Cure GM1 Foundation

Cure GM1 Foundation is a patient-led nonprofit organization dedicated to developing and accelerating disease-modifying therapies for GM1 ganglio

[Cure GM1 Foundation @curegm1]

🏅 Inspiration alert: Niclas ran every single day for a month and finished with a full marathon in 2025 — 13.1 charity miles for Cure GM1! Who’s ready to take on their own challenge in 2026? Join the team!
JOIN: https://t.co/oQZgDyoVoB
#DoItForGM1 #Hop…

[Cure GM1 Foundation @curegm1]

Help make the 2026 International GM1 Community Conference possible by becoming a conference sponsor.
This virtual event on October 2, 2026 will bring together families, researchers, clinicians, advocates, and members of the global GM1 community. Sponsorshi…

[Cure GM1 Foundation @curegm1]

In approximately one week, our GM1 community has lost four precious lives.
Four families are grieving. Four lives deeply loved and forever remembered. The weight of these losses is impossible to put into words.
We hold these families close in our hearts an…

[Cure GM1 Foundation @curegm1]

On Monday, July 20, at 10:20 a.m., Milo—only 21 months old—left this earth.
"I do not believe there is any greater pain than watching a child pass away.” -Milo’s mom
#curegm1 #raredisease

[Cure GM1 Foundation @curegm1]

Remembering Ezra, whose light inspired us all. His life fuels our mission to raise awareness, support families, and advance GM1 gangliosidosis research. We carry his memory, pushing for progress. #CureGM1 #GM1Gangliosidosis

[Cure GM1 Foundation @curegm1]

“The hardest part about being a GM1 caregiver is that you know that no matter how hard you try, you will still lose your loved one.”
-Ayesha’s Dad
READ MORE: https://t.co/TeiZ19it8F
#curegm1 #raredisease

[Cure GM1 Foundation @curegm1]

Happy heavenly birthday to sweet Jahkobi. Please take a moment to hold Jahkobi and his family in your thoughts today as they remember their precious child, gone far too soon.
#curegm1

[Cure GM1 Foundation @curegm1]

Today, we hold Batul and her family in our hearts on what would have been her third birthday. It is for Batul, and for the many other children we have lost too soon, that we continue to fight to find a treatment for GM1.
#curegm1

[Cure GM1 Foundation @curegm1]

"Forever remembered. Forever missed. Forever loved.” May Mark rest in peace.

#curegm1 #loved

[Cure GM1 Foundation @curegm1]

Today, we send happy 4th birthday wishes to Nate! We celebrate the joy you bring to all who know and love you. Drop your birthday wishes for Nate below!
#curegm1

[Cure GM1 Foundation @curegm1]

GM1 Community Conference Oct 2, 2026! Share your voice: Submit a quote & photo for our dedication video. Honor a loved one, reflect on your GM1 journey, or offer hope.

Submit: https://t.co/Jq7Syqt9B9
Register: https://t.co/ewUZr7GEyq

#CureGM1 #GM1Gangli…

[Cure GM1 Foundation @curegm1]

Early recognition can make a difference.
For babies with GM1 Type 1, some of the earliest signs may include:
• A cherry red spot on an eye exam
• Low muscle tone (hypotonia) or muscle weakness
• Difficulty feeding, sucking, or latching
Because these sympto…

[Cure GM1 Foundation @curegm1]

Every single person in the world has the capacity to make a difference. It’s easier than you think. Choose an activity you love, rally your community, and join the Do It For GM1 campaign throughout September:
https://t.co/oQZgDyoVoB
#curegm1 #hope

[Cure GM1 Foundation @curegm1]

Caring for others begins with caring for yourself. This National Wellness Month, we honor caregivers and families who show up with love every day.
You are not alone.
#NationalWellnessMonth #CureGM1

[Cure GM1 Foundation @curegm1]

In Germany people always say “I am not bothered if it’s a boy or a girl, as long they are healthy”. I don’t think people truly understand what that means until they love a terminally ill child. Rosie developed normally (she was a little on the floppy s…

[Cure GM1 Foundation @curegm1]

Happy International Day of Friendship.

To our amazing GM1 community: your friendship, your support, and your hope carry us every day. We are so grateful for each and every one of you.

#DayOfFriendship #CureGM1

[Cure GM1 Foundation @curegm1]

Today, we send heavenly birthday wishes to sweet Daxton, who would have turned 5 years old July 28. Please join us in sending love to Daxton's family and to all families impacted by GM1. <3
#curegm1

[Cure GM1 Foundation @curegm1]

Back in 2019, we shared the story of Leonor, who was diagnosed with GM1 at age 9. Below, her mother shares an update on how Leonor is doing seven years later.
READ: https://t.co/404Ex8Wnw7
#curegm1 #advocacy

[Cure GM1 Foundation @curegm1]

Every single person in the world has the capacity to make a difference. It’s easier than you think. Choose an activity you love, rally your community, and join the Do It For GM1 campaign throughout September:
https://t.co/oQZgDyoVoB
#curegm1 #hope

[Cure GM1 Foundation @curegm1]

Please join us in sending happy birthday wishes to Mauro, who turned 8 years old this past weekend! We hope you had a wonderful day with friends and family! Drop your wishes for Mauro below!
#curegm1