Claire B

Project Manager - Better Together for Healthy Bone Marrow (at the Aplastic Anaemia Trust)

[RARE Revolution Magazine® @RareRevolutionM]

"The whole journey of it is just so exhausting and everything is so up and down." Hear more about Lauren's experience being a parent to a child with a rare bone marrow condition, and how getting support has helped her through the difficult time #RareVoices https://t.co/Ph3E75eUQg

[Claire B @ClaireB_AAT]

Very excited to be researching and planning for what we can deliver in this space as part of the Better Together project @PNHSupport @DC_Action @AplasticAnaemia @CharitySdsuk @CAnaemiaNetwork @fanconihope https://t.co/l1zzG8Ixfk @RareRevolutionM

[RARE Revolution Magazine® @RareRevolutionM]

The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 83% surveyed wanted access to an up-to-date verified portal of research about their condition, new treatments, and treatment methods. More here:https://t.co/ErDAIqEE7K
@AplasticAnaemia

[Claire B @ClaireB_AAT]

Our Better Together project partners will use these insights to shape how we support our communities @PNHSupport @CAnaemiaNetwork @CharitySdsuk @fanconihope @DC_Action @AplasticAnaemia
It is so exciting to see this report published https://t.co/l1zzG8Ixfk

[RARE Revolution Magazine® @RareRevolutionM]

This #TuesdayTakeover we're highlighting #RareVoices - a report launched today based on the first ever national community survey of people affected by rare bone marrow conditions. Stay tuned for important insights uncovered. Find out more: https://t.co/ErDAIqEE7K
@AplasticAnaemia

[Small Charity Week @SmallCharity_Wk]

If you missed this fantastic webinar you will be able to watch Ellie & Claire anytime on. We'll upload all talks within 48hrs

https://t.co/SdIbJGPhwS
#SmallCharityWeek

[PNH Support @PNHSupport]

Happy Small Charity Week! Why not support our small charity which is run by patient volunteers?
By donating as little as £2 a month you are funding us to continue to advocate for PNH patients
Visit https://t.co/NiFIxNkHM1
#smallcharityweek

[Reach Volunteering @ReachVolunteer]

We love small charities. Each year we support a growing number of them to find #volunteers for their cause, from human rights to poverty relief and climate action. They may be small but they're mighty! #SmallCharityWeek #SmallCharitiesTogether

[Claire B @ClaireB_AAT]

https://t.co/JtL0dn6I3v

Lots of brilliant events to register for still this week @SmallCharity_Wk
#SmallCharityWeek #SmallCharitiesTogether

[Claire B @ClaireB_AAT]

So thrilled to be sharing insights from our amazing collaborative fundraising efforts & Better Together project today @PNHSupport @AplasticAnaemia @CharitySdsuk @CAnaemiaNetwork @fanconihope @DBA_UK @DC_Action #SmallCharityWeek #SmallCharitiesTogether the week ahead looks fab!

[Small Charity Week @SmallCharity_Wk]

Let's tell everyone about Small Charity Week. Tag all the small charities you know to make sure they've got their tickets to get loads of free support and advice next week https://t.co/pVZOd7XKgZ

Get tagging 😀

#SmallCharityWeek
#SmallCharitiesTogether

[Claire B @ClaireB_AAT]

@ambershotton @SmallCharity_Wk have you presented for Small Charity Week before? This is the first time I have been involved, so excited to be part of it

[Claire B @ClaireB_AAT]

I am very excited to be sharing our Better Together project and talking about the benefits of collaborative fundraising as part of #SmallCharityWeek. @AplasticAnaemia @PNHSupport @CAnaemiaNetwork @DC_Action @DBA_UK @fanconihope @CharitySdsuk. With thanks to @TNLComFund

[Small Charity Week @SmallCharity_Wk]

We're on the final countdown. Just one week to go 🥳

Last week we announced all your amazing speakers & spaces are booking fast. Don't forget to book your spot this week. 

https://t.co/c9bFWdN3BW

#SmallCharityWeek
#SmallCharitiesTogether

[Small Charity Week @SmallCharity_Wk]

So there we have it, your first day of speakers for Small Charity Week 2023 announced & bookings open.

Who's joining us for some of these amazing webinars?

See you tomorrow for SCW Tues speaker announcements

#SmallCharityWeek
#SmallCharitiesTogether

[Claire B @ClaireB_AAT]

So excited about this webinar & talking about the amazing work our seven small but mighty charities are doing together @AplasticAnaemia @CharitySdsuk @fanconihope @DC_Action @DBA_UK @PNHSupport @CAnaemiaNetwork with thanks to @TNLComFund #SmallCharityWeek #SmallCharitiesTogether

[Small Charity Week @SmallCharity_Wk]

Mon 19 June 10.30am join Claire Baggott from the Better Together Project & Ellie Dawes from @AplasticAnaemia as they discuss fundraising & the spirit of working together.

Book your place today https://t.co/GS41hTaEIX

#SmallCharityWeek
#SmallCharitiesTogether

[Small Charity Week @SmallCharity_Wk]

Drum roll please - your Small Charity Week 2023 agenda is here.

We're so excited we wanted to put back out again today to make sure no-one misses it.

Read the thread for a snapshot of each day.

#SmallCharityWeek
#SmallCharitiesTogether

[DC Action @DC_Action]

Our Medical Advisor, Hilary, and daughter Alice are walking the Queen Charlotte Track in NZ in support of DC Action for Rare Disease Day (a few days early!) Donations via our website https://t.co/sPu369ynZn are much appreciated 🥾 #superrare #togetherwalk2023 #BetterTogether

[PNH Support @PNHSupport]

Rare Disease Day is on 28 Feb! What are you doing to celebrate? Why not fundraise for us by holding a bake sale or a quiz or take on a challenge?
Show people with #PNH that they are not alone - visit
https://t.co/B6TSlBiega

#RareDiseaseDay #superrare #superrare2023

[SDSUKCharity @CharitySdsuk]

Next week is Rare Disease Day! What are you doing to celebrate? Fundraise for SDS UK by holding a bake sale, host a quiz or take on a challenge.
Show people with SDS that they are not alone this Rare Disease Day, visit https://t.co/yHWAYENKQ9
#RareDiseaseDay #superrare

[Rare Disease UK @rarediseaseuk]

It's #RareDiseaseDay!

Today is all about raising awareness and generating change for the 300 million people worldwide living with a rare condition, their families and carers.

Keep an eye out on our feeds throughout the day – @GeneticAll_UK @rarediseaseuk

#CareForRare

[PNH Support @PNHSupport]

It’s Rare Disease Day! We asked members of our community what it was like to have a Super Rare Disease. Here is what they said. Can you relate?
#superrare #rarediseaseday2023 #rarediseaseday #superrarebutnotalone

[DBAS UK @DBA_UK]

Celebrating our Super Rare day today with our favourite people.
♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️
#rarediseaseday2023
https://t.co/VL0YdvGdhH