Creatine Info

A NonProfit dedicated to the three major Creatine Deficiency Syndromes- AGAT, GAMT, and CTD

[Creatine Info @CreatineInfo]

Join Momentum League
Support continuous CCDS research with a monthly gift. Even $10 makes a difference! First 50 get 50% off one shop item. Let’s fuel progress together!

Join now: https://t.co/xtUgkJQdkr

#MomentumLeague #RareDisease

[Creatine Info @CreatineInfo]

Read the 2024 CreatineINFO registry report: https://t.co/HLYZqoFNCi

Questions about the Registry? email us! [email protected]

[Creatine Info @CreatineInfo]

Awareness in action! 💪 @Legacy_831 's @accesshollywood interview highlights how his Beast Games win is boosting awareness & support for creatine deficiencies & CTD research. Thank you, Jeff!

Watch now: https://t.co/Byq5N4p0s4

#RareDisease #CTD

[Creatine Info @CreatineInfo]

Ceres Brain Therapeutics has launched a Phase 1 trial for a potential CTD treatment! 🧠 Join the virtual Town Hall April 28 at 11am EST. Submit questions by April 21! Register or request a recording: https://t.co/JH4jQRCfyu
#raredisease #CTD

[Creatine Info @CreatineInfo]

👟 Walk for Strength Early Bird rates through Sunday
Sign up, start a team, or donate today. Let’s take steps toward a cure together 💪

https://t.co/x1vDnLkVCx

#WalkForStrength #RareDisease #GAMT #CTD #AGAT #TeamACD #WFS2025

[Creatine Info @CreatineInfo]

The federal committee overseeing newborn screening has been dissolved, shifting the burden to each state. This threatens progress like GAMT adoption.
Learn more & take action: https://t.co/8WhOlrsvM7

More info: https://t.co/DNkiUouXJL

#RareDisease #ScreeningSavesLives

[Creatine Info @CreatineInfo]

Walk for Strength is happening worldwide—Spain, Canada, Italy, Germany & the U.S.! 🌍 Every step counts, big or small. Start your team today & show the world how strong our CCDS families are. 💙
Sign up: https://t.co/x1vDnLknMZ
#raredisease #wfs2025

[Creatine Info @CreatineInfo]

Early bird registration extended through April 20! 🐦 Save $5—just $25 for adults, $20 for youth. Lock in your spot, get your shirt, and join the fun!

👉 https://t.co/x1vDnLkVCx

#wfs2025 #creatineheroes #WalkForStrength #RareDisease

[Creatine Info @CreatineInfo]

Did you catch our March newsletter? 💌 It’s full of updates on newborn screening, Walk for Strength, upcoming events, and a big thank-you to Heidi for 10 years with ACD!

👉 Read or watch: https://t.co/fYNF4Y8aGP | Subscribe: https://t.co/xN6eKhCO1S
#FuelingHope #RareDisease

[Creatine Info @CreatineInfo]

April’s Community Chat is now available! 🌷

Topic: Growing Communication Skills with Tanna Neufeld.

Learn how emotional connections support language in kids with complex needs.

Watch here: https://t.co/e2TorYgEmm

#CreatineHeroes #RareDisease

[Creatine Info @CreatineInfo]

One week left to save $5 & get your Walk for Strength tee! 💙 Join us for a fun day with your team while supporting a cause that matters.

Find your team: https://t.co/x1vDnLkVCx

#WFS2025 #CreatineHeroes

[Creatine Info @CreatineInfo]

@CeresBrain Therapeutics has launched a clinical trial for a potential CTD treatment! 🧠

Join our Town Hall on April 28th at 11 AM EST to learn more & ask questions.

🔗 Register/submit questions: https://t.co/H90aQE8XLq

Miss it? Request a recording! #RareDisease #CTD

[Creatine Info @CreatineInfo]

Early Bird Registration is Open! Join us for the Walk for Strength!
Team up, start your own, or walk solo. Everyone’s welcome! Sign up now to save $5 & guarantee your exclusive Walk for Strength t-shirt.
Register: https://t.co/x1vDnLkVCx
#CreatineHeroes#WFS2025

[Creatine Info @CreatineInfo]

April’s Community Chat: Growing Communication Skills with Tanna Neufeld! 🌱

🗓️ April 4 | 🕒 3 PM EST

Discover how social-emotional connections help language grow in kids with complex communication needs.

Register: https://t.co/yYuJmcJpFn

#CreatineHeroes #RareDiseaseAwareness

[Creatine Info @CreatineInfo]

🎉 Last year, 31 teams raised $131,110! This year, for our 10th annual walk, we’re aiming for 40 teams & $200K!

Get creative:
Push-up challenge
Group hike
Block party

However YOU walk, we’re here to support you!

🚶‍♂️Sign up: https://t.co/x1vDnLknMZ

#WalkForStrength #RareDisease

[Creatine Info @CreatineInfo]

VA RUSP alignment bill passed! Est adoption: 2025!
ACD nominated GAMT for the RUSP, one step closer to more newborns being screened! Now, we’re pushing for CTD screening too.

Join the fight for newborn screening!
🔗 https://t.co/u1c0L1TlrP

#ScreenCreatine

[Creatine Info @CreatineInfo]

SibTalks is back in April! Last time, the younger group got creative with drawing & a dance party, while the older group had a blast with a virtual scavenger hunt.

📅 Register now: https://t.co/xZSL3jjW89
#FuelingHope #RareDiseaseAwareness

[Creatine Info @CreatineInfo]

Registration Opens April 1st!
Step up for a cure! Walk for Strength registration opens April 1st, and you’ll save $5 when you sign up by April 14th. Join us to raise awareness & funds for creatine deficiencies. Every step counts!

Find your team: https://t.co/x1vDnLkVCx

#WFS2025

[Creatine Info @CreatineInfo]

🧠 Thank you, Frontiers in Neuroscience! We’re excited to share this peer-reviewed article on efforts to accelerate diagnosis & develop treatments for Creatine Transporter Deficiency.

🔗 Read here: https://t.co/Rmozk5Yif3

#CreatineResearch #ACDResearch #RareDisease

[Creatine Info @CreatineInfo]

Missed the March Community Chat? Catch up now!

How is a creatine deficiency diagnosed?
What is mosaicism?
What does X-linked mean?

📺 Watch now: https://t.co/IV975Huvuo

#CreatineDeficiency #RareDisease