Tomorrow is Giving Tuesday & if we win the Holiday Challenge=$150K for JM research! 3 things you can do:
1. Between 12 AM EST TOMORROW to 12 AM Wednesday, donate at the link below
2. After you make a gift, spread the word & encourage others to give!
We can do this TOGETHER!
We’re honored to represent the newly diagnosed families of children with #juvenilemyositis an #autoimmune diesease which affects 1 in 500,000 kids. Tune in for the webinar and we’ll answer questions about our journey and mission to #CureJM
Our family’s @curejm story is about to air again on @boston25 (5:45p) here’s the link in case you are outside of the area. https://t.co/z5rzcftI7C #autoimmune#curejm#myositis
"Although a lot is known about symptoms, diagnosis and treatment of JM, the underlying reason why a person develops the disease is still unknown. Collecting samples for genetic analysis from families and patients is of paramount importance.” https://t.co/wesHBsaxet
This research could help move the needle toward understanding and cure for all myositis diseases...even in adults. Thanks @curejm! #MyositisAwareness#CureMyositis
Get expert advice on treatments & side effects, nutrition & exercise and how to advocate for your JM child in your school and community.
https://t.co/DQJt45QmcE
When Liam was diagnosed with JM, his parents had never heard of it.
Once diagnosed, the Ryan family was moved to join the Cure JM mission.
Through hard work, the Ryan family raised $30K for much-needed research. Thank you @LukeARyan & the Ryan family! https://t.co/DovDTZdwaa
Coming up at 8 on @boston25 Morning News - A Lexington family is on a mission to find a cure after their son is diagnosed with a rare autoimmune disease. 📲https://t.co/XKNLT6m1kM
Much love to our friend @Daniel_Miller8 and @boston25 for telling our story. Watch #Boston25 today starting at 8am and throughout the day to see our #CureJM Story