Collinson Foundation for Patulous Eustachian Tube

Our mission is to advance understanding, treatment, and support for those living with Patulous Eustachian Tube Dysfunction.

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

Introduction to the Collinson Foundation for Patulous Eustachian Tube https://t.co/b4Z0rnwXIZ via @YouTube

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

🌏 **MEET THE PROS**

Meet **Dr. Tiarnan Adam Magos**, an ENT and head-and-neck surgeon with advanced fellowship training from the University of Toronto.

Explore his profile and other healthcare professionals in CFPET’s Providers Directory:

🔗 https://t.co/38ueIG9lwm

*Please confirm current services and pETD experience directly with each provider.*

#MeetThePros #CFPET #pETD #ENTSpecialist #EarHealth #PatientAdvocacy #Australia #FromEchoesToAction

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

🌍 MEET THE PROS: DR. WERNER ROSSOUW

The Collinson Foundation for Patulous Eustachian Tube is pleased to introduce Dr. Werner Andre Rossouw, an ear, nose, and throat and head-and-neck surgeon practicing at Life St George’s Hospital in Gqeberha, South Africa.

Finding an appropriate medical professional can be an important step toward receiving informed, compassionate care. We encourage patients to contact providers directly to ask about their experience with pETD, available diagnostic services, treatment approaches, referrals, and appointment requirements.

Explore Dr. Rossouw’s listing and find additional healthcare professionals through the CFPET Providers Directory:

🔗 https://t.co/38ueIG9lwm

Provider listings are shared for informational purposes and do not represent a medical referral, endorsement, or guarantee of treatment outcomes. Please confirm each provider’s services and experience directly with their office.

#MeetThePros #CFPET #pETD #PatulousEustachianTube #ENTSpecialist #ENTSurgeon #EarHealth #PatientEducation #PatientAdvocacy #SouthAfrica #Gqeberha #FromEchoesToAction

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

The Rollercoaster is rea,l and we hear you 💜Emily
https://t.co/XnKalxNkd1

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

Start time:
5:00pm MST
7:00pm EST
4:00PM PST
Echo Heads Unite with Emily
Thursday, September 3 · 7:00 – 8:00pm
Time zone: America/New_York
Google Meet joining info
Video call link: https://t.co/I7a01DjkP8
Or dial: (US) [phone] PIN: 989 343 573#
More phone numbers: https://t.co/7Nfa278m3q See less

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

After every procedure, I have had tubes e placed mostly for drainage during the healing process. They never really made any difference to my symptoms however after my last procedure with Dr. Poe I had Silk Voiced filler and my symptoms did not go away immediately after and a month later I had some infection and my local ENT and he suggested the Paparella Tube which is a little bigger than the typical tube and my symptoms were 99% gone and would only return during heavy exercise. I am not sure if the tubes made the difference but I am thankful to my Surgeon for suggesting the bigger tube. -Emily Rodvold 📷📷

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

It's Fun Fact Friday, and today's topic is tympanostomy tubes for pETD. Including potential benefits, limitations, tube options, risks, and the key takeaway that tubes treat symptoms but do not cure pETD. See the comments below.

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

Tympanostomy tubes are not a cure for pETD because they do not close the abnormally open Eustachian tube. They are best understood as a symptom-directed treatment.
They may be worth considering when:
The pETD diagnosis is reasonably secure
Eardrum movement occurs with breathing
Fullness, pressure, or fluttering is a major symptom
Conservative measures have not provided adequate relief
The patient understands that voice and breathing autophony may remain
A short-term, reversible therapeutic trial is considered appropriate
They deserve greater caution when autophony is the only symptom, no respiratory eardrum movement is present, the diagnosis is uncertain, the eardrum is already damaged, or a permanent T-tube is proposed without first discussing less durable options.
This information is educational and cannot determine whether a tube is appropriate for a particular ear. That decision should be made with an otologist or neurotologist experienced in pETD after examining the eardrum while symptoms are active.

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

On National Photo Day, I’m sharing more than a picture — I’m sharing a purpose.

Behind every face is a story, and behind this foundation is a mission: raising awareness, education, advocacy, and support for those living with pET.

Your donation helps us turn echoes into action.

