Cure EB

Raising funds for #EpidermolysisBullosa research and clinical trials. Please support us by joining our fundraising initiatives 🦋 Together we can #cureEB

[Cure EB @CureEBorg]

🦋 @sathnam in conversation with @ameliagentleman

Join us for our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on Wednesday 2nd December.

Visit https://t.co/vDhlRYfXYl to find out more & book your tickets.

[Cure EB @CureEBorg]

Enjoyed our first full day at #EB2026

#CureEB #ResearchtheCure #EpidermolysisBullosa

[Cure EB @CureEBorg]

Prof John McGrath talks about the challenges in finding treatments and a #cure for #EB.
Watch the full video on our Youtube channel: https://t.co/zNPdhONxcn

#CureEB #ResearchtheCure #EpidermolysisBullosa

[Cure EB @CureEBorg]

In the video, two of last year's London marathon runners talk about why they chose to run for Cure EB.

100% of funds raised go to our research projects so we can continue to #researchthecure for #EB

[Cure EB @CureEBorg]

Fancy taking on a challenge for Cure EB this year? We've got lots of places available at events around the country - see https://t.co/n8SnuZ0GgL - or if you already have a place and would like to fundraise for us, please get in touch!

#CureEB #FabulousFundraisers #Donate

[Cure EB @CureEBorg]

Make 2026 the year you raise free funds for Cure EB from your online shopping! Plus, we'll get a bonus donation when you sign up before the end of February: https://t.co/IyYd8bKb7y

#CureEB #ResearchtheCure #EB #Research #Donate

[Cure EB @CureEBorg]

Happy New Year, from everyone at Cure EB
Thank you for all your support!

In 2026, we remain dedicated to finding effective treatments and a cure for #EpidermolysisBullosa. We'd love you to join us on our journey! https://t.co/ean0mfmoPP 💙🦋

#CureEB #ResearchtheCure

[Cure EB @CureEBorg]

Take a look at the research we fund at https://t.co/RRSPkN2PRt

#Cure EB #ResearchtheCure #EpidermolysisBullosa #EB

[Cure EB @CureEBorg]

Cure EB is proud to be a fully research-focused charity. This year we've funded new projects and shared existing work at conferences and events.

In 2026, we will continue to work towards our vision of effective treatments and a cure for EB!

[Cure EB @CureEBorg]

Merry Christmas from all at Cure EB x
🦋🎄🦋🎅🦋

[Cure EB @CureEBorg]

Missed the last post? Worry not! You can still share some festive cheer by sending e-cards and donating the cost of cards and stamps to Cure EB! https://t.co/v0U5SXkWxg

#CureEB #ResearchtheCure #EB #DontSendMeACard #Donate

[Cure EB @CureEBorg]

You can read more of Poppy's story on our website: https://t.co/FrzSkc4gtf

This is why we #ResearchtheCure. For a life free from pain, and a life where children like Poppy can do the things that most of us take for granted.

#CureEB #FacesofEB #EBStories

[Cure EB @CureEBorg]

"I couldn’t wait to be 13. I thought that I would finally get some freedom & independence to do things by myself... One of the most frustrating things about EB is that I’m always with an adult. I love being with my parents, but sometimes I want it to just be me & my friends."

[Cure EB @CureEBorg]

Or visit our website for more ideas: https://t.co/jTVbQfbhon

#CureEB #ResearchtheCure #EpidermolysisBullosa 🦋

[Cure EB @CureEBorg]

Medical research to find a cure for EB is the only focus of our energies and of your donations. We are so grateful to our wonderful supporters. 💙
If you would love to be part of finding a cure for EB, then here are a few ways you can support us.

[Cure EB @CureEBorg]

Send Christmas e-cards this year & you can support Cure EB in the process! By making a donation through @dontsendmeacard you can choose your design and send up to 100 e-cards, either in a batch or personalised: https://t.co/v0U5SXkWxg

#CureEB #ResearchtheCure #Charity #Donate

[Cure EB @CureEBorg]

A reminder that our final Research the Cure webinar of the year is this Thursday.
Join Prof Jakub Tolar as he discusses his research into immune and cell therapy for RDEB-associated squamous cell carcinoma.
🦋Thursday 11th December, 2pm
🦋Register here: https://t.co/GTbg77MHJ0

[Cure EB @CureEBorg]

Thank you all who helped us reach our match funding target in the @BigGive #ChristmasChallenge!

We were able to raise an amazing £97,325, including Gift Aid, for our gene-editing research. Together, we can cure EB!

#CureEB #ResearchtheCure #EpidermolysisBullosa

[Cure EB @CureEBorg]

One Donation 💙 Double the Difference 💙💙 Last chance to have your donation doubled as part of @BigGive's #ChristmasChallenge
Donate via https://t.co/5p5fokPXfJ by midday Tuesday 9th December.

Together, we can cure EB!

#CureEB #ResearchtheCure #EB #EpidermolysisBullosa

[Cure EB @CureEBorg]

Don't forget our Research the Cure webinar with Jakub Tolar is this Thursday
🦋 11th December, 2pm GMT
🦋 Online
🦋 Free to attend and open to all but your must register: https://t.co/qcZGMUamMI

#CureEB #ResearchtheCure #EB #Research