Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2

NF1 💙💚🩶 Brain cancer survivor ‘Real tough kid’ eras x1 Brain surgery x5

[Taylor Nation @taylornation13]

Running wild to @YouTube to watch the "I Knew It, I Knew You" Music Video ☁️ https://t.co/E04GfR7u0s

Disney and @Pixar’s @ToyStory 5 in theaters June 19.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

@taylornation13 @NYTmag

[Jayna ��� @Eras_Resale]

So long story short I forgot my portable charger, didn’t realize until I got on the plane, and being the anxious traveler I am I’m freaking out

Does anyone have recommendations for GOOD portable chargers I could get at Walmart?

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

@Eras_Resale It’s not just me 😭

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

May was an amazing month. I can’t believe I actually graduated high school. I didn’t even know if I would have a future last year and now I am preparing for college classes. I was lucky to be allowed to wear my beads of courage when I walked the stage.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

May was an amazing month. I can’t believe I actually graduated high school. I didn’t even know if I would have a future last year and now I am preparing for college classes. I was lucky to be allowed to wear my beads of courage when I walked the stage.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

My dad still is in support of all the cuts being made, despite being told at appointments that trials are no longer running because of funding loss and right now there are only 2 FDA approved treatments for NF1, the condition has had a funding program since 1996 now it’s all gone

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

I’ve never been one to interact with,let alone post something political, but May is Neurofibromatosis awareness month. NF1 is one of many conditions to lose funding from CDMRP this year, in NFs case that was 25 million dollars, trials now put on hold.

[Sammy ☁️ 🤠✨🪩 @SammysEra]

Hey why can’t we just be nice to each other on here!!!?? 😃

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

@SLuvflyer I’ve done my senior project on an argumentative essay on the topic. This condition has took so much from me and any future research to help is now gone. I’ve done deep research in it and multiple times have I had to stop and back away because I was so pissed at what has happened.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

NF1 affects 1 in every 2,500 people and is a cause of pediatric cancer. It of course isn’t the only condition to lose funding, a long list of previously funded conditions is visible on CDMRPs website

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

I’ve never been one to interact with,let alone post something political, but May is Neurofibromatosis awareness month. NF1 is one of many conditions to lose funding from CDMRP this year, in NFs case that was 25 million dollars, trials now put on hold.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

My dad still is in support of all the cuts being made, despite being told at appointments that trials are no longer running because of funding loss and right now there are only 2 FDA approved treatments for NF1, the condition has had a funding program since 1996 now it’s all gone

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

@taylornation13 living for the hope of it all with my cardigan senior photos

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

And in other news, I’ve managed to stay out of the hospital for a while which has allowed me to catch up with school and will be able to graduate this year! I took some senior pictures with my beads of courage, the beads represent all I’ve gone through with my medical journey.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

And in other news, I’ve managed to stay out of the hospital for a while which has allowed me to catch up with school and will be able to graduate this year! I took some senior pictures with my beads of courage, the beads represent all I’ve gone through with my medical journey.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

I realize I haven’t posted anything at all since making it to The Eras Tour, for those who started following my story when I was trying to make it, here is an update. A treatment for neurofibromatosis just got FDA approved and I’m stable enough to start it.

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

@michelle_ann_89 @kush07_ CBC BBCkkk

[Chloe Stephenson ⱽᵃⁿᶜᵒᵘᵛᵉʳN2 @Chronicswiftie1]

For everyone who has been following my story here’s a happy ending. Plus the fact I’ve been out of the hospital 6 months now the longest I’ve gone out of the hospital since I was 13.

https://t.co/FXhLvhz1NL