Claire Scott-Griffiths

Solicitor

[The Bridewell @The_Bridewell]

Hey @lpoolcouncil any idea when this will be completed?

We’d love to be able to put our outdoor furniture out in our licensed area especially with the weather being so lovely.

[Patients United2EndMND @united2endmnd]

This clearly shows #Mirocals results expected by end March 23. WHY the delay? We're not demanding access to #Proleukin We know we need results. TRANSPARENCY is a MUST for CHARITY funded trial. @MNDPatients, pls ask @mndassoc for answers to our 6 questions https://t.co/lHq5EukdAv

[Great Run @Great_Run]

Former England international footballer, Steph Houghton, is taking part in the AJ Bell Great North Run!🙌

Steph is running to support the Darby Rimmer MND Foundation, which aims to raise awareness of MND, fund research and support.

Good luck @stephhoughton2!🤩

[Darby Rimmer MND Foundation @DarbyRimmerMND]

The MNDA need to look at patients’ needs when it comes to #MIROCALS and give us some answers that patients and fundraisers deserve.

[MND Campaigns @mndcampaigns]

Our Chief Exec Tanya Curry has written in Conservative Home to encourage the new Conservative leader, as Leader of the Opposition, to ensure that the needs of people with MND are given the consideration that they deserve. Read more here: https://t.co/Z4fLbj0KUP

[Patients United2EndMND @united2endmnd]

.@mndassoc Many in #MND community think our questions are REASONABLE N.b. for #Mirocals trial funded by OUR donations & taxes. Pls can you answer them? Can you help @ClaireRyanSport @IanByrneMP @APPGonMND @edslater @DHSCmedia @wesstreeting @BBCFergusWalsh @richardhorton1

[Darby Rimmer MND Foundation @DarbyRimmerMND]

Not good enough. Falls way short of what people battling mnd need and deserve. It’s embarrassing. Regardless of the results serious lessons need to be learned to make sure we don’t see a repeat of this disastrous situation.

[Geoff Burrow @burrow_geoff]

Agree - nowhere near good enough !
WHY can’t MND sufferers have access to IL-2 🤷‍♂️ the drug used in clinical trials ?
IF ILTOO are seriously delaying publication of Trial Data until “they” have an alternative version, then WHY are media companies not helping with publicity ?

[HightownJFL @HightownJFL]

We’ve received a lot of messages in the last 24hrs, sorry I couldn’t reply to everyone but I’m sure you understand why. Thank you for your kindness and support, it means a lot.

Teddy my 7 yr old daughter was at the horrific incident in Southport yesterday.

She went in with her best friend, a friend she was so lucky to have; the smartest, prettiest little angel from the best family you could ever wish to know. It breaks my heart to say her little friend has been taken away from this cruel world. We just pray she is in peace and her family find the strength to get through this.

Her Mum, My Dad an I were one of the first at scene, when only 3 officers present so the media reports of it being armed officers who detained him is not true - it was local, every day police officers. They defied orders and risked their own lives to protect the lives of children from our community.

The things witnessed will live in our memories forever. Those same police officers; who get paid less than a McDonald’s manager, got home, hugged their own kids and got back up this morning to do it all again, are now being attacked on the streets.

No matter what your political views are, they are not the problem. Please, for the sake of the poor victims and their families, STOP THE VIOLENCE.

We will forever be in debt to Leanne, Heidi, Greg, Joel, John and every other hero who helped save so many lives.

💙 ❤️💜

[BBC Breakfast @BBCBreakfast]

'By the time that you watch this I will no longer be here'

A poignant final message from the Leeds Rhinos legend and MND campaigner recorded before his death for a special BBC documentary 'There's Only One Rob Burrow'

@BBCOne @BBCiPlayer

[Darby Rimmer MND Foundation @DarbyRimmerMND]

Everyone at Darby Rimmer MND Foundation is heartbroken and devastated to hear the sad news that our great friend Rob Burrow has passed away.

Our thoughts are with lindsey, Macy, Maya, Jackson and family.

Rest easy Rob x

[Claire Scott-Griffiths @ClaireEdwards9]

This is so important - Please show your support and sign #attackMND #united2endmnd

[Darby Rimmer MND Foundation @DarbyRimmerMND]

Show your support by signing our open letter to the Mirocals consortium. You can sign the letter using the link below

https://t.co/jnZlmQLAlW

[Patients United2EndMND @united2endmnd]

We have had over 400 signings and messages so far supporting @DarbyRimmerMND @Rob7Burrow @edslater Marcus Stewart, partners and @burrow_geoff - Open letter to the Mirocals consortium. See all the messages here and perhaps add your voice?

https://t.co/3MkNFZ9D34

#united2endmnd

[Oliver Kay @OliverKay]

Absolutely thrilled to hear that March of the Day has smashed the £200,000 barrier for @DarbyRimmerMND Absolutely delighted for Stephen and Marcus — and imagining how proud Chris Rimmer would be. Incredible work by them, the heroic @Redsmail and many others #marchoftheday #MND

[ITV Granada Reports @GranadaReports]

Cheering crowds greeted former Liverpool player Stephen Darby at the end of a 178-mile trek to raise money for research into MND and support those living with it. Darby, forced to retire after his diagnosis in 2018, led #MarchOfTheDay to Anfield after passing 17 grounds en route.

[BBC Breakfast @BBCBreakfast]

'We're really fortunate to have a good support network but many families don't have that'

Steph Houghton, whose husband Stephen Darby is living with MND, spoke to #BBCBreakfast after hundreds of people completed a 3 day 178 mile walk to raise awareness

https://t.co/TZfTj4Qrzp

[Darby Rimmer MND Foundation @DarbyRimmerMND]

What an incredible weekend, the support has been outstanding and all the walkers are the superstars of the weekend.

Stephen, Marcus and all the team associated with Darby Rimmer MND Foundation cannot thank you all enough

THANK YOU 😁

#MARCHOFTHEDAY
#ATTACKMND
#PROUD

[Claire Scott-Griffiths @ClaireEdwards9]

3.5 hours in and still smiling ❤️✊🏻 @DarbyRimmerMND #attackMND #MarchOfTheDay

[Claire Scott-Griffiths @ClaireEdwards9]

Joining March of the Day on the Bolton to Bury leg of the walk - raising awareness and money for @DarbyRimmerMND to help in the fight against MND ✊🏻🚶‍♀️#MarchoftheDay #attackMND

[BBC Sport West Yorkshire @BBCWYS]

What a wholesome day yesterday was!

A look back at #MarchOfTheDay in aid of @DarbyRimmerMND ❤️

Hear how @JamieRaynor is feeling right now by tuning in to coverage of Harrogate Town vs Bradford City on all our frequencies! 👀

#BCAFC | #BBCFootball | #AttackMND