The CoLab Partnership

Working to improve the healthcare of children with medical complexity and their families, and provide support for the professionals looking after them

[The CoLab Partnership @Col_Partnership]

At our #RCPCH24 workshop yesterday we gave attendees a copy of "Empathy in Practice: 10 Tiny Acts that Transform the Journeys of Parents of Children with Medical Complexity" - you can download your free copy from our website https://t.co/ipqCap9FAJ

[The Neurodisability Community @tweets_TNC]

TNC & @Col_Partnership session Thurs 24 April: @TheAPCP Respiratory Risk Identification Matrix for CYP with Neurological Impairment

Gain an overview from @ApcpResp of the Matrix and how it can be used as part of usual care and embedded into NHS practice
https://t.co/EJyaAMUYnH

[The CoLab Partnership @Col_Partnership]

Join us next Tuesday (26 Nov) for our Free CoLab Webinar focusing on Working with parents to improve services
For more info and to register: https://t.co/pZ2ti0j9KU

[The CoLab Partnership @Col_Partnership]

Free CoLab Webinar 26 Nov (1-2pm) - Working with parents to improve services

This session explores best practice guidance on working with parents of children with serious illnesses to change services for the better.

For more info and to register: https://t.co/qdVd6p8ww8

[Lorna Fraser @lornafraser10]

Great opportunity to work with ⁦@RHardingCSI⁩ and myself on an ⁦@NIHRresearch⁩ funded study on complexity of needs in children ⁦@RCPCHtweets⁩ ⁦@CSI_KCL⁩ ⁦@CYP_CSI⁩ #ppc ⁦@Col_Partnership⁩ https://t.co/eamlrVtxKp

[The CoLab Partnership @Col_Partnership]

Free CoLab Webinar 26 Nov (1-2pm) - Working with parents to improve services

This session explores best practice guidance on working with parents of children with serious illnesses to change services for the better.

For more info and to register: https://t.co/qdVd6p8ww8

[Prof Katherine Sleeman @kesleeman]

📣📣 UPCOMING EVENT - Palliative care for children and young people

Wednesday 6th November 2024, 13:00-16:30

Online and in-person @CSI_KCL

FREE to attend, register here: https://t.co/RSPOcQ0XJw

Fantastic programme 👇

[The CoLab Partnership @Col_Partnership]

Save the dates!
26 Nov - Working with parents to improve services: best practice guidance (webinar) - free

19 June 2025 - Managing medically complex children (online Study Day)

More info on both events and how to register will be available soon!

[Lorna Fraser @lornafraser10]

Exciting opportunity to work with ⁦@RHardingCSI⁩ and myself on an ⁦@NIHRresearch⁩ ⁦@RCPCHtweets⁩ grant. Please share ⁦@Col_Partnership⁩ ⁦⁦@Tog4ShortLives⁩ ⁦@TheAPPMuk⁩ ⁦@CSI_KCL⁩ ⁦@CYP_CSI⁩ #childhealth https://t.co/IfWiW0Tyh2

[ADC @ADC_BMJ]

Review
Managing menstruation for medically complex paediatric patients

Several options - weighing up benefit and risks
All about shared decision making

https://t.co/ircMyLRaw6

[The CoLab Partnership @Col_Partnership]

Join us tomorrow (Tues 4 June) for a study afternoon on Long-Term Ventilation (LTV) facilitated by the children's long-term ventilation service at the Royal Brompton Hospital.
Free for CoLab Enhanced members, small registration fee for non-members.
https://t.co/HRbEsAOGSy

[British Academy of Childhood Disability @BACD_tweets]

We’re pleased to share @newlifecharity’s new report, Fight For Our Future, which paints a bleak picture, revealing that only 2 in 5 families feel their child has all the equipment they need. We're urging our followers to read & share the report: https://t.co/n9RANzynku

[Alex Mancini (Smith)💙 @mancini_smith]

Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk

[The CoLab Partnership @Col_Partnership]

If you attended our workshop at the RCPCH conference last week we would really appreciate if you could take 2 minutes to provide us with your feedback - good or bad - which will help us plan future sessions! https://t.co/GzFWmhbwkB

[British Academy of Childhood Disability @BACD_tweets]

To give you a few extra days over the Easter weekend, we have extended the deadline for abstract submission to 9am, Weds 3 April
Undergrad medical, AHP + nursing students & foundation drs selected to present their poster receive free registration
For info https://t.co/QfSQbGrUve

[The CoLab Partnership @Col_Partnership]

@KathEvans2 @RoaldDahlFund @WellChild @WeCYPnurses We have put a link on our website for anyone to download their own copy 😀 https://t.co/ipqCap9FAJ

[mando watson @mandowatson]

Parent presentation powerfully teaches how to better-manage children with medical complexity. Well done @Col_Partnership #RCPCH24

[The CoLab Partnership @Col_Partnership]

Full house for CoLab #rcpch24 workshop on improving care for children with medical complexity

[The CoLab Partnership @Col_Partnership]

Join us in Hall 8A from 10.45 for our workshop on improving care for children with medical complexity! There will also be cake! #RCPCH24

[Hannah Nicholson @4littlelovelies]

Join me tomorrow at #RCPCH24
@Col_Partnership workshop at 10.45:
Improving care for children with medical complexity: Co-producing solutions together.
I’ve made some cake…just incase you need coaxing in 😊

[Hannah Nicholson @4littlelovelies]

Please help us understand how to support breastfeeding infants and toddlers with palliative care needs. Thank you to Dr Laura Thomas for raising such an important subject for so many families. @Tog4ShortLives @Col_Partnership @FeedSleepBond @BACD_tweets @CommChildHealth

[The CoLab Partnership @Col_Partnership]

Colab has two online study afternoons coming up - register at: https://t.co/JkIZZ5Sl2v
9 May - Managing sleep difficulties in children with complexity - @DrMikeFarquhar
4 June - Long Term Ventilation - children's long-term ventilation service at the Royal Brompton Hospital