dazzle4rare

Est. 2016 | Signal boost RARE with #dazzle4rare every Aug
| #Signalise is our #podcast | Our 🔗

[dazzle4rare @dazzle4rare]

Its So Easy to #Dazzle4Rare2024

1. Seach hashtag.
2. Click hashtag.
3. Share posts from other #raredisease orgs, advocates, creators, and people.

Repeat! Or share your own lived experience with rare. See the screenshot ⬇️

[dazzle4rare @dazzle4rare]

@BarbyIngle ❤️❤️🙏🙏🙏

[International Pain Foundation® @iPainOfficial]

#Dazzle4Rare is here! For 10 years this global signal boost has made rare disease and chronic pain more visible. International Pain Foundation is proud to join the movement. Like, Share, Amplify! #Dazzle4Rare2026 #iPain #ChronicPain #RareDisease #TeamiPain

[NCBRS Worldwide Foundation - Nicolaides Baraitser @ncbrsfoundation]

As #Dazzle4Rare2026 week wraps up, we just wanted to say a massive thank you to everyone who took part—from patients and advocates to allies cheering us on. 🦓

Spotlighting rare diseases takes all of us coming together, and you showed up in full force this week.

[dazzle4rare @dazzle4rare]

Remember that this event exists to help #raredisease messages reach further and wider than they can on their own by leveraging our collective reach.

I tell 10 people, you tell 10 people, etc. That concept just makes it digital!

Poat in your groups. Tell people about it.

[dazzle4rare @dazzle4rare]

D4R 2026 is officially done.for 2026.

Some may know that this year looked very different. We did not have past capacity for the usual outreach, organising and chasing up messages. (Cont)

[dazzle4rare @dazzle4rare]

But the core elements remain:

Mark your calendar for the 2nd week of August every year.

Follow #Dazzle4Rare and share posts from others to help them reach more people.

Join the closed FB group for access to Canva templates, content, and collaboration.

[dazzle4rare @dazzle4rare]

And the practical bit?

You might gain a new follower. Find a new community. Reach someone who needed to find you. Make a useful connection. Learn something you didn't know. Or help someone else get seen.
That's the point.

#Dazzle4Rare

[dazzle4rare @dazzle4rare]

MYTH 5: “We have to be a rare disease organisation.”
FACT: Nope. Individuals, carers, families, disability communities, chronic illness communities, clinicians, researchers, allies and organisations can all #Dazzle4Rare .

[dazzle4rare @dazzle4rare]

MYTH 4: “It's just awareness for awareness's sake.”

FACT: D4R helps people find each other. That can mean a newly diagnosed person finding a community, an organisation gaining a new supporter, or two groups discovering they have something important in common.

#Dazzle4Rare2026

[dazzle4rare @dazzle4rare]

MYTH 2: “We have to create loads of content.”

FACT: Absolutely not. Share something you've already made. Repost someone else's work. Wear your community colours. One post counts.
#Dazzle4Rare2026 #raredisease #annualevent

[dazzle4rare @dazzle4rare]

MYTH 1: “We need loads of followers to take part.”

FACT: Nope. You don't need a huge audience. Every voice adds to the collective visibility.

#dazzle4rare2026 #facts #annualevent #Dazzle4Rare

[dazzle4rare @dazzle4rare]

We're grateful and humbled to have been able to raise awareness and support orgs/advocates with @BarbyIngle, @iPainLivingMag, and so many amazing folks. #Dazzle4Rare2026

[Barby Ingle Official @BarbyIngle]

10 years of #Dazzle4Rare and we’re still going strong! Grateful to stand with so many warriors and advocates. Your journey inspires #HOPE so share it this August and help make rare visible. Join the signal boost! #RareDiseaseAwareness #PatientAdvocacy #FromWheelsToHeals #HopeIsTrue #BarbyIngle

[International Pain Foundation® @iPainOfficial]

Thank you to every advocate, patient, and ally powering #Dazzle4Rare for 10 years. The International Pain Foundation is honored to be part of this signal boost. Keep sharing, keep supporting. #Dazzle4Rare #iPain #RareButNotInvisible #Hope #TeamiPain

[dazzle4rare @dazzle4rare]

@WhItscomplex Hey! ❤️

[dazzle4rare @dazzle4rare]

#Dazzle4Rare happens EVERY YEAR.

The second week of August.

This isn't a one-off campaign. It isn't a trend. And it isn't going anywhere.

For 10 years, we've been showing up for rare disease, disability and chronic illness communities — together.

So mark your calendar.

[dazzle4rare @dazzle4rare]

@tami282 Ours is 12 and same. Get used to it. ❤️

[RARE Revolution Magazine® @RareRevolutionM]

At the heart of the International PBC Summit is the Lions’ Den, a unique, carefully structured session where patient advocacy groups hold pharmaceutical companies to account. We delve into how this frank, day-long engagement on day three of the Summit is successfully breaking down traditional barriers, fostering human connection and tangibly shifting industry priorities to put patient needs first, from symptom relief to equitable access. Read here.

https://t.co/YydtvXVqyD

#PBC #PrimaryBiliaryCholangitis #RareLiver

[dazzle4rare @dazzle4rare]

Sending all our love 💚

[Melissa VanHouten @melissarvh]

Here's to the #GPChangemakers who remain compassionate, sensitive, empathetic, and understanding, and who persevere despite the challenges brought about by this cruel illness. Do not take a single day for granted, for it is not promised.

#Gastroparesis #CureGP