James Crawley

Life-long Gooner 🔴 PR & Communications Officer @MacularSociety 🔬👁 Personal account 👍

[Macular Society @MacularSociety]

By 2050, there could be five times as many sight impaired people due to the rise in myopic macular degeneration, caused by high myopia (short sightedness). More research must be funded urgently to stop this "increasingly common problem". https://t.co/B19D9L3qDD #WorldSightDay

[Macular Society @MacularSociety]

This week we’re helping to shine a light on the importance of good eye health and sharing tips for living well with macular disease - all part of this year’s #EyeWeek (23-29 September).

Get involved - let us and others know what you do to help your eyes!

[Macular Society @MacularSociety]

We’ve launched a new podcast in support of #NationalEyeHealthWeek, featuring optometrist @i_am_yuan0303 who tells us how we can protect our eyes, with or without macular disease. Tune in to hear Yuan's top advice, including eating well and exercising regularly. #EyeWeek

[Macular Society @MacularSociety]

We're very excited for the return of our Macular Disease Conference: Hope for the Future this weekend!

Hear from the macular disease experts, and have a chance to put your questions to them live.

Join us on Saturday (14 September), 9.15am-4pm.

Register: https://t.co/VJHF4OSSGV

[Macular Society @MacularSociety]

A huge thank you to all of the staff and volunteers at @NewcastleHosps Royal Victoria Infirmary for their support this week! How are you spending Macular Week? #MacularWeek

[Macular Society @MacularSociety]

We're excited to announce the appointment of our new chief executive. Ed Holloway joins us in July, bringing a wealth of experience in the charity sector. https://t.co/tCUIOdT2V5

[Macular Society @MacularSociety]

A special, big thank you to our wonderful volunteers who do so much to help others living with macular disease.

We are #BeatingMacularDisease every day, thanks to their hard work and dedication.

#VolunteersWeek2024 #VolunteersWeek

[Macular Society @MacularSociety]

“I think there will be a cure one day and this is why I'm very keen to support the Macular Society.”

Like John and Leah, we hope that one day there will be a cure for macular conditions like Best disease. We won’t stop until we get there.

#RareDiseaseDay

[Macular Society @MacularSociety]

John has lived with Best Disease for the past 15 years.

He is enjoying the emotional and practical support from others as he lends his hand as a volunteer with his local Macular Society support group.

#RareDiseaseDay

[Macular Society @MacularSociety]

Best disease is one of five related macular conditions caused by mistakes or mutations in a gene called BEST1. These are collectively called Bestrophinopathies.

#RareDiseaseDay

Find out more: https://t.co/6jjPHYjJRH

[Macular Society @MacularSociety]

On #RareDiseaseDay business owner Leah discusses her life with Best disease – a rare form of sight loss.

From the “shock” of the diagnosis to connecting with others affected by the same condition, Leah shares her story.

https://t.co/MFbC0C4qeo

[Macular Society @MacularSociety]

We're sorry to announce that after nearly a decade of dedicated service the Macular Society chief executive, Cathy Yelf has announced her decision to retire in 2024. We thank her for her immense service. https://t.co/4VfhLYFCCG

[Layth @laythy29]

It is really sad to see Aaron Ramsdale devoid of all confidence after being put in such an unnecessary position in what will surely be his final match in Arsenal colours

[Macular Society @MacularSociety]

It’s #CharlesBonnetSyndrome Awareness Day 2023.

From dancing animals to faces and lace patterns, we hear from Penny and Wendy, who experience hallucinations as a result of their sight loss.

https://t.co/ePnjS4yQca

[Macular Society @MacularSociety]

“I didn't know if it was real or a manifestation of my grief, but I was scared frozen.”

Wendy reveals her terrifying #CharlesBonnetSyndrome experiences and how she has overcome her CBS hallucinations through counselling and support.

https://t.co/ePnjS4zo1I

[James Crawley @CrawleyJames92]

#SupportCantWait

[Macular Society @MacularSociety]

Life costs more if you have sight loss.

Today we join more than 80 charities to call on Chancellor @Jeremy_Hunt to take urgent action in his Autumn Statement to support people with sight loss through the ongoing cost of living crisis.

#SupportCantWait

[Macular Society @MacularSociety]

People with sight loss have told us how they rely on their white cane in public, as it helps them navigate busy areas and feel safe in their surroundings.

On #WhiteCaneAwarenessDay, we share their experiences and the different types of canes available.

https://t.co/GKjPyCzHea

[Macular Society @MacularSociety]

Is blue light damaging and are filters worth it?

Recent research has shown that blue light filters often do not live up to the claims they make.

Here we answer your questions and look into the research in more detail:

https://t.co/0x2p9hxo0o

[Macular Society @MacularSociety]

Thinking about fundraising to help us #BeatMacularDisease?

Read Jade's story and be inspired to take on your own challenge. Jumping out of a plane for a tandem skydive is optional!

https://t.co/thn52khj1j

[Macular Society @MacularSociety]

"I’m glad I finished it all...but I’ve been so very lucky that so many people have supported me."

Ann, 99, and her daughter Margaret look back on Ann's incredible walking marathon achievement in aid of the Macular Society and @guidedogs.

https://t.co/a47faabokI