The Kennedy Ladd Foundation

Funding to CURE Hurler Syndrome, Raising Awareness, Providing iPads-

[The Kennedy Ladd Foundation @CureMPS1]

@DrMakaryFDA @realDonaldTrump

[The Kennedy Ladd Foundation @CureMPS1]

@DrMakaryFDA Then why do you keep blocking access for children with MPS II AND IIIA to 3 drugs proven safe and effective through years long trials with a scientifically proven biomarker. The ultra rare community will no longer stand by and wait for our children to die.

[The Kennedy Ladd Foundation @CureMPS1]

@DrMakaryFDA Walk the walk! Rare Disease kids are suffering/dying because the @US_FDA is not using their authority and flexibility given to them by congress! Accelerated approval is not being used.

[The Kennedy Ladd Foundation @CureMPS1]

@timburchett Thank you for a response and your side.

[Tim Burchett @timburchett]

They are lying to you.

[The Kennedy Ladd Foundation @CureMPS1]

Thank you @wbir! Be on the look out for our segment on Live at Five at Four!
https://t.co/UXbaSDjBPO
#withawarenesscomesacure #fightmps1 #prayingforkennedyandlincoln #cure2025 #curehurler2025 #5k #wiffleball #knox #roane #local #run865

[The Kennedy Ladd Foundation @CureMPS1]

Thank you!

[The Kennedy Ladd Foundation @CureMPS1]

@RoaneSportsTN Please help us get the word out about Run for A-Rare-Ness and Wiffle for a CURE that is happening May 8th in Harriman TN!
https://t.co/C9wrLD2h1M

#roane #run865 #5k #wiffleball #cure #local #nonprofit

[The Kennedy Ladd Foundation @CureMPS1]

@RoaneSportsTN @TweetChase_25 Thank you!

[The Kennedy Ladd Foundation @CureMPS1]

Support us tomorrow by tuning into @wbir Live at Five at Four to hear more about Run for A-Rare-Ness and Wiffle for a CURE!

https://t.co/C9wrLD2h1M

[The Kennedy Ladd Foundation @CureMPS1]

Are you a @y12nsc employee? Contact LIVEWISE and find how they will support you to run in the Run for A-Rare-Ness on May 8th in Harriman, TN!
#5k #wiffleball #withawarenesscomesacure #run865