CureMITO

Our mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures. #leighsyndrome #mitochondrialdisease

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 7
Your voice can make a difference. By sharing, learning, advocating, and participating in research, we can build a brighter future for everyone living with Leigh syndrome. 💚
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 6
Our data can drive research. More than 470 individuals are part of the Leigh Syndrome Global Patient Registry. Every participant helps us learn more.
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 5
One disease. More than 110 genes. 🧬 The genetic complexity of Leigh syndrome is one reason it can look so different from person to person.
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 4
Leigh syndrome symptoms typically begin between 2 months and 3 years of age, although earlier or later onset is possible.
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 September 17 is Leigh Syndrome Awareness Day. Today we raise awareness, honor families affected by Leigh syndrome, remember those we’ve lost, and continue pushing for better treatments and a cure.

#LeighSyndromeAwarenessDay #LeighSyndrome #MitoAwarenessWeek

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 3
Leigh syndrome can affect many parts of the body, with symptoms varying greatly from person to person. No two journeys look exactly the same.
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 2
Leigh syndrome is a severe, progressive, life-limiting disease. There is currently no cure—but research is urgently needed and moving forward.
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 Mito Awareness Week — Day 1
Leigh syndrome is rare, affecting approximately 1 in 40,000 individuals. Every person affected deserves to be seen, counted, and supported.
#MitoAwarenessWeek #LeighSyndrome #CureMito

[CureMITO @cure_mito]

What can the gut tell us about mitochondrial disease? 🔬 Hear from Ibrahim Elsharkawi, MD, as he provides an update on research into the gut microbiome in mitochondrial disease.

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#MitochondrialDisease #LeighSyndrome #CureMito

[CureMITO @cure_mito]

From brain organoids to potential treatments. 🔬 Hear from Alessandro Prigione, MD, PhD, about using brain organoid models to identify repurposable drugs for Leigh syndrome.

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#LeighSyndrome #CureMito

[CureMITO @cure_mito]

Hear from Qinglan Ling, PhD, as she shares an update on her research using gene editing to restore mitochondrial function in cells with MT-ATP6 pathogenic mutations. 🧬

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#LeighSyndrome #GeneEditing #CureMito

[CureMITO @cure_mito]

💚 A huge THANK YOU to our sponsors for supporting the 5th Annual Empower & Inspire Leigh Syndrome Symposium!

📅 Sept. 17 | Free & virtual
🔗 Register: https://t.co/ZNUhLZmzNB

We’re grateful for your support of the Leigh syndrome community!

#LeighSyndrome #CureMito

[CureMITO @cure_mito]

💚 Mito Awareness Week is almost here! Hear this heartfelt message from Emmy, who is raising funds for Cure Mito in memory of her brother, Wally. Join Emmy in helping us raise awareness and move closer to treatments and cures.

[CureMITO @cure_mito]

What’s next for SURF1 gene therapy? 🧬 Hear from Steven Gray, PhD, as he shares updates on SURF1 gene therapy translational efforts at our virtual Leigh Syndrome Symposium.

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#LeighSyndrome #GeneTherapy

[CureMITO @cure_mito]

What can the gut tell us about mitochondrial disease? 🔬 Hear from Ibrahim Elsharkawi, MD, as he provides an update on research into the gut microbiome in mitochondrial disease.

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#MitochondrialDisease #LeighSyndrome #CureMito

[CureMITO @cure_mito]

From brain organoids to potential treatments. 🔬 Hear from Alessandro Prigione, MD, PhD, about using brain organoid models to identify repurposable drugs for Leigh syndrome.

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#LeighSyndrome #CureMito

[CureMITO @cure_mito]

Cure Mito has joined 16 other mito organizations to launch the Mitochondrial Disease Advocacy Coalition – one unified voice for our community on Capitol Hill. Learn how you can support mito families: https://t.co/hj1D3fLImq

#MitoAdvocacy #Mito

[CureMITO @cure_mito]

🎉 We hit 4,000 followers on LinkedIn!

Are you following us there? 💚 Join our growing community for Cure Mito news, research updates, events & more!

#CureMito #LeighSyndrome #MitochondrialDisease

[CureMITO @cure_mito]

Hear from Qinglan Ling, PhD, as she shares an update on her research using gene editing to restore mitochondrial function in cells with MT-ATP6 pathogenic mutations. 🧬

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#LeighSyndrome #GeneEditing #CureMito

[CureMITO @cure_mito]

Hope can take many forms. 💚 Hear from Emily Andersen, mom to 4-year-old Jack and Cure Mito’s Support & Education Director, as she shares “Many Faces of Hope” at our 5th Annual Leigh Syndrome Symposium.

📅 September 17
Register: https://t.co/ZNUhLZmzNB

#LeighSyndrome #CureMito