Donna

Wearer of many hats: Mother, retired Registered Nurse, Dancer, Animal Lover and Surviving Disability with intractable pain and chronic illness

[Donna @DCap529]

@DanLairdMD And it hits younger people. A friend of a friend was dx stage 3, now she's stage 4, she's mid-40s with 3 kids in HS. Screening age 45+ is too late!

[Donna @DCap529]

@lil23rdss @miseriavolare @ibdgirl76 My hospital stay after my gallbladder came out was extended 7 days for pain mgmt. I REFUSED to leave until it was addressed. Luckily, attending was happy to call my physiatrist and collaborate. Surgeon just wrote my discharge and walked away.

[Bev Schechtman🇮🇱 @ibdgirl76]

Chronic Pain Patients Suffer From Opioid Epidemic Overcorrection | Chicago News | WTTW https://t.co/2nDoHza1Hf

[Donna @DCap529]

@ChrisAlvino After 15 yrs I still don't have my own place again. I cannot offer financial help. But I can offer solidarity, you are not alone. I've basically couch/room surfed with friends and family since losing my home due to disability. Not ideal, but better than street.

[Donna @DCap529]

@Kafkasrecruit @ChrisAlvino Yep. First year of appeals I was out of almost everything I had worked for & saved the previous 10 yrs. By the end of the second year, I was homeless and consulting bankruptcy lawyers. I was evicted 1 month shy of the 2 yr mark. It was 8 months after that I got approved SDDI.

[Donna @DCap529]

So this year NO Medicare Part D plan is covering the pain med I've been on for 9 years. :-( No viable alternatives offered. One company gave me NO notice, just denied. Changed companies. They gave a 30 day Rx to wean off it. :-( How screwed am I?

[Donna @DCap529]

@michelleziemba @DanLairdMD The FDA approves a LOT of things on the basis of something similar being previously approved. THAT is probably how this was approved. Fast tracked in because it's non-opioid and other SCS are on market.

[Donna @DCap529]

And some people wonder why I do NOT want any sort of implanted devices in my body. I have enough problems and medical debt as it is without adding this potential fiasco to my daily load...

[Laird Law PLLC @DanLairdMD]

This anti-opioid crusader and healthcare scammer is now going to spend up to 20 years in prison. She's reportedly been convicted of designing a sham nerve stimulator component and defrauding patients, physicians, and insurers out of $41 million.

Stimwave Technologies on TALK BUSINESS 360 TV https://t.co/sfSa4aFUue via @YouTube

[Donna @DCap529]

@DanLairdMD That statement indicates a complete lack of understanding of pain itself and the management of pain. It's as though an invasive implant (and all the complications it can have) is a better alternative to a potentially limited course of pain meds.

[Claudia A. Merandi @CMerandi]

“ I have been practicing physician for nearly 30 years and for the first time in my life became an inpatient at the University of Pennsylvania….

[Donna @DCap529]

@JaymetheRN @JeromeAdamsMD We have to worry about insurance not covering them now too. I didn't get tapered. I got DENIED at pharmacy with no notice. "If I feel it will jeopardize my health they can expedite my appeal." No, abruptly stopping an opioid I've been on for over 3 yrs...it's fine! *Sarcasm*

[Jonelle Elgaway @JonelleElgaway]

What the DEA Does Not Understand Or Does Not Care About Medication Cessation Decisions | Journal of Medicine. Nursing Journals : American Society of Registered Nurses https://t.co/0MHumcCWq8

[Donna @DCap529]

@DANCEonFOX @catdeeley @itsjojosiwa @MaksimC @FOXTV Allison & @MaksimC?!?! Looking forward to that!

[Donna @DCap529]

@DANCEonFOX @FOXTV 😀💃🕺

[Donna @DCap529]

...Said NO person in constant severe pain...EVER! You're basically suggesting to award bonus points to those who haven't yet died from their pain.

[U.S. Pain Foundation @US_Pain]

Two truths can be true at once: Life can be tough, and we can be resilient. Today, let's acknowledge your strength as you navigate #LifeWithPain. You're inspiring! Share this to remind someone they're not alone and we’re proud of them. 🌟 #Resilience #ProudOfYou #ChronicPain

[Donna @DCap529]

@US_Pain ...Said NO person in constant severe pain...EVER! You're basically suggesting to award bonus points to those who haven't yet died from their pain.

[Donna @DCap529]

@purplemamabear @Optum Agreed. I laughed at the recorded message they called me with. "If you think this denial will jeopardize your health, you can request an expedited appeal." Uh, yeah, it absolutely jeopardizes my health! Or I wouldn't be taking it for three years.

[Donna @DCap529]

Well, apparently 2024 is not only another year of DEA production cuts, but it's also the year all of my choices for Rx insurance thru Medicare stop covering my pain meds! Wasn't notified of that until my Rx was denied at the pharmacy. I've been weaning all week. :-(

[Donna @DCap529]

@JoannaNoBanana A microwave that isn't over my head and doing double duty as a stove hood. :-( Can't tell you how many hot things I've either dropped or nearly dropped and how many times I've popped my spine trying to lift things into it.