Opening Plenary #ECRD2026#Prague
Olivér Várhelyi, European Commissioner for Health and Animal Welfare joined by Adam Vojtěch, Minister of Health highlighted the importance of “more coordinated predicted and equitable care for people living with rare diseases” @eurordis
What comes next for rare disease policy in Europe?
Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.
We’re excited to share that #RAINFest 2026 is all set!
Over 100 participants from across the island of Ireland and beyond will come together for a unique, interdisciplinary rare disease event—bringing voices from across the community into one space.
@ucddublin@QUBelfast
Delighted to be at “More than you can imagine:Rare Realities” Rare Disease International conference organised by @NIRDPNews thank you for the kind invitation to be part of the cross border event to raise awareness of @rarediseaseday@ucddublin@ucdsnmhs@RAiNAllIreland
📢 Abstract Call Now Open | #RAiNFEST2026
Act now — submit your abstract and help shape the conversation in rare disease research.
🗓 Deadline: 4 March 2026
🔗 Apply here: https://t.co/2jpvxHAPDR
Please share widely to inspire participation and drive change. @RAiNAllIreland
📢 RAiNFEST 2026
“ From Lived Experience to Leadership.”
🗓 28 March 2026
📍 @ucddublin
🎟 FREE registration
https://t.co/98EZ7sBspO
Join patients, families, researchers & policymakers shaping the future of rare disease research across Ireland. @RAiNAllIreland@a_j_mcknight
Massive congratulations to all the SNA students who successfully completed their certification in inclusive education from @ucddublin thank you for offering students who have additional and significant care needs at the school settings. @Education_Ire
It was a joyful week of conferrings at @ucddublin, including honorary doctorates for Mark Dobbin, Siobhán Talbot, Niall Muldoon and Paul Sweeney. Congratulations to all our new graduates, and we wish you every continuing success.
What a proud and uplifting day! @ucddublin
Today, we celebrated the final cohort of the National Training Programme for Special Needs Assistants. I want to offer my heartfelt congratulations to every SNA who completed their training #SNA#EducationForAll#InclusiveEducation
🎓 Huge congratulations to all graduates from the @ucdsnmhs Midwifery & Health Systems! From BSc to MSc to PhD — your dedication, compassion & hard work will make a real difference in patients’ lives. 🌟
Special shoutout to our medalists 🏅 @ucddublin
Explore innovative research on children and young people's issues at the CRN & @UCDCHilD Annual Conference 2025!
🔹 Health & Wellbeing
🔹 Digital Engagement
🔹 Education & Participation
🔹 Supporting Children in Disadvantaged Contexts
📅 4 Dec | UCD
🎟️ https://t.co/FOzPnfgFz0
Second day of @ERDERA_org general assembly is underway @amsterdamumc the day begins with Education and Training work package. Along with 11 institutions @ucddublin is delighted to contributing to this task focused on Education and Training in #RareDisease@hrbireland@eurordis
A huge shout-out to Bojana Mirosavljevic & @ZivotLifeAssoc for Zoya's Law! This landmark legislation guarantees Serbian patients with suspected rare diseases a diagnosis within 6 months, using international labs if necessary. Systemic change is possible #HealthPolicy@ERDERA_org
Delighted to share that our co-lead @sujas15
was also invited to present @teddy_network
Biotech Week 2025. From the lab to life: “Why Children’s Say Matters in Biotechnology” — an inspiring discussion on how young voices shape the future of biotech.
#Innovation#boteachweek
Ready ... Set ... Go 🏃
UCD Sports Expo is now open in Hall B @ The Student Centre!!!
From 10am-5pm (Mon-Thurs) over 40 clubs will have stalls set up to give students a great opportunity to interact with, join clubs, watch demos and even win some goodies.
#discoverUCD
Integrated care, both within the health system and between health, social, and community services, is essential for enabling people living with rare diseases to achieve optimal quality of life and enjoy their full human rights.
Learn more 👉 https://t.co/yBraq3azou