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Duchenne Foundation
@DMDfoundation
Focusing on Improving the quality and length of life for those living with Duchenne across Australia, through, research, education, support, care and advocacy.
Australia
Joined July 2009
737
Following
1.9K
Followers
1.9K
Posts
Duchenne Foundation
@DMDfoundation
almost 10 years ago
·
Sydney
Good to see the WA community supporting
@SaveOurSons
- like the
#SaveOurSons
Twitter page to stay up to date!
#like
https://t.co/YacT3sIvUZ
Save Our Sons Duchenne Foundation
@SaveOurSons
almost 10 years ago
Thank you Calista Primary School for your donation and Duchenne awareness campaign!
#studentsuccess
#SaveOurSons
Duchenne Foundation
@DMDfoundation
almost 10 years ago
Like the
@SaveOurSons
Twitter page to stay up to date and before this page closes on 18 October 2016
#SaveOurSons
https://t.co/EnIyVJ5K2w
Save Our Sons Duchenne Foundation
@SaveOurSons
almost 10 years ago
Save Our Sons is now the national peak body for Duchenne and we welcome Klair and Kristina to the team!
#SaveOurSons
Duchenne Foundation
@DMDfoundation
almost 10 years ago
Exciting announcement via the
@SaveOurSons
Facebook page at 11am today! https://t.co/8uOiJdbG1d
Duchenne Foundation
@DMDfoundation
almost 10 years ago
We are excited to announce that the WA Gala To Save Our Sons co host is Johnny Ruffo. Johnny is well know for... https://t.co/IKw0NhSthm
Who to follow
Parent Project Muscular Dystrophy (PPMD)
@ParentProjectMD
#EndDuchenne
CureDuchenne
@CureDuchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Coalition Duchenne
@CoalitionDMD
We're on a mission to do everything FUN to raise global awareness for Duchenne muscular dystrophy, to fund research for a cure. Join us and climb Mt Kinabalu!
Duchenne Foundation
@DMDfoundation
almost 10 years ago
Meet Save Our Sons Ambassador and one of our hosts for the WA Gala ! Lynne McGranger. Lynne is an... https://t.co/qfvLktZYQz
Duchenne Foundation
@DMDfoundation
almost 10 years ago
TICKETS ARE NOW AVAILABLE FOR PURCHASE! Click on the link below or on the "Book Now" button in our cover image.... https://t.co/LDT4N63xsb
Duchenne Foundation
@DMDfoundation
almost 10 years ago
Tickets to the Gala to Save Our Sons will be on sale very soon. Watch this space for the Trybooking link to buy... https://t.co/j0Rs15vKLJ
Duchenne Foundation
@DMDfoundation
almost 10 years ago
NDIS Newsletter https://t.co/yOslfKAze1 https://t.co/zQgqNa8NPx
Duchenne Foundation
@DMDfoundation
almost 10 years ago
I have a family wanting to make contact with other families in Australia who have a young child (3-6 years) with... https://t.co/p0GTGqBgnh
Duchenne Foundation
@DMDfoundation
almost 10 years ago
WA parents you might be interested in participating in this survey about school aged children https://t.co/WSAPH81gi8
Duchenne Foundation
@DMDfoundation
almost 10 years ago
https://t.co/ubRzdytpot
Duchenne Foundation
@DMDfoundation
almost 10 years ago
https://t.co/vLnUgbf4EY
Duchenne Foundation
@DMDfoundation
almost 10 years ago
Day 12 of
#Duchenne
Awareness month is the Duchenne Foundation from Australia. (Please Share) Duchenne... https://t.co/TJMiTGmZPe
Duchenne Foundation
@DMDfoundation
almost 10 years ago
2 years ago we were counting down to Gala Blue Ball 2014 . This year it's August 20....got some surprises... https://t.co/6SaqgFxtxj
Duchenne Foundation
@DMDfoundation
about 10 years ago
Keep an eye out for
#buildingforthefuture2016
https://t.co/5DwMjLHXbz
Duchenne Foundation
@DMDfoundation
about 10 years ago
We are pleased to announce that a live stream of next week's conference will be available! Next week the... https://t.co/hmTwxlSSlO
Duchenne Foundation
@DMDfoundation
about 10 years ago
Santhera have published further results from their phase 3 trial of Raxone for Duchenne which show that this... https://t.co/WLOYhzB3Dx
Duchenne Foundation
@DMDfoundation
about 10 years ago
As we look through our news feed, things intrigue us and we want to watch videos of cats, other people's family... https://t.co/v6inWQKE9M
Duchenne Foundation
@DMDfoundation
about 10 years ago
@fith122
results were very variable and side effects. FDA refused approval in Jan and Europe said that they prob wouldn't approve
Duchenne Foundation
@DMDfoundation
about 10 years ago
Disappointing news - Biomarin have decided to not take it's exon skipping drugs for Duchenne, including... https://t.co/cWTNh7Asco
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