My name is Hannah. I am the founder and manager of the @Chronicallyamu1 community. Over the course of October I did a project called Dys-Ink. I combined Dysautonomia Awareness month and Inktober into a series of… https://t.co/Meiye1Hxis
My name is Josie and I'm a 25 year old disabled wife, mother, and entrepreneur. I have Ehlers-Danlos Syndrome and many comorbidities including Dysautonomia. One thing that I wish more people knew is that… https://t.co/e1l0g4OtqF
My instagram handle is mypotsofview. I hope this entry below is different and fun for your page. I enjoyed writing this, it was kinda therapeutic for me. Thank you for allowing me to share. <3 I wrote "i turn 30… https://t.co/CpFGC2s23l
My names is Lilith Churchill my instagram name is davidnlilith, and at 22 years old im permanently disabled because of my POTs and other illnesses. My POTs is like one big symptom for all my health reasons. Its… https://t.co/hD42kse4T3
Hi everyone, thought I’d share a personal story about my past before I was diagnosed with POTS.- My entire life I played high level soccer and was extremely active everyday. I even played professional soccer in… https://t.co/t0V16nzJmn
sydneydawsonstudio
I’m Sydney, but most people just call me Syd. At 15 I started violently passing out (as I like to call it) and wound up being diagnosed with POTS. Today I am 21 years old and attending college… https://t.co/CcBm4Mzbf1
My Instagram name is @AshetonT. I was finally diagnosed with dysautonomia and POTS at 17 after years of struggling. I spent years suffering in silence alone before I discovered the spoonie community. That's why I… https://t.co/NdZD1DSaJo
hi!
here is greta, i’m 17 yo dysautonomia fighter from finland and currently living as a bedpatient. my ig is chronically.greta and i would be honored if you wanted to draw me for the inktober / dysautonomia… https://t.co/lpcFOd5Bis
Hi! I'm Catie and I'm 15 years old. I like playing around with makeup, baking, and reading. I've had POTS for almost 2 whole years now. Some days are actually kind of good, and other days I find it difficult to… https://t.co/C6jtXI30HS
I’m Hannah. I’m 14. I have anxiety, depression, POTs, Eds, and Asthma. This is a bit of my struggle with dysautonomia. I was diagnosed with POTS in May of 2019. I was constantly fainting. At least once a day. And… https://t.co/sLf9LCC366
“Hi, I’m Sam, I’ve been chronically ill for over nine years now, and it wasn’t until this past couple years that I was able to start thinking about what life looks for me. I’m homebound, unable to help out around the… https://t.co/WQ2xflc2FS
HALLOWEEN IS NEAR! WHAT ARE YOU GOING TO BE? 💛🌻
I’m Emma Smith, I was diagnosed with #dysautonomia during my #sophomore year of #highschool. I had to grow up fast. But looking at all the trials I have been faced… https://t.co/KkCeWPGZCR
I started getting, what we called, "mystery diagnosis sick" back when I was 11... It's kind of crazy one moment you think you just have the #flu and then your life is never the same again. It took 6 years to… https://t.co/LXixkEDMNF
My story:
I was diagnosed with #Dysautonomia when I was a baby, very weak, #seizures , #syncope , high #fevers , very low #heart rate, #digestive issues, list goes on... back then my parents were told that a baby… https://t.co/GoTMmEf3DY
Hi Hannah,
This is my sister Gracie adventures_with_grace_and_jill
Gracie is 14 years old and started having dysautonomia symptoms about 9 months ago when we had her hooked up to all the monitors in the hospital.… https://t.co/zVHwNA2e1a
My name is Christine, on Insta known as thedancingspoonie !
This is such a cool project, I love it!
I've attached my photos and here's my little blurb:
Dysautonomia has turned my world upside-down. I went from… https://t.co/OaPhlLl2aj
I've had dysautonomia symptoms my whole life, but things got wild five years ago when I got very sick while living and working in south-east Asia. Since then life has changed dramatically, yet as my life crumbled… https://t.co/LddcVXnhD5
My Instagram is @sophieinpariss
I think the quote I use on a daily basis to survive my way through Dysautonomia/POTs is; “There is good and you will find it, I promise”- Morgan Harper Nichols. It reminds me that… https://t.co/dR335D20pS
@chronicallyjenni "I was diagnosed with #POTS secondary to #EDS 3 and a half years ago after a constant battle with #Doctor to get them to see that my symptoms were not #anxiety -related. " Find out more on #Instagram
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