Peter

Cure DM exists to help those with Myotonic Dystrophy, their families and carers.
We Raise Awareness, Provide Family Support and Facilitate Research.

[Peter @CureDMCharity]

Over 50 potential treatments in development around the world. A huge "Thank You!" to all the researchers working so hard, giving us hope for the future 💚 #MyotonicDystrophyAwareness

[Peter @CureDMCharity]

Leading the way in access to genetic testing...

[Muscular Dystrophy Canada @MD_Canada]

Muscular Dystrophy Canada is offering a special program that provides access to myotonic dystrophy genetic testing and counselling at no cost. While provincial systems may cover testing, long wait times to see a neurologist, geneticist, or counsellor can delay answers. This program helps fast-track access and includes expert support to help you understand what your results mean for you and your family.

If you have a clinical diagnosis but no genetic confirmation, or a family history of DM1, this is an opportunity to get clear answers without waiting.

To take part or learn more about this special program, reach out to [email protected] or call 1-800-567-2873 x5401

#InternationalMyotonicDystrophyAwarenessDay

[Peter @CureDMCharity]

https://t.co/pVNc04m5U3 A great piece from our trustee Tamsyn about her lovely family 💚🧡

[Peter @CureDMCharity]

It continues to be a huge concern for the families we support. Thanks for raising the issue #EdwardJDavey

[Ed Davey @EdwardJDavey]

Ginny cares for her husband Tim, who has myotonic dystrophy. She works part-time, on top of caring for him every day.

Now, under the Government’s PIP changes, they face losing £12,000 a year. Today I asked the Prime Minister: what does he expect carers like Ginny to do?

[Peter @CureDMCharity]

Well done #TREAT_NMD ! A great conference in our experience. Thanks for your ongoing support of Myotonic Dystrophy.

[TREAT-NMD® @TREAT_NMD]

🧬 Today is International Myotonic Dystrophy Awareness Day — a global effort to raise visibility and understanding of this condition.

To show our support, we’re offering 20% off standard registration for the TREAT-NMD® Conference throughout September!
👉 https://t.co/7jRwBEdh8H

[DM1 - Steinert @DM1Steinert]

Millions of people with #MyotonicDystrophy remain undiagnosed, which poses serious health risks—especially during routine procedures involving anesthesia.  

#15S #MyotonicDystrophyDay

[Myotonic Dystrophy Foundation @MyotonicStrong]

🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at https://t.co/LrNpKItR0B

[Peter @CureDMCharity]

@parliamentWA Thank you! 💚

[Peter @CureDMCharity]

@SBreedon 15th September every year - join us! 💚

[Peter @CureDMCharity]

@omeoga_humphrey @TheRNAInstitute Awesome! 💚

[Peter @CureDMCharity]

@UAlbanyGovRel @ualbany @TheRNAInstitute Fantastic! 💚

[Peter @CureDMCharity]

@fyldecouncil Thank you for your support! 💚

[Peter @CureDMCharity]

@Dyne_tx Thank you! 💚

[Peter @CureDMCharity]

@aviditybio Thank you! 💚

[Peter @CureDMCharity]

@UofGlasgow @MyotonicStrong Thank you! 💚

[Peter @CureDMCharity]

@DM1Steinert ...and thank you for your efforts. You posts are very much appreciated!

[Peter @CureDMCharity]

@centremk @UnclesStephen Thank you!!! 💚

[Peter @CureDMCharity]

@TourCNTower Fabulous! Thank you so much for highlighting this cause!

[Peter @CureDMCharity]

Great newsletter highlighting the work of the UK registry - well done and keep it up guys! 💚

[Peter @CureDMCharity]

@SeanB102 @Marathon_Mcr @JustGiving Thank you!