ChronicallySpunky

I could write a book with all of the things doctors tell me. Instead, I am going to give you tweets. Living with #hEDS & friends and #YOPD.

[Eileen Davidson - Rheumatoid Arthritis Advocate @chroniceileen]

Reminder why some may post online about their #ChronicIllness other than seeking attention or being addicted to being sad. @MailOnline and @emmajames3 take note and stop shaming others.

@CreakyJoints

https://t.co/d1TQ39ssZk

[ChronicallySpunky @ChronicSpunky]

Anyone in the Bay Area have a need for a coffee table? Needs picked up (we can’t drop it off) today/tomorrow. I desperately want to find this beloved piece of furniture a good home!

[ChronicallySpunky @ChronicSpunky]

@TMcGreenberg I miss them!!!

[ChronicallySpunky @ChronicSpunky]

Any seronegative RA folks out here turn RA positive? #RA #rheumatoidarthritis

[ChronicallySpunky @ChronicSpunky]

@MeganDuffyPhD My Mom and I are pretty much the only ones that eat them :)

[ChronicallySpunky @ChronicSpunky]

@MyMeenaLife Such a sweetie!!!

[ChronicallySpunky @ChronicSpunky]

@MeganDuffyPhD Definitely won’t argue this one!

[ChronicallySpunky @ChronicSpunky]

@MeganDuffyPhD I am surprised given the foodie extraordinaire that you are! But, know mushrooms are a divisive food.

[ChronicallySpunky @ChronicSpunky]

@dandilion1115 Happy Valentine’s Day 💗

[Brad McDaniels, PhD @McdanielsBrad]

Still Needed - People with YOPD to identify unmet needs. If diagnosed before the age of 50 - we need you! Below is the link to the survey, which take <5 minutes to complete. Please pass along - your voice matters. @yopdclub @2MikesPDpodcast @johnsmorton @jonny_acheson

[ChronicallySpunky @ChronicSpunky]

@dandilion1115

[ChronicallySpunky @ChronicSpunky]

@McdanielsBrad How far off are you from hitting your needed number? I’m pushing in some groups I’m in for people to participate!

[𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos]

Being diagnosed with a chronic illness is like being handed a full time job that you never applied for and can never quit.

[Brad McDaniels, PhD @McdanielsBrad]

Needed - People with YOPD to identify unmet needs. If diagnosed before the age of 50 - we need you! Below is the link to the survey, which take <5 minutes to complete. Please complete by 12/31
https://t.co/jqdIBjQgpk
@DrISubramanian @MichaelOkun @RichelleFlan @PMDAlliance

[ChronicallySpunky @ChronicSpunky]

@dandilion1115 Praying!!!!

[ChronicallySpunky @ChronicSpunky]

@MeganDuffyPhD I just ate one!

[ChronicallySpunky @ChronicSpunky]

Hey #NEISvoid - suggestions on how to travel with #Cromolyn? Due to the pandemic I haven’t really traveled while taking it, and have a trip coming up. At 4 vials a day, it starts to add up quickly…#MCAS #MastCell

[ChronicallySpunky @ChronicSpunky]

@poetpooch @magicisafoot Poor Mom!!! Covid is definitely no joke, so glad she’s doing okay! How’s the elbow coming along? Any long Covid issues? I’m so sorry to hear all of this!! Rough patch for sure!!!

[ChronicallySpunky @ChronicSpunky]

Happy Sunday, friends! How’s your Sunday so far?

[ChronicallySpunky @ChronicSpunky]

So here’s a new one for me my #hEDS friends…I just woke up from a very, very vivid dream, where a zebra was trying to kill me. Ridiculous? Yes. Obviously how I feel though. Thought I was further along in processing my diagnosis. #EhlersDanlosSyndrome #EDS

[ChronicallySpunky @ChronicSpunky]

@magicisafoot @poetpooch Hi little pal! How are you?? How’d the summer treat you??