Crohn's and Colitis are invisible illnesses.They often cause symptoms that other people just won't see. Such as severe pain, diarrhoea, blood in your poo - or extreme tiredness.
Find out more: https://t.co/0r3RZQL590
#worldibdday#IBDmythbusting
If you missed our Patient & Public Involvement in Research Day back in November 2023, you can still watch the recording on our website!
There were talks about pain, fatigue, wellbeing and more, with a fantastic keynote address from Prof Charlie Lees. https://t.co/vdvnb67RLO
The UK Government has published the steps it will take to address the failures in homecare medicine services.
Find out why we and eight other patient and clinical bodies think that significant work is still needed.
👉 https://t.co/b66aLrAWKL
Have you been dreaming of Spring? We’ve got fabulous news…
We're incredibly excited to announce that the Bluebell Walk or Cycle Ride is back for its 34th year!
Early bird ticket prices until 20th Feb! Join the fun and sign up today https://t.co/2Q27JNevu8
Researchers at University of Leicester are interviewing people with Crohn's and Colitis to find out what matters to them when it comes to being treated with advanced therapies. Advanced therapies include biological and small molecule drugs.
Apply here: https://t.co/2e21n8AiDH
Seeking partners for scoping and developing quality of life indicators, incl. survey design to capture new data. Contribute to a dashboard reflecting the impact that Crohn’s and Colitis has on lives. For tender details & proposal submission, click here: https://t.co/JgiW22vSdU
Researchers are University of Hertfordshire want to look at the effectiveness of a cherry juice supplement in helping with mild to moderate Colitis symptoms.
Apply here 👉 https://t.co/FWapCsyqSx
#Crohns#Colitis#IBD
Coping with a long-term condition like Crohn’s or Colitis can have a big impact on your mental health and wellbeing. But you’re not alone. We’re here to support you. Find out more in our updated information on mental health and wellbeing.
Click here: https://t.co/1KNtCin0zF
Driven. Caring. Dedicated. Ambitious. If these are words that describe someone you know, nominate them today for the Alex Demain Awards! Nominate here: https://t.co/GMZmhWMY0t
#AlexDemainAwards#Crohns#Colitis#IBD
Sometimes, it can be difficult knowing how you can help a loved one living with Crohn's or Colitis. That's why we've created information and resources to help you to support your loved one, and to ensure you look after yourself too.
Visit: https://t.co/eIJdsyjjiK
#LittleThings
If you're in a relationship with someone living with Crohn's or Colitis, you might feel unsure how you can best help them. Whether you're looking for support, approaching intimacy, starting a family or simply living life together.
Visit: https://t.co/Hf0WhQgf5Y
#LittleThings
Have you read our latest story in The Voice? Kai is a young filmmaker living with Crohn’s find out how this is inspiring his art work.
Tackling Crohn’s through a new lens - https://t.co/xKXIeymWgE
#Crohns#Colitis#IBD
View our latest jobs below or find out about volunteering opportunities.
- Legacy & In Memory Officer
- Research Manager
- Supporter Journey Manager
- Research Officer
- Individual Giving Officer (Digital Channels)
Find out more: https://t.co/ASME5u7ZZs
#Charityjobs
Watch our new Cut The Crap campaign ad that's launching in cinemas across the UK today. Let us know where you spot it!
We say #CutTheCrap to all the excuses people make to delay checking their symptoms. Use our symptom checker to help you decide if you should seek further help.
Too embarrassed to talk to your GP about your toilet habits? Let our symptom checker do the talking for you. In 30 seconds, you can get a list of your symptoms and a letter to take to your GP
#CutTheCrap check for Crohn’s and Colitis👉https://t.co/e4sxGHYwjo
Pls share. The new PPI?
HUGE announcement from @theFCA this morning that has gone totally under the radar. It may mean a pay-out for millions who bought a car/van on Motor Finance before 2021.
I’ve done back of the envelope numbers and at the top end this could be PPI type scale (that was £40bn), big enough to be a form of Quantitative easing (so real consequences for the next govt as it’ll likely take a year).
It is to look at the handling of complaints about commissions when people got motor finance (pre 2021). Two big Ombudsman cases revealed today indicate that firms are falsely rejecting complaints and the FCA is now to do a full review of complaint handling.
The FCA wouldn’t do this unless it was likely to find they were doing it wrong. So my suspicion is when it finishes its investigation it will (in order of likelihood) set up either
a) A redress scheme where it orders all the firms to pay redress to every effected customer even if they've not complained.
b) Redress rules where it orders them to pay out redress based on a set formula, to those that complain
The pay out would be either the interest on loans (which is big), the commission (which is big), or the whole loan (which is huge). We're possibly talking thousands back for many.
Clearly this means getting complaints in if you were mis-sold is going to be crucial especially if they choose scheme b) and there is a cut off involved.
It should be noted part of the announcement is the FCA has put a freeze on firms handling complaints for now, so if you complain now they don’t have to do anything, but my provisional thoughts are it is worth people who think they’ve been mis-sold getting in a complaint now as a marker.
So my team and I will be working on a full guide on how to do that which we’ll have out in the next couple of weeks to talk you through this step-by-step. Please watch this space and share with people who may have been impacted.