Donate or learn more at https://t.co/LNRMKTqcpb

#NationalPhotoDay #FromEchoesToAction #pETAwareness #CollinsonFoundation #InvisibleIllness #DonateToday

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

Living with Patulous Eustachian Tube (pET) can feel like a roller coaster. Symptoms may change from one day—or even one hour—to the next. Although there is no single solution that works for everyone, small steps may help make difficult days more manageable.

Consider discussing these symptom-management strategies with your healthcare provider:

💧 Stay adequately hydrated
💨 Practice slow, gentle breathing
🛏️ Try lying down or carefully adjusting your position
💦 Use a plain saline nasal mist to help reduce dryness
📝 Track symptoms, triggers, and what provides relief
👂 Work with an ENT specialist to develop an individualized care plan

Avoid beginning medications, supplements, nasal products, or alternative therapies without appropriate medical guidance. Treatment responses vary, and persistent or worsening symptoms should always be evaluated by a qualified healthcare professional.

Most importantly, remember: You are not alone. You deserve to be heard, believed, and supported—beyond the echoes of your own voice.

Find compassionate support and educational resources at https://t.co/ffQSXvNWpd

#PatulousEustachianTube #pETD #pETAwareness #EarHealth #PatientSupport #PatientAdvocacy #ENTHealth #YouAreNotAlone #CFPET

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

#PETJourney #StrengthForTheThunder #CollinsonFoundation

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

Patients often ask, "What kind of doctor treats Patulous Eustachian Tube (PET)?" They also wonder about the difference between an ENT and an otolaryngologist.
The answer is simple: there is no difference. ENT (Ear, Nose, and Throat specialist) and otolaryngologist are two names for the same medical specialty.
An ENT/otolaryngologist can evaluate your symptoms, diagnose Patulous Eustachian Tube, discuss treatment options, and help create a management plan tailored to your needs.
👂 Looking for a Patulous Eustachian Tube (PET) Specialist?
Finding the right provider can make a big difference when living with PET. Many patients aren't sure where to start, but ENT physicians (otolaryngologists) can evaluate your symptoms, help confirm a diagnosis, and discuss treatment options tailored to your needs. Don't let uncertainty keep you from getting answers. The right specialist can help you better understand and manage your symptoms.
The Collinson Foundation for Patulous Eustachian Tube maintains a provider directory to help connect patients with clinicians familiar with PET.
🔎To find a provider experienced in treating Patulous Eustachian Tube, visit the Collinson Foundation for Patulous Eustachian Tube provider directory: https://t.co/38ueIG9lwm

#PatulousEustachiantube #ENT #Otolaryngology #PetAwareness

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

This study is especially encouraging because it gives us something pET patients desperately need: evidence that researchers are still asking questions, exploring possibilities, and looking beyond the treatments we already know.

Research Gives Us Reason to Hope

Living with Patulous Eustachian Tube (pET) can sometimes feel as though the medical world has run out of answers. But research reminds us that the story of pET is still being written.

A published case report examined the use of a stellate ganglion block (SGB) in a 56-year-old woman experiencing severe autophony and ear blockage. After a series of ultrasound-guided treatments over eight months, the patient reported substantial improvement in her symptoms. The authors described this as the first reported successful use of SGB for pET and emphasized that additional, properly designed studies are needed before its effectiveness can be established.

That last part matters.

This is one case report—not proof of a new standard treatment. But it represents something important: researchers are continuing to investigate pET, question what we know, and explore new possibilities.

For those of us living with pET, hope does not have to mean pretending a cure is around the corner. Sometimes hope simply means knowing that someone, somewhere, is still asking, “What else can we try?”

Every case report, study, hypothesis, and clinical investigation adds another piece to the puzzle.

At the Collinson Foundation for Patulous Eustachian Tube, we believe research matters. We will continue sharing responsible scientific information, encouraging further investigation, and advocating for the patients waiting for better answers.

Research is happening. Questions are being asked. And the pET story is far from finished.

