Leah

Patient advocate for Crohn’s by day, scientist by night AND day. @ccyanetwork

[Leah @Clarklmc15]

#AIBD2022 is where the party is!

[Crohn's and Colitis Young Adults Network @CCYANetwork]

“We getting pulled up tonight” 🎶

When GI docs pull up at #AIBD2022 with patients…@IBDConference

@MRegueiroMD @MLongMD @NMH_SHanauerMD @SCKimCHP @JeremyAdlerMD

[Helmsley Charitable Trust @HelmsleyTrust]

Now a member of @CCYANetwork's Helmsley-funded fellowship program, @DrFasika says, "sharing my story is a superpower." Read it here: https://t.co/C6m145DYsC

[Leah @Clarklmc15]

From @genpatient webinar, “Many states are implementing prescription affordability boards, with support from @icer_review to help patients receive support they need with their medications.”

[Generation Patient @genpatient]

“62% of US Adults take 1 or more prescription drugs. 26% have trouble affording their medication. 29% don’t take their meds as prescribed due to the cost.”

-@bnrome at our Fundamentals of Health Economics forum

[Leah @Clarklmc15]

@snehadave98 @genpatient I love @genpatient!

[Crohn's and Colitis Young Adults Network @CCYANetwork]

It’s corn!! 🌽

#IBDTwitter #GITwitter #MedTwitter

[Generation Patient @genpatient]

The U.S. Court of Appeals for the Fourth Circuit ruled transgender people with gender dysphoria are legally protected under the ADA.

“This decision sets a powerful precedent that will be important for other courts considering this critical issue.” (https://t.co/AyX7ilQgAZ)

[Crohn's and Colitis Young Adults Network @CCYANetwork]

Are you a medical student interested eager to learn more about AYAs with Inflammatory Bowel Disease?

We are excited to announce that our IBD Medical Student Scholar Program Applications are open!

Scan the QR code or visit: https://t.co/nCVfPC3wss to learn more & apply!

[Leah @Clarklmc15]

@metraux_julia Jones, named after the cat from Alien, is the cat equivalent of your fav wobbly drunk bby that never points his feet in the right direction and chirps instead of meows

[STAT @statnews]

David Mitchell has filled an important void as a politically savvy patient advocate who was well-funded but didn’t take a penny from the pharmaceutical industry. https://t.co/V8rQQVXvQe

[samantha reid @sammmreid]

me when medicare negotiation passes today:

[Crohn's and Colitis Young Adults Network @CCYANetwork]

BIG NEWS 🚨

We are excited to announce two new additions to CCYAN! Both initiatives are made possible with funding provided by ⁦@HelmsleyTrust⁩.

Read more: https://t.co/7HVfRGGpsL

[Crohn's and Colitis Young Adults Network @CCYANetwork]

Join us this Thursday at 9PM EST for a Virtual Community Meeting!

This meeting will be about Navigating Relationships and IBD & will be led by our amazing team member Amy Weider!

If you’re interested send us a DM or email us at [email protected]

#IBD #DisabilityTwitter

[Sneha Dave @snehadave98]

As young adult patients, the opportunity to pursue higher education, meaningful employment, etc. is determined in part by the ability to afford medications we need to live.

Imp to contextualize that lower drug prices also means increased opportunity.

https://t.co/e71xYKPLlF

[Leah @Clarklmc15]

Everybody’s IBD experience is unique, and I’m glad to be able to share my unique perspective! @CCYANetwork

[Crohn's and Colitis Young Adults Network @CCYANetwork]

Diversify IBD Patient Engagement 📣

It is important to amplify and include different perspectives for speaking/engagement opportunities ⬇️

This resource is a list of incredible IBD patients. Include them to speak, engage in research design, etc!

https://t.co/1g6BpYs2T6

[Generation Patient @genpatient]

Hey @tiktok_us, @Meta, @TwitterCreators we would love if you have a content warning for prescription medication advertisements.

We even created two examples below!

[Sneha Dave @snehadave98]

I stopped believing that we would ever have a cure for IBD years ago bc of really devastating financial incentives and nonprofits enabling the status quo. It feels so much more profitable to have us constantly switch meds.

https://t.co/j31wMXVQLk #GITwitter #MedTwitter

[Crohn's and Colitis Young Adults Network @CCYANetwork]

Please share! Two of our fellows, Carina Diaz and Maalvika Bhuvasunder, are conducting a survey about study abroad experiences with #IBD!

https://t.co/kqE0HOGvye #GITwitter #MedTwitter

[Crohn's and Colitis Young Adults Network @CCYANetwork]

And we are super excited that @Clarklmc15 will be leading today! #GITwitter #IBDTwitter

[Crohn's and Colitis Young Adults Network @CCYANetwork]

Today was the best because three of our fellows, past and present got to meet @MRegueiroMD from our medical advisory board!

Dr. Regueiro is an amazing advocate for young adults with IBD! 💫 #DDW2022