@world_corp47924 Hello, thank you for tagging us in your post. If you would like to speak with someone about your concerns, please send us a private message with some additional information. https://t.co/SXMSL0eyjR
Common Variable Immunodeficiency (#CVID) is also known as hypogammaglobulinemia. It causes a low level of immune globulin (antibodies). This means people who have CVID are more likely to get sick. Learn more and how we can help. https://t.co/bUGbZL1rtk
If you want to help a caregiver you know, but you’re not sure how, try the gift ideas below. Your support might seem small, but it can make a big difference in a caregiver’s stressful life.
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Parents face challenges within a family when one child has special needs or requires more attention. Kids don’t always understand. When one child has a chronic condition, it truly affects the whole family.
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The Wingmen Foundation The Emotional Health Outreach Program is a great resource for anyone with Hemophilia A and B suffering from grief, loss, substance abuse, and/or any other form of emotional trauma. Therapy virtual sessions or in person are available. https://t.co/4lDubg18Yq
Did you know there are three types of von Willebrand disease? And that each one causes different kinds of symptoms and is treated differently? Learn more and how we can help at:
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Today is Hereditary Factor X Deficiency Awareness Day! We are celebrating all patients, caregivers and families affected by factor X deficiency. We’ve seen your achievements and your challenges, and we continue to be inspired.
Every donation counts! Donate today to help someone with a rare, chronic disease. Celebrate International Plasma Awareness week and learn more about donating plasma at https://t.co/BaQXv6UQY9 #IPAW2020
Did you know every year, it takes about 130 plasma donations to treat 1 person with a primary immunodeficiency (PI)? Help us raise awareness about plasma donation during International Plasma Awareness Week! https://t.co/BaQXv6UQY9 #IPAW2019
Did you know? Every year, it takes about 1200 plasma donations to treat 1 person with hemophilia? Help us raise awareness during International Plasma Awareness Week (IPAW). https://t.co/BaQXv6UQY9 #IPAW2019
Become a part of the lifesaving journey that plasma takes from a dedicated donor to the thousands of patients with rare diseases who depend on plasma protein therapies to lead healthy, productive, and fulfilling lives. #IPAW
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Plasma donations can be used to treat patients with rare, chronic diseases. Did you know it takes about 900 plasma donations to treat 1 person with an Alpha-1 Antitrypsin Deficiency? https://t.co/BaQXv6UQY9 #IPAW2019
Did you know that women who carry the gene for hemophilia A or B might also experience bleeding disorder symptoms? Learn more at https://t.co/uRU4jdH0O7
Common Variable Immunodeficiency (#CVID) is also known as hypogammaglobulinemia. It causes a low level of immune globulin (antibodies). This means people who have CVID are more likely to get sick. Learn more and how we can help. https://t.co/bUGbZL1rtk
Hurricane season is upon us. For people living with a chronic conditions preparation is especially important. Here are some tips to help you prepare for a large storm.
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Our DIY go-kit instructions for Crohn’s and UC will give you confidence to stay on your normal schedule, even when your symptoms are throwing you curveballs.
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