Imagine being told there’s a treatment that could change your life, only to be turned away because you don’t fit the criteria. Today, we’re launching the #CureFSHDForALL initiative, because every person living with FSHD deserves to have access to life-changing treatments.
Imagine there is a treatment for your family member’s muscle wasting disease, but they can’t get access to it.
Sign the petition demanding that every FSHD patient—regardless of age or mobility—has a fighting chance to access a cure: https://t.co/vtj4yZvPOc
Time is muscle. We cannot afford to wait. Sign the petition now to demand a plan for access to therapies for ALL people with FSHD.
Sign it here: https://t.co/vtj4yZvPOc
We started #CureFSHDForALL, so that ALL people with FSHD, regardless of age or severity, have a fighting chance to access approved therapies.
Learn who we are: https://t.co/A0i54ucBYT
Sign the #CureFSHDForALL petition to help push the FDA and pharma companies to design trials that are inclusive for ALL people with FSHD. https://t.co/vtj4yZwnDK
A cure for FSHD should be accessible to ALL. Join us in advocating for clinical trials that are inclusive and equitable for the entire FSHD community.
Visit our website to learn more: https://t.co/ye30kaEZ86
Imagine being told there’s a treatment that could change your life, only to be turned away because you don’t fit the criteria. Today, we’re launching the #CureFSHDForALL initiative, because every person living with FSHD deserves to have access to life-changing treatments.