Sebastian Velona Foundation raises funds for BattenCLN8 research. It is a project of The Giving Back Fund, a 501(c)(3) charity, so donations are tax deductible.
Watching @realDonaldTrump crush it on @60Minutes. Leslie Stahl getting combative but Trump is skilled at fielding her one sided questioning. 60 Minutes using a disingenuous tactic of cutting to Stahl narrating over video. Easy to see they are scrambling to redirect the narrative.
@RamsNFL We will be there Fri. VIP practice! My son will be with us! Help share his story! https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate & share! Help save my son Sebastian & kids with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@RobertDowneyJr We need your IronMan Power! https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@theJennGarner https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@rickallenlive Hey buddy! https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@ABC7 https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@BillOReilly https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@TheRock https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u
@TheDoctors https://t.co/djtMEBOn1u
Post your #HealingHug. Tag us! Donate! Tweet & share! Please help us save my son Sebastian & children with Rare Fatal Batten Disease! Everyone needs a HUG! https://t.co/djtMEBOn1u