Cleft Otolaryngology Forum

A group of otolaryngology clinicians and research professionals committed to sharing ongoing research in cleft palate and craniofacial differences.

[Cleft Otolaryngology Forum @CleftNotes]

Very excited to hear this important panel IN PERSON #sentac2021 @JS_Peds_OTO

[Cleft Otolaryngology Forum @CleftNotes]

Enjoyed the impressive talk at ACPA2021 by Dr. Kamalakar on the role of JAGGED1 in osteoblast commitment and bone regeneration through stimulation of non-canonical NOTCH signaling in cranial neural crest cells. @GoudyLab

[Cleft Otolaryngology Forum @CleftNotes]

Fantastic panels and presentations at ACPA 2021 addressing VPI and nasal considerations for airway management. @JS_Peds_OTO @tttollefsonmd @GoudyLab

[Cleft Otolaryngology Forum @CleftNotes]

“Our data show an increased risk of VPI diagnosis and increased surgical burden among patients receiving 2-stage CP repair.” @JSkirkoMD https://t.co/Xt0HOrtobL

[Cleft Otolaryngology Forum @CleftNotes]

Case report of extremely rare arhinia, with a discussion of treatment and reconstructive options.

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

I don't often do case reports but when I do, they are super unusual.
This cutie was born with no nasal passage. Nasal anatomy was undescribed in the literature. It will be interesting to see how his maxilla and nose develops
#Arhinia
https://t.co/NgRPkOjEgz

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

Measuring Quality of Life is just as important in Nepal as it is in the US. Check out the Nepalese translation and linguistic validation of our VELO #Cleft Speech #QOL instrument

https://t.co/L1uamBbiJK

[Cleft Otolaryngology Forum @CleftNotes]

Congratulations!!

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

Good news of the week!
#noticeofaward
#Funded
#qualityoflife
#nowigottadothework

[Cleft Otolaryngology Forum @CleftNotes]

Congrats Dr. Skirko!

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

Studying rare diseases is challenging. My recent PCORI award was funded, so we can continue build our consortium of sites managing children with Pierre Robin Sequence and develop clinical research questions that are important to patients and their parents.
#Funded
#PRS

[Cleft Otolaryngology Forum @CleftNotes]

Congrats Hilary McCrary, Jonathan Skirko, and team for the Best Clinical Research Project ASPO #COSM2019 #cleftpalate

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

Congrats to Hilary McCrary on receiving the Charles Fergeson Award for the Best Clinical Research Project ASPO for our project "Increased Risk of Velopharyngeal Dysfunction in Patients Undergoing Staged‐Palate Repair."
Well deserved
#mentorship #Winning #PedsOTO #2019COSM

[Cleft Otolaryngology Forum @CleftNotes]

Fantastic research on #TeamCare for children with #cleftpalate at #COSM2019

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

More great work shared at #cosm2019 by Dr Torrecillas!
Shockingly, there is almost no studies on the benefits of #TeamCare in managing kids with #cleft palate. That changes now.
More VPI diagnosis, VPI surgery and earlier treatment in those seen by the team.

[Cleft Otolaryngology Forum @CleftNotes]

Great work by Dr. Skirko and colleagues at #COSM2019

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

Closing out #COSM2019 with our talk on the translation and validation of the Ecuadorian Dialect of #Spanish VPI #qualityoflife instrument, the VELO.
Thanks to @tttollefsonmd, @UCDavis_OTOHNS and @globalsmile for making it possible.
More to come!

[Cleft Otolaryngology Forum @CleftNotes]

Fantastic presentations during the Otolaryngology and Airway session at #ACPAMeeting

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

I love 3D reconstructions in planning craniofacial surgery. It also makes cool pics. A - is pyriform aperture stenosis; B - Aperts Syndrome; C - Pierre Robin Sequence (PRS). Check out the paper to learn more!

https://t.co/DxRGR2bh0x

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

https://t.co/KbxpfghDtf

[Jonathan Skirko, MD, MHPA, MPH @JS_Peds_OTO]

How reliable are measurements of baby noses? And are they different between #craniofacial abnormalities? (Very and Yes)
Read one of my latest papers to find out more!
Gotta have a good measurement to know Who would most benefit from my new surgery...
https://t.co/DxRGR2bh0x

[Cleft Palate News @CleftPalate_Bio]

Exercises for Improving Soft Palate and Eustachian Tube Function in Children With Ear Tubes With or Without Cleft Palate: Elevation of the soft palate the soft part of the roof of the mouth during swallowing helps the Eustachian tube to open and keep the… https://t.co/Assm86w4dc

[Gregory Allen @GregoryAllenMD]

Very proud to be part of this work. Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries https://t.co/BKjUIft74K

[Cleft Otolaryngology Forum @CleftNotes]

Tubes before palatoplasty may increase the risk of otorrhea and additional tubes. https://t.co/sDrVGCeFrh #cleftpalate

[Cleft Otolaryngology Forum @CleftNotes]

Great paper by Lee et al showing low sensitivity of awake endoscopy vs DISE for diagnosing base of tongue obstruction in PRS. https://t.co/4frHtyOQOw

[Dr. Travis Tollefson @tttollefsonmd]

Nice work by @YenYen323 @rajdedhia A basic algorithm for revision #cleft #rhinoplasty #surgery @UCDavis_OTOHNS @ThiemeNY