Reminder why some may post online about their #ChronicIllness other than seeking attention or being addicted to being sad. @MailOnline and @emmajames3 take note and stop shaming others.
@CreakyJoints
https://t.co/d1TQ39ssZk
Anyone in the Bay Area have a need for a coffee table? Needs picked up (we can’t drop it off) today/tomorrow. I desperately want to find this beloved piece of furniture a good home!
Still Needed - People with YOPD to identify unmet needs. If diagnosed before the age of 50 - we need you! Below is the link to the survey, which take <5 minutes to complete. Please pass along - your voice matters. @yopdclub@2MikesPDpodcast@johnsmorton@jonny_acheson
Needed - People with YOPD to identify unmet needs. If diagnosed before the age of 50 - we need you! Below is the link to the survey, which take <5 minutes to complete. Please complete by 12/31
https://t.co/jqdIBjQgpk
@DrISubramanian@MichaelOkun@RichelleFlan@PMDAlliance
Hey #NEISvoid - suggestions on how to travel with #Cromolyn? Due to the pandemic I haven’t really traveled while taking it, and have a trip coming up. At 4 vials a day, it starts to add up quickly…#MCAS#MastCell
@poetpooch@magicisafoot Poor Mom!!! Covid is definitely no joke, so glad she’s doing okay! How’s the elbow coming along? Any long Covid issues? I’m so sorry to hear all of this!! Rough patch for sure!!!
So here’s a new one for me my #hEDS friends…I just woke up from a very, very vivid dream, where a zebra was trying to kill me. Ridiculous? Yes. Obviously how I feel though. Thought I was further along in processing my diagnosis. #EhlersDanlosSyndrome#EDS