The Genetic Discrimination Observatory

A network of researchers dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. Retweets are not endorsements.

[The Genetic Discrimination Observatory @DGenetique]

Last Tuesday, Diya Uberoi, GDO’s Associate Director, presented at the ACCESS-ACCES Annual Meeting, showcasing our latest access grant on Genetic Discrimination in Pediatric Oncology! 💡🔬 #GeneticRights #PediatricOncology #HealthEquity

[The Genetic Discrimination Observatory @DGenetique]

C’est bouclé pour la 5eme Conférence annuelle du GDO à Istanbul ! 🌍✨
Deux jours de discussions enrichissantes sur l’éthique et les technologies émergentes en génétique.
Un grand merci à nos intervenants et participants ! Rendez-vous en 2025 ! 🎉 #GDO2025

[The Genetic Discrimination Observatory @DGenetique]

It’s a wrap on the 5th Annual GDO Conference in Istanbul! 🌍✨
Two days of rich discussions on ethics & emerging tech in genetics—AI, genetic discrimination, pharmacogenomics & more.
Huge thanks to our speakers & attendees! See you in 2025! 🎉 #GDO2025

[The Genetic Discrimination Observatory @DGenetique]

N’oubliez pas de vous joindre à nous pour notre 5e conférence annuelle, qui se tiendra à Istanbul les 17 et 18 décembre 2024 ! 🧬🧬
Visitez notre site web pour plus d'informations: https://t.co/2fsuoF9Xdx

[The Genetic Discrimination Observatory @DGenetique]

Don’t forget to join us for GDO’s 5th Annual Conference Happening in Istanbul  on December 17th and 18th, 2024!🧬🧬
Visit our website for more info on how to join: https://t.co/2fsuoF9Xdx

[The Genetic Discrimination Observatory @DGenetique]

🌏 With advancements in precision medicine, governments are stepping up to protect citizens from GD. Discover Singapore's mission to strengthen its moratorium on genetic testing and insurance through new legislation on genetic test data: https://t.co/B9i5IDjRpq

[The Genetic Discrimination Observatory @DGenetique]

The GDO's 5th Annual Conference is happening on December 17th and 18th in Istanbul! This year’s theme is "Genetic Discrimination in the Era of Artificial Intelligence and Advancing Technologies". 🧬🔬
Visit our website for more info on how to join: https://t.co/1K7RzjHvtB

[The Genetic Discrimination Observatory @DGenetique]

Fresh off the press! In this article published in JAMA Network Open, GDO members gathered expert perspectives on Genetic Non-Discrimination policymaking, ultimately pointing towards a human-rights approach to prevent GD. Read it here: https://t.co/DDKvzEn6yQ

[The Genetic Discrimination Observatory @DGenetique]

Exciting news! 🎉 Kudos to Dr. Jane Tiller and the A-GLIMMER Project. The Australian Government will soon ban life insurers from using genetic tests to deny coverage—a huge step for those avoiding life-saving tests due to insurance fears. More details:
https://t.co/J5izrBa0PN

[The Genetic Discrimination Observatory @DGenetique]

In a new MIT Technology Review article, GDO's founding director Yann Joly highlights the urgent need to ensure safeguards against genetic discrimination.
Check out the full article: https://t.co/HUzyC61yvS

[The Genetic Discrimination Observatory @DGenetique]

Dans ce nouvel article paru dans Nature Genetics, membres de l'ODG se sont réunis pour proposer une définition compréhensive de la discrimination génétique, ayant son importance dans les discussions sur les législations contre la discrimination génétique. À ne pas manquer!

[The Genetic Discrimination Observatory @DGenetique]

In this new article published in Nature Genetics, GDO members propose a dynamic and forward looking definition of genetic discrimination, that accounts for the growing contexts in which genetic discrimination arises today. Not to be missed! Available at https://t.co/tbkoKnKqHC

[The Genetic Discrimination Observatory @DGenetique]

In this recent article, a group of researchers incl. GDO Member @YvonneBombard looked at the situation of HCS patients and their views and experiences with GD. Read more about this important work at https://t.co/pMfVegcaWL

[The Genetic Discrimination Observatory @DGenetique]

Check out this interesting discussion around the crossroad between AI governance and Genetic Non-Discrimination policy! Available at: https://t.co/oKfNkcjolv

Dans cet article prends place une intéressante discussion sur le croisement entre l'IA et la Discrimination Génétique.

[The Genetic Discrimination Observatory @DGenetique]

Congratulations to GDO Member @YvonneBombard for the well-deserved President's Impact Award! Big thanks to Dr. Bombard's for her remarkable efforts related to GD.

[Unity Health Toronto @UnityHealthTO]

Congratulations, Dr. @YvonneBombard, scientist at St. Michael's Hospital, for being recognized with a @UofT 2024 President's Impact Award! 👏

Dr. Bombard was chosen for her contributions to ending genetic discrimination and advancing genomics research.
https://t.co/x5j6o6ADzv

[The Genetic Discrimination Observatory @DGenetique]

Malgré le moratoire passé en 2019 en Australie, cette étude récente montre que la Discrimination Génétique inquiète le public, les décourageant de passer des tests génétique.

[The Genetic Discrimination Observatory @DGenetique]

Despite the 2019 Moratorium in Australia, a recent study shows that public concerns about GD persist, deterring people from undergoing genetic testing: https://t.co/Ci3vSSLuUx

[The Genetic Discrimination Observatory @DGenetique]

Despite the 2019 Moratorium in Australia, a recent study shows that public concerns about GD persist, deterring people from undergoing genetic testing: https://t.co/Ci3vSSLuUx

[The Genetic Discrimination Observatory @DGenetique]

An interesting read by members of the GDO on Canada's Genetic Non-Discrimination Act: what is it, and what effect has it had on insurance practices in the country? Read it on The Conversation: https://t.co/kr5HwDo0bW

[The Genetic Discrimination Observatory @DGenetique]

A recent study from the GDO finds that Canada’s Genetic Non-Discrimination Act leaves room for insurers to circumvent the Act to obtain Canadians' personal genetic information.
Read More: https://t.co/VZDJG4iWSl

[The Genetic Discrimination Observatory @DGenetique]

Still Using Genetic Data? In this comparative assessment, members of the GDO looked at quantifying the impact of the GNDA on insurance underwriting practices. Available at https://t.co/JE5X80iQDV