Learn more about pET, research, treatment, and advocacy at https://t.co/H2PU16kvEv

This information is provided for educational purposes and should not be interpreted as a treatment recommendation. Always discuss treatment options with a qualified medical professional.
https://t.co/vxzhBeEfk8

#PatulousEustachianTube #pET #PETResearch #MedicalResearch #RareDiseaseResearch #PatientAdvocacy #Autophony #EustachianTube #CFPET #FromEchoesToAction

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

💜 You Don’t Have to Face pET Alone

Living with Patulous Eustachian Tube (pET) can affect far more than your ears. Autophony, hearing your breathing, ear fullness, pressure, and constantly changing symptoms can be frustrating, exhausting, and difficult for others to understand.

The Collinson Foundation for Patulous Eustachian Tube is here to help you find education, resources, and a community that understands what living with this often misunderstood and misdiagnosed condition can feel like.

Whether you are newly experiencing symptoms, searching for answers, or have been navigating pET for years, your experience matters—and you deserve to be heard and supported.

💚 Learn about pET
💜 Explore patient resources
💚 Find support and understanding
💜 Stay informed about research and treatment advances
Visit https://t.co/LNRMKTqcpb to learn more and connect with the pET community.
From Echoes to Action — Raising Voices for pET.
#PatulousEustachianTube #pET #CFPET #RaisingVoicesForPET #FromEchoesToAction #PETAwareness #YouAreNotAlone #PatientSupport #PatientAdvocacy #EarHealth #InvisibleSymptoms #MentalHealthMatters #HopeForPET

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

https://t.co/oZDJi8zs3P

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

New research continues to broaden our understanding of Patulous Eustachian Tube (PET).

A June 2026 study found that aural fullness may be the main symptom in some patients with definite PET—even when visible eardrum movement with breathing is less apparent. This reinforces why PET evaluation should consider the patient’s symptoms alongside multiple objective tests.

Awareness matters. Better recognition can lead to better understanding, diagnosis, and support.

Source: Oshima et al., Auris Nasus Larynx, June 2026.

#PatulousEustachianTube #PET #EustachianTube #EarHealth #RareDiseaseAwareness #PatientAdvocacy #CFPET

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

Every voice deserves to be heard—and every person living with Patulous Eustachian Tube deserves understanding, support, and hope.

Your donation to the Collinson Foundation for Patulous Eustachian Tube helps advance patient education, awareness, provider outreach, advocacy, community support, and opportunities to bring pET patient voices into important medical conversations.

No gift is too small. Every contribution helps move us From Echoes to Action.

Donate today: https://t.co/HySdo2lJlY

Learn more: https://t.co/LNRMKTqcpb

#PatulousEustachianTube #pETAwareness #PatientAdvocacy #RareDiseaseAwareness #FromEchoesToAction

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

“If you are living with PET, please know this: your symptoms are real, your story matters, and you are not alone. The Collinson Foundation for Patulous Eustachian Tube was created to bring hope, education, support, and action to a condition that has been misunderstood for far too long. Together, we can turn echoes into action.”
Visit our website at https://t.co/LNRMKTqcpb for more information ♥️ Emily Rodvold
#petdawareness #cfpet #PatulousEustachiantube #collinsonfoundation

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

So excited to share our first Episode of the Collinson Eustachian Tube Podcast.

https://t.co/gh5ohirTAA

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

🌩️⚡️ Join the "Thunder Inside Challenge"
Hey, brave warriors, share your story of strength and resilience against PET or ETD! Your voice matters and can inspire others. #StrengthForTheThunder #PETJourney
What's your story? Let’s raise awareness together! 🌟#CollinsonFoundation

[Collinson Foundation for Patulous Eustachian Tube @CollinsonFPET]

🎧 Premiere🚨 Today's the Day! 🎙️

The wait is over! Our very first Collinson Foundation for Patulous Eustachian Tube Podcast premieres TODAY at 12:00 PM Mountain Time / 2:00 PM Eastern Time!

If you or someone you love is living with Patulous Eustachian Tube (pET)—or if you're a healthcare professional looking to better understand this misunderstood and often misdiagnosed condition—this podcast is for you.

Join us as we begin a journey of education, hope, advocacy, as Today

🕛 12:00 PM Mountain | 2:00 PM Eastern

From Echoes to Action — Raising Voices for pET. 💜💚

https://t.co/lPHWrgOsrU