Clare

[Shoshana Weissmann, Sloth Committee Chair 🦥 @senatorshoshana]

Holy hell, this stat.

Akathisia is an indescribable horrible sensation of constant fear, terror, inability to sit still, and it drives people to take their own lives.

"Antipsychotic-induced akathisia (AIA) occurs in 14% to 35% of patients treated with antipsychotics and is associated with increased suicide"

That is an ENORMOUS amount of people.

[George Ferman @Helios_Movement]

Feeling anxiety physically without anxious thoughts for example, can be a common sign of histamine intolerance/MCAS.

While the average person still thinks that histamine is just something related to allergies, let’s not forget that histamine acts as a neurotransmitter in the brain, influencing things such as arousal, attention, mood, sleep, and motivation.

So when levels build up it can create:

-Restlessness and physical + mental hyperactivity

-Difficulty concentrating, brain fog, inattention

-Irritability, impulsivity, or agitation

-Sleep disturbances (insomnia or poor sleep quality)

-Anxiety or sensory sensitivities

-Hyper arousal

-Racing thoughts, anxiety/panic, or restlessness

-Insomnia or disrupted sleep cycles (common in manic phases)

-Depressive symptoms (fatigue, brain fog, low motivation) during crashes

-Emotional lability or energy fluctuations

Of course, we don’t pull all these out of our asses.

There are reports noting that histamine flares can mimic manic/depressive episodes, and MCAS patients sometimes receive initial bipolar diagnoses.

More:

[Gail Myerscough @GailMyerscough]

Three new prints have just been added to my shop.
Durdle Door, Eastgate Clock and the Malvern Hills.

https://t.co/5UVmSJArbR

[Clare @Clrblwrs]

I think patients are not getting diagnosed with ME or CFS after a virus anymore

It's either LC or FND, going on what has happened to my family members

[recovery&renewal @recover2renew]

https://t.co/TvR9zyOuLX

[Katy B @KatyBruce108]

@mermhart Lots of us here share biomedical M.E research findings
& comments from brilliant researchers, like Professor Chris Ponting from @DecodeMEstudy

[🕸️Dr.T, PhD @chydorina]

I often wonder how much of the declines we see in ME end up being due to the drugs we take to control symptoms. Steroids such as Dexamorphan are commonly used in autoimmune conditions and in acute inflammatory responses. Many common meds are mitochondrial toxins (like Metformin). Chilling.

[ℂ𝔸ℝ𝔻𝕀ℕ𝔾𝕋𝕆ℕ 𝕊ℍ𝔼𝔻𝕊 @CardingtonSheds]

97 years ago today Airship R101 overflew London on her maiden flight and overflew Highbury Stadium. #R10197

[Clean Air 2 Breathe @AirFairy04]

This #CleanAirNight share the uncomfortable truth about wood burning.
Wood burning is the most polluting way to heat your home & it's harmful to your family's health & the health of your neighbours.

Please think twice before lighting up, thank you.
https://t.co/fiNppGv3CY

[Colin Wynter KC @QcWynter]

Brilliant. Well done those young women.
The more this is done, the more it is seen, the greater the embarrassment for the absolute clowns in charge of girls' sports and the sooner will come the necessary corrections.
A fabulous and inspiring story to start the day.

[Clare @Clrblwrs]

@James_Treadwell She was told she could not have medical care unless she confessed. She could have been coerced into a false confession.

[Tim Daw @Timdaw]

Free unrestricted 1940s aerial photos of Wiltshire, mapped and linked at https://t.co/5rqBD8ooDu

[Dr Nicola Clague-Baker @ClagueNjc36]

Looking forward to @csp annual conference. Going with three MSc students - @NiamhLHeeran @ElaKlaveness @EleanorMg01 and PhD student @karenphysiocouk all presenting their work related to #ME and #LC. Raising the profile of #ME and #LC for over 1500 #physios. @PhysiosForME

[Today In History @URDailyHistory]

13 Oct 1918: 13 Oct 1918: Private Adolf Hitler is temporarily blinded by a #British mustard gas in the #Ypres Salient in #Belgium during World War I. He is evacuated to a German military hospital at Pasewalk, in Pomerania. #WWI #History (Some say it was Oct. 14. The attack evidently occurred on the night of the 13th into the morning of the 14th.) #ad https://t.co/w8OQb40V7s

[Callum Lyon @CallumLyon]

The annual British tradition of sitting in a freezing house pretending you're not cold because you don't want to put the heating on has officially begun.

[Charlotte Gill @CharlotteCGill]

Saw my endocrinologist today. It cost so much 😭. However, if I hadn’t paid to get help (underactive thyroid and CFS/ ME) I know I would still be stuck in bed. The NHS was so useless and gaslighty! It’s honestly terrible how many people aren’t getting help for these things.

[Polly Patterson @PollyPAuthor]

Thanks for everyone who replied, I'm very grateful for your feedback. With this in mind, I have created a 23 multiple-choice question survey entitled: "Private Healthcare for "Contested" Illnesses", which can be accessed via the link in the first comment.⬇️

Feel free to share externally alongside the "safety points". 📬

I will close the survey at 17.00 UK time on 20.10.2026

A few key safety points:

1) Your health comes first so please give it a miss if you're not sure you can manage it
2) This is anonymous
3) This is one is UK only unfortunately
4) Only the first question is "mandatory". So you only need to fill in what you are comfortable answering from that point onwards.
5) I'm bedbound with very severe post-viral illness myself, so I also have to be careful on the spoon front. Therefore, please use the survey wherever possible for "extra comments" even if you just answer Q1 and Q23 and click send. Sticking to one place makes it much easier for me to manage.

Thanks so much and very best wishes

#longcovid #longEBV #longlyme #MECFS #EDS #hEDS #Dysautonomia #POTS #MCAS #disability #chronicillness

[Lucy Easthope @LucyGoBag]

Crikey @CrossCountryUK this is an interesting way to play fast and loose with safety. Never been on a train this overcrowded. Apparently you are told weekly about the problems with crowding on this service but it’s not a priority 🤷‍♀️

[Long Covid Advocacy 💙 @LongCovidAdvoc]

Our Psychologisation infographic is out!
By coincidence, The Guardian published an article today reporting that women with autoimmunity are 74% more likely to be told their symptoms are psychological than men. Psychologisation is still a huge problem in medicine.
Our article & The Gs 🖇️👇️

[Nick Wellings @Nick_Wellings]

Any good weight high or more support stockings for men out there? I don't have mega bad POTS but it heart rate does often go to 100 on standing. When I wake up it's 51...lying down.