Top Tweets for #Signalise
Putting finishing tomorrow's episode of #Signalise a #Dazzle4Rare podcast, a few pieces of my hardware have failed & the work I've done may be lost. :-(
Please share any episode of #Signalise a #Dazzle4Rare podcast with your community/audience.
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https://t.co/RCIuectyJh
New #Dazzle4Rare #Signalise Drop! 🎤
This episode dives into November's awareness including: #InternationalEpilepsyAwareness Month, National CRPS Awareness Month & #Nervember, Menkes Syndrome, and more.
Listen now ⬇️
https://t.co/016krDzRgK
#RareDisease #Network
Here are some numbers & insights from 2016 to 2023. 📶
Also catch #Signalise: a #Dazzle4Rare #podcast to hear from @BarbyIngle, @Thatmskizzy, our Co-Founder Lee Reavey, Makenzie Cabrera, @unitedadvocacy & @buttahflyk
https://t.co/8LIV2Bl9ya
As promised, here are some numbers & insights form 2016 to 2023. 📶
Also catch #Signalise: a #Dazzle4Rare #podcast to hear from @BarbyIngle, @Thatmskizzy, @ncbrsfoundation Lee Reavey, Makenzie Cabrera, @unitedadvocacy & @buttahflyk
https://t.co/s08XGv5Vom
As promised, here are some numbers & insights form 2016 to 2023. 📶
Also catch #Signalise: a #Dazzle4Rare #podcast to hear from @BarbyIngle, @Thatmskizzy, @ncbrsfoundation Lee Reavey, Makenzie Cabrera, @unitedadvocacy & @buttahflyk
https://t.co/s08XGv5Vom
Just finished listening to the pre-release mix by @crunchermedia Pete. **chef's kiss** He made me make sense. Tough job, that! Listen to your fellow #Dazzle4Rare2023 family in tomorrow's episode of #Signalise: a #Dazzle4Rare #Podcast
Hey folks! Due to the whirlwind of #Dazzle4Rare2023, we're postponing this week's EP.
Hold tight! Keep an eye on @Dazzle4Rare for info on the event wrap-up episode. We're prepping clips & insights from the event. Your support means the world.
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#Signalise #RareDisease
YOU are the Champions!
On this week's #Signalise a #Dazzle4Rare we'll run down quick numbers and hopefully hear from folks like @ForwardRolling.
If you participated and can submit a less than 3 minute voice clip today, Monday the 14th, reach out.
@IlaeWeb @yesILAE We've added to the #Dazzle4Rare Community Interest Calendar as a non-rare but relevant event. The calendar is free, community-maintained, & cross-platform. It is used by us to write #Signalise a #Dazzle4Rare podcast & by folks globally to access easily on devices. 💜
This event #Dazzle4Rare2023 not only helps orgs, advocates, and others reach more people via their extended social network BUT also is our chance to educate people too.
Listen to our last ep of #Signalise to hear Lee's NCBRS story.
https://t.co/8EP7sEJAnJ
We hope you have learnt more about other organisations, advocates and more so far. Check back tomorrow to learn more...
🧡💚💙 @Dazzle4Rare #NCBRS #NCBRSRare #Dazzle4Rare2023 #RareDiseaseAwareness #PatientAdvocates #PatientGroups #WorkTogether #strongertogether
@ehlersdanlosuk Happy to help in any way we can! Is this something you'd like in the #Signalise #podcast or share via this week's #Dazzle4Rare2023?
Happy to help fellow rare and associated communities!
#Signalise a #Dazzle4Rare podcast features 2023 co-hosts Sam Fillingham PIP UK, Lee Reavey NCBRS, & more. It's a great way to get to know a few folks who have been a big part of our recent history raising cross-community awareness.
#Dazzle4Rare2023 ⬇️
https://t.co/016krDAp6i
@rareireland @22Q11_Ireland @BUMBLEance_IRL @RareDiseases @RareDiseasesIE @AlanFinglas1 @LesMartin_Ire @sujas15 @a_j_mcknight @AvrilKennan @AccidentalAdvo1 Finally added to the #Dazzle4Rare Community Interest Calendar. Any more news for the Calendar or #Signalise a #Dazzle4Rare podcast, give us a should via email!
Hi @FightingTheRare we've featured your upcoming documentary in today's episode of #Signalise a #Dazzle4Rare #podcast. We'd love to hear more about the film! Good luck on your 26th launch date!
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https://t.co/016krDzRgK
🎙️ Excited to announce the #Screen4Care podcast debut!
A big thank you to @dazzle4rare for hosting our EFPIA Lead, Nicolas Garnier, at #Signalise. A #Dazzle4Rare podcast to talk about #NewbornScreening.
Dive into the episode right away:
🎧 https://t.co/MWJwvCemjX
#RareDisease
Did you know that International #neonatalscreening day is in June?
Luckily we know an expert from @Screen4Care . Listen to the episode at 4 am BST where we call back to our recent chat on #newbornscreening with Dr. Nicholas Garnier.
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https://t.co/Z2RNUeyy25
We've added the conference to the #Dazzle4Rare Community Events Calendar!
If you have webinars, events, podcasts, and other noteworthy items, add them! Your event may be featured on the #Signalise #podcast.
📢 Attention Duchenne community! Registrations are now open for Duchenne Care Conference 2023
Join us June 7-8 to learn from top experts in the field and stay up-to-date on the latest developments in DMD care.
→ Secure your place today #DuchenneCare2023
https://t.co/cMB0RfFjLu
On #Signalise I shouted out "What about PS?" podcast available now where you get your podcasts, courtesy of @Polandsyndromep. 🍎
Also we missed out #PKUAwareness month in yesterdays episode! I'll make a note to mention it in the next May episode!
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https://t.co/VMNrCnMZa2
We made an oversight in today's #Signalise. We missed out #PKUAwareness month in our list of awareness months for May. There is a long list but we've made sure it is now on the calendar. Thanks to @DisorderRare for flagging this up in the GG forum.
Have thoughts about Rare and Relevant, Your TL;DR on #Signalise a #Dazzle4Rare #podcast?
If you haven't heard it, get it here.
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https://t.co/qcp3RVeJdo
Ep20 of #Signalise a #Dazzle4Rare #podcast is up for your listening pleasure. We have a clip from @buttahflyk for #SarcoidosisAwareness Month + news from @DisorderRare on their new series. I edited solo this week so your harsh criticisms welcome!
https://t.co/OKi4aol6Dh
Set financial goals: Identify your financial goals and develop a plan to achieve them💸
#financial #finance #business #india #paper #vectors #sign #illustration #vector #signalise
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