TEDDY Network

TEDDY Network is a scientific organization aimed at structuring efforts devoted to the development of medicines tailored for children.

[TEDDY Network @teddy_network]

We were happy to participate at the @EFGCP "Better Medicines for Children" Conference! TEDDY experts participated in several sessions and breakout sessions, promoting discussion and expertise exchange. More info 👇 https://t.co/eVm0nWjPIQ

[TEDDY Network @teddy_network]

A huge thank you to all who participated in iCAN Ask the Experts (ATE) event on August 16th!
👀 https://t.co/aHXIBMUicM
📅September 20 there will be a new ATE: "Shining a Light on Migraine Relief: The Science Behind Avulux Glasses"
🔗 Register now: https://t.co/JUs7jBN5l6

[TEDDY Network @teddy_network]

🧬Biotech Week 2025 is just around the corner! @teddy_network is presenting a session titled "The Active Role of TEDDY KIDS in European Paediatric Research"!
👉 Stay tuned! We’ll soon share all the details of TEDDY activities during #biotechweek.
#research #TEDDYKIDS #Biotech

[TEDDY Network @teddy_network]

🚨 iCAN Ask the Experts – KIDS RAiN 🚨
Join @ICAN_NGR on August 16th, 2025 for an exclusive webinar with iCAN Youth Members!
📅 Date: August 16th, 2025
⏰ Time: 8 AM PST, 11 AM PST, 5 PM EST
🌐 Platform: Zoom
💸 Free!
https://t.co/OuFvlLRFDP
#Empowerment #PatientEducation

[TEDDY Network @teddy_network]

KIDS Albania organized an #educational visit to the newly inaugurated Pediatric Hospital of the University Hospital Center “Mother Teresa” in Tirana.
They explored the Oncology and Thalassemia units, as well as the Blood Bank. 🩸
More info here: https://t.co/zRRDhx0Xjf

[EPTRI @eptri_aisbl]

The #OrphaDev4Kids is a #EU4Health funded Project and aims to support the development of Orphan #medicaldevices to be used in the paediatric population.
Want to know more about this Project and the other partners?
Stay tuned to our social media channels!
#HealthUnion #technology

[TEDDY Network @teddy_network]

📢 Join our Paediatric Patient Expert Group (PEG)!
Are you aged from 1️⃣2️⃣ to 1️⃣8️⃣ and living with arthritis or multiple sclerosis?
You have until July 10th to apply! 🏃‍♂️
https://t.co/cq0LZcvcGs
Why? 🤔
To make #research more child-centric!
#research #patientcentric

[TEDDY Network @teddy_network]

Our December #newsletter is out! 🎉
👀You can learn about all our #activities and #research projects here: https://t.co/DQFhsLpSJX

Don't forget to subscribe 📲 to know all about our activities!

[TEDDY Network @teddy_network]

📣Don't miss our General Assembly on December 21st.
In this hybrid event you can learn all about our activities and #acknowledge all the giving voice to the #paediatric population.
💻 https://t.co/UgR54rQOru

[TEDDY Network @teddy_network]

📣 We are happy to announce that our #representative Annalisa Lundi has been appointed to the ENCePP Steering Group.
Annalisa will continue to #advocate and ensure that the needs of the #paediatric population are acknowledged.
👀 More info: https://t.co/2wIiSEF33w

#Research

[TEDDY Network @teddy_network]

📢@FondazioneBenzi and @uniba organise XVI Foresight Training Course “Repurposing to cover unmet needs: the current scenario in Europe and the proposed changes to the Pharmaceutical Legislation”
📅📍18 December 2023 in Bari and online
Registration➡️ https://t.co/HimLnJxTzS

[TEDDY Network @teddy_network]

Our Young Persons Advisory Groups KIDS Albania and KIDS Bari are having a great time at @iCANResearch 2023 Summit!

#rarediseases #research

[TEDDY Network @teddy_network]

Check 👀 the latest @eptri_aisbl podcast about the importance of specific medical devices for the #paediatric population! 👇

[EPTRI @eptri_aisbl]

A🆕episode of our #eptripodcast 🎙 is out!
Prof. Paul Dimitri, Director, NIHR Children and Young People MedTech Cooperative talks about the importance of specific medical devices for the #paediatricpopulation.
👉 https://t.co/ruK0vFnB85
#eptripodcast #podcast #medicaldevices

[TEDDY Network @teddy_network]

🤔 Have you registered for the Paediatric #Expert Patients Training Workshop?
You still can!
📅You have until 31 May!
Today we share Daniele S. experience! See how this #experience influenced Daniele's life.
👀https://t.co/FUSAnCABxI

[TEDDY Network @teddy_network]

🤔 Why should you join the Paediatric Expert Patients Training Workshop?
To day we share Aurora B. experience! 👇
📅 You have until 31 May 2023 to register!
👀 More info: https://t.co/FUSAnCABxI

#rarediseasepatients #raredisease #training #empowerment

[TEDDY Network @teddy_network]

👩‍🔬💊Today is #InternationalClinicalTrialsDay!
Do you know our #ClinicalTrials Center #game?
It was developed to show the #paediatric population how clinical trials work in a fun and interactive way.
👀 More info: https://t.co/rutwaffAag

[TEDDY Network @teddy_network]

📣Today we share Valeria G. experience at the @EJPRareDiseases Paediatric #expert #patients #Training #workshop.
📅You have until 31 May to register!
👀 More info: https://t.co/FUSAnCABxI

#RareDisease #Empowerment

[World Duchenne Awareness Day 🎈 @DuchenneDay]

🌍 World Duchenne Awareness Day 2023 Theme Announcement 🌍

𝗗𝘂𝗰𝗵𝗲𝗻𝗻𝗲: 𝗕𝗿𝗲𝗮𝗸𝗶𝗻𝗴 𝗕𝗮𝗿𝗿𝗶𝗲𝗿𝘀

On September 7, we promote social inclusion for people with dystrophinopathies.

Learn about the #WDAD2023 activities here: https://t.co/q6CXjnyqIc

[TEDDY Network @teddy_network]

The Intl Summer School #RareDisease #Registries & #FAIRification of #data is a great opportunity to know more about these important topics!
🏃‍♀️Don't miss this opportunity!
You have until 📅 May 22.
More info and the registration form 👇
https://t.co/WSMJAQLCbu