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[tern @1goodtern]

Tired: Long Covid Sufferers
Wired: It's all in their heads

[tern @1goodtern]

37
"If you start having trouble sleeping… you have long Covid"

Another cheap shot.

Aaargh. Yuk. He's just so cheap. And tacky.

He takes a broad definition and reduces it to the most trivial sounding case possible.

[Jon Douglas @atranscendedman]

NIH taught me one thing.

If you want to be heard, put it in the federal record.

Now it's FDA's turn.

Long COVID should be prioritized for drug repurposing, adaptive NIH/FDA platform trials and insurance coverage.

Comment here by June 11.

https://t.co/TlNiqZun03

[Jon Douglas @atranscendedman]

@AlanLevinovitz @zeynep @MeganTStevenson If Long COVID is too poorly defined to draw conclusions from pathology, biomarkers, and mechanistic studies, then surely it’s too poorly defined to draw conclusions from testimonials.

[Dara in Chains @DarainChains]

Five Years of Biological Receipts: How Chronic SC2 Destroys the Vascular System and Brain

For over 5 years, corners of the medical establishment have attempted to reduce a catastrophic, viral physical crisis down to anxiety, somatic symptom disorder, or an emotional attachment to labels. Meanwhile, the international scientific community has spent those same five years compiling an undeniable, structural ledger of organic damage.

PolyBio Research Foundation and the Long COVID Research Consortium (LCRC) have made one thing perfectly clear. This is a structural, endovascular, and neuroimmune war. It is not a psychological crisis.

How Chronic SC2 dismantles the vascular system and the brain over a multi-year horizon:

Tissue Persistence & Hidden Viral Factories

The virus doesn't clear after the acute phase. Digital transcriptomics and deep tissue biopsies show that SC2 viral RNA (antisense ORF1ab RNA, which indicates active replication) and Spike protein persist in deep tissue reservoirs including the gut wall, bone marrow, and lymph nodes years after initial infection. This ongoing cellular presence acts like an active factory, keeping the immune system locked in an inflammatory loop that drops virons directly onto vascular tissue.

The Vascular Toll

Continuous immune activation hits the cardiovascular infrastructure.

Endothelial Injury:
Current clinical data demonstrates a profound microvascular endotheliopathy, where the delicate endothelial cells lining the body’s smallest blood vessels are systematically injured, inflamed, and degraded.

Fibrin-Amyloid Microclots:
PolyBio's work with scientists like Dr. Resia Pretorius has mapped the widespread presence of anomalous fibrin-amyloid microclots and infected activated platelets. These dense, breakdown-resistant clots physically choke the microcapillaries, cutting off oxygen delivery to deep tissues and causing widespread cellular hypoxia.

NETs:
Innate immune cells (neutrophils) are hyper-activated, spitting out webs of DNA (NETs) that further clog the vascular highway and drive tissue degradation.

The Brain Attack: Perfusion & Leaky Barriers

When the microvascular highway is choked, the brain pays the price.

Hypoxia & Reduced Flow:
Studies confirm significantly reduced cerebral and microvascular blood flow. The brain is quite literally gasping for oxygen because clogged, narrowed capillaries cannot deliver adequate perfusion.

Blood-Brain Barrier Collapse:
Endovascular inflammation breaks down the tight junctions of the BBB. When the protective wall leaks, peripheral cytokines and inflammatory debris bleed directly into the central nervous system.

Neuroinflammatory Steady State:
Advanced neuroimaging (such as dual PET-MRI imaging by PolyBio-supported researchers like Dr. Michael VanElzakker) reveals active, neuroinflammation. Neural-derived exosomes show markers of severe astrocyte turnover. The brain is forced into a hyper-reactive inflammatory steady state, triggering profound cognitive deficits, verbal fluency drops, and severe dysautonomia.

🛑 Psychology Full Stop

When a patient has a leaky blood-brain barrier, amyloid microclots choking their capillaries, vascular compressions, and active virus in tissues, psychiatry and psychology are the wrong medical disciplines.

A psychologist cannot talk a fibrin-amyloid microclot out of a capillary.
Cognitive behavioral therapy cannot repair an injured endothelial lining or stop a viral reservoir in the bone marrow from churning out toxic proteins. Mindset tools for patients suffering from cerebral hypoperfusion and tissue hypoxia is a severe failure of basic clinical logic.

Reframing a measurable, multi-systemic vascular firestorm as an issue of identity is an act of clinical avoidance. Patients do not need coping to accept their own cellular disintegration. They need hematologists, vascular surgeons, immunologists, and targeted meds. The debate over semantics is over, the era of hard vascular mapping is here.

