received a diagnosis

#Canadian #healthcare

[Nancy's Point @NancysPoint]

Communicating effectively with your doctor(s) is a skill. As with other skills, it takes practice. You'll get better at it. You will! Tip #7. It’s okay to interrupt the doctor. https://t.co/K7ALd2CZ55 #patients #bcsm #bccww