Cure GM1 Foundation

Cure GM1 Foundation is a patient-led nonprofit organization dedicated to developing and accelerating disease-modifying therapies for GM1 ganglio

[Cure GM1 Foundation @curegm1]

Happy International Day of Friendship.

To our amazing GM1 community: your friendship, your support, and your hope carry us every day. We are so grateful for each and every one of you.

#DayOfFriendship #CureGM1

[Cure GM1 Foundation @curegm1]

Today, we send heavenly birthday wishes to sweet Daxton, who would have turned 5 years old July 28. Please join us in sending love to Daxton's family and to all families impacted by GM1. <3
#curegm1

[Cure GM1 Foundation @curegm1]

Back in 2019, we shared the story of Leonor, who was diagnosed with GM1 at age 9. Below, her mother shares an update on how Leonor is doing seven years later.
READ: https://t.co/404Ex8Wnw7
#curegm1 #advocacy

[Cure GM1 Foundation @curegm1]

Every single person in the world has the capacity to make a difference. It’s easier than you think. Choose an activity you love, rally your community, and join the Do It For GM1 campaign throughout September:
https://t.co/oQZgDyoVoB
#curegm1 #hope

[Cure GM1 Foundation @curegm1]

Please join us in sending happy birthday wishes to Mauro, who turned 8 years old this past weekend! We hope you had a wonderful day with friends and family! Drop your wishes for Mauro below!
#curegm1

[Cure GM1 Foundation @curegm1]

A little planning protects a big day out.

Before the pool, the park, the beach, or the fireworks, set our kiddos up for success.

Summer should feel joyful, not exhausting. Plan for the day you want.

#CureGM1 #GM1 #SocialStories #InclusiveSummer #SummerS…

[Cure GM1 Foundation @curegm1]

Happy ADA Anniversary.

Access is a right. Inclusion matters. The Americans with Disabilities Act changed what was possible, and we honor its legacy by continuing to advocate for every family in the GM1 community.

#ADAanniversary #CureGM1 #DisabilityRigh…

[Cure GM1 Foundation @curegm1]

To every caregiver and parent in our GM1 community: today is for you.

You are seen. You are valued. You matter.

Self care is not selfish. It is how you keep showing up for the ones who matter most. Wishing you a moment of peace today.

#SelfCareDay #Cur…

[Cure GM1 Foundation @curegm1]

Incredible news: Last week, we met with representatives of the U.S. FDA to discuss the future of Enzyme Replacement Therapy (ERT) as a treatment for those living with GM1. Scan the QR code to learn more! Thank you for your support! Let's keep the momentum…

[Cure GM1 Foundation @curegm1]

World Brain Day is crucial for GM1 families. We honor researchers fighting this rare neurodegenerative brain disease, hoping for healthy brains, stronger futures & brighter possibilities for the next generation. #WorldBrainDay #CureGM1

[Cure GM1 Foundation @curegm1]

Do It For GM1 is a way for anyone to take action. Pick something meaningful to you, invite others to join, and help build momentum for GM1 research, awareness, and drug development.
JOIN: https://t.co/lnfzfm8vJq:
#DoItForGM1 #CureGM1 #RareDiseaseAwarene…

[Cure GM1 Foundation @curegm1]

International families: You are valued members of our community! Check your inbox for updates on conference registration, translation, and access to conference content following the event. We kindly request that international families register by July 31.…

[Cure GM1 Foundation @curegm1]

Water joy brings risk for kids. Children with GM1 may not understand water danger; adults must be aware for them. Learn more: https://t.co/rI1ot4q8Jp
#CureGM1 #GM1 #WaterSafety #DrowningPrevention #SummerSafety #RareDisease

[Cure GM1 Foundation @curegm1]

UPDATE! We're moving our Do It For GM1 Campaign to SEPTEMBER to better accommodate the needs of our community. It will now run Sept. 1-30. Check your email for more details or click the link in our bio to register now! #doitforgm1 #curegm1

[Cure GM1 Foundation @curegm1]

Join us for the free International GMI Community Virtual Conference on Oct 2, 2026! Families can learn, connect & engage. Register: https://t.co/ewUZr7GEyq #CUREGMI #GM1Gangliosidosis #RareDisease #FamilyConference #GM1

[Cure GM1 Foundation @curegm1]

Happy World Youth Skills Day!

Every child has strengths. Every step forward matters. Today we celebrate the incredible kids in our GM1 community, whose courage and resilience inspire everything we do.

#WorldYouthSkillsDay #CureGM1

[Cure GM1 Foundation @curegm1]

Sunscreen a sensory battle? Opt for UPF swim shirts, hats, & stroller canopies – they do the heavy lifting with zero squirming! Sunglasses help children sensitive to bright light. #CureGM1 #GM1 #SunSafety #SensoryFriendly #SpecialNeedsParenting #RareDisea…

[Cure GM1 Foundation @curegm1]

“I was preparing myself to receive bad news, but my lack of awareness on metabolic conditions kept me hopeful that I would see her grow up, possibly with few limitations."
READ: .curegm1.org/batuls-story
#curegm1 #raredisease #charity #advocacy

[Cure GM1 Foundation @curegm1]

Frequent, unexplained falls & clumsiness in children can be an early warning sign of GM1 gangliosidosis, signaling neurological change. Learn more: https://t.co/rI1ot4q8Jp #CureGM1 #GM1 #WarningSigns #RareDisease #PediatricNeurology #EarlyDiagnosis

[Cure GM1 Foundation @curegm1]

There are so many ways to Do It For GM1. Move, bake, bike, swim, dine, or build a fundraiser around something you love. Every action helps raise awareness and support research for possible treatments for this devastating and fatal disease.

https://www.cur…