[Brian Fog @useless_priest]

Long COVID / ME patients who speak out are routinely labelled as "cultists".

This is in contrast to people who are reportedly cured by mind-body techniques and then *quite often* go on to become coaches in.. mind-body techniques?

Get real.

[Dr Elisa Perego @elisaperego78]

The concept of Long Covid covers a broad range of biological abnormalities not because it's "vague", as some erroneously claim. It does so because SARS-CoV-2 infection can affect the whole body from "head to toe". Multi-system pathology is an hallmark of the disease

[Megan Stevenson @MeganTStevenson]

This is the dumbest article. There’s no conspiracy against mind-body techniques, most long covid patients have tried them. Meditation helped me a bit. It’s just that we want research $ going towards a CURE, not wasted on things we expect, from experience, to have small effect.

[Cat (CovidSolidarity) @CovidSolidarit1]

"Nothing about long Covid adds up."
WRONG

"Six years since the height of the pandemic, the scientific community remains baffled by long Covid."
WRONG

[Hazie Thompson @haziethompson]

Ask me how many folks in my life that either did not know what Long Covid was or did not think it applied to them that are now dead.
“Lingering Symptoms”
soon became strokes, heart attacks, sepsis or suicide.
The chronic illness list is longer and just a fucking tragic.
#MaskUp

[Dr Elisa Perego @elisaperego78]

There are hundreds of thousands of publications on SARS-CoV-2 infection. They demonstrate multi-system pathology in acute and Long Covid through some of the most sophisticated scientific approaches in medical history.
These are irrefutable facts.

[Seeking Boston Marathon @seeksboston26mi]

@WIRED The worst article ever (poorly) written about Long Covid; gaslighting and minimizing those disabled by it. The ultimate "puff piece", a one-sided OpEd approach devoid of any well-known and established experts in the Long Covid community https://t.co/LPOJzcbBR8

[Keith @keetmuise]

I wish I would have know that changing my mindset could cure me of any ailment. Broke my foot twice and all I had to do was be more positive about walking and really fell better about the excruciating pain.

Long Covid isn’t something you can meditate away.

[Taylor Lorenz @TaylorLorenz]

Guy who wrote the @WIRED feature claiming zoom positivity healers and course sellers could cure long covid: there is no "long Covid"

This is why media should not be platforming pseudoscience grifters! They're just reactionary RFK style disease denialists
https://t.co/UaBTFtMQw5

[ApocaLiz @Lizzardo77]

"Long Covid is a real, debilitating physical illness but you can heal yourself from it with your mind," is exactly as ridiculous as it sounds.

We are rightfully outraged. And I am equally outraged that our very justified rage is being used to "prove," some dumb fucking 1/

[Conor Browne @brownecfm]

Remember that the existence of Long Covid and the fact that millions of people worldwide are suffering from it creates an extraordinary dissonance in the minds of a section of the population who wish to believe the falsity that Covid is no longer dangerous, and perhaps never was.

[Megan Stevenson @MeganTStevenson]

@tylerblack32 There is a lot of anger in the long Covid community. I don’t always like how it is expressed either. But remember: these are people whose lives have been absolutely fucked by this disease, watching the rest of the world just shrug. 1/

[Dara in Chains @DarainChains]

Reducing a multi-systemic vascular disaster to "identity formation" is an extraordinary act of clinical denial.

I am in my forties, navigating Long Covid and Vaccine Injury. I am an oncology RN. I have had to develop incredibly thick skin to survive the personal attacks on this platform, but let's bypass your behavioral theories and look at my actual medical file.

My "identity" consists of:

Neurological/Vascular:
2 strokes, frontal lobe atrophy, aphasia, facial nerve palsy, microvascular damage and 3 confirmed vascular compressions.

Immune/Hematology: Reactivated EBV, shingles, low B-cells, high platelets, and low MPV.

Systemic: Extreme dysautonomia, polyposis, blurry vision, many new allergies (confirmed), and the devastating loss of a baby.

I do not want a label. I do not want an identity. I want to not die.

While internet commentators try to rebrand organic tissue damage as a psychological crisis, a top vascular surgeon actually looked at my objective data and fast-tracked me for a surgical assessment this month.
The virus is quietly destroying the human vascular infrastructure while you argue about semantics. We don't need coping mechanisms; we need real medical care.

[tern @1goodtern]

But the most attacked group are *the people with Long Covid*.

[Cat in the Hat 🐈‍⬛ 🎩 🇬🇧 @_CatintheHat]

According to @AlanLevinovitz, there is no such thing as “long Covid” because it encompasses a range of conditions.

Yes, it DOES encompass a range of conditions affecting many body organs.

But that’s like saying “there is no Cancer” because it can affect many different organs.