Over 50 potential treatments in development around the world. A huge "Thank You!" to all the researchers working so hard, giving us hope for the future 💚 #MyotonicDystrophyAwareness
Muscular Dystrophy Canada is offering a special program that provides access to myotonic dystrophy genetic testing and counselling at no cost. While provincial systems may cover testing, long wait times to see a neurologist, geneticist, or counsellor can delay answers. This program helps fast-track access and includes expert support to help you understand what your results mean for you and your family.
If you have a clinical diagnosis but no genetic confirmation, or a family history of DM1, this is an opportunity to get clear answers without waiting.
To take part or learn more about this special program, reach out to [email protected] or call 1-800-567-2873 x5401
#InternationalMyotonicDystrophyAwarenessDay
Ginny cares for her husband Tim, who has myotonic dystrophy. She works part-time, on top of caring for him every day.
Now, under the Government’s PIP changes, they face losing £12,000 a year. Today I asked the Prime Minister: what does he expect carers like Ginny to do?
🧬 Today is International Myotonic Dystrophy Awareness Day — a global effort to raise visibility and understanding of this condition.
To show our support, we’re offering 20% off standard registration for the TREAT-NMD® Conference throughout September!
👉 https://t.co/7jRwBEdh8H
Millions of people with #MyotonicDystrophy remain undiagnosed, which poses serious health risks—especially during routine procedures involving anesthesia.
#15S#MyotonicDystrophyDay
🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at https://t.co/LrNpKItR0B