Discomfort Zone Podcast

Stories that uncover what it means to be chronically ill and disabled. Part of the Invisible Not Podcast Network. Hosted by @JasonHerterich (he/him)

[Discomfort Zone Podcast @DZonePodcast]

My story on chronic illness, facing stigma and disbelief, and reconciling with family members is live! 🎙️#NEISvoid #DisabilityTwitter

[Jason Herterich @JasonHerterich]

Some professional news: my first freelance podcast story is out on @DocProjectCBC! I live with an #invisibleillness called #fibromyalgia. For years, my family didn’t believe my pain was real. We’ve never spoken about that period of disbelief…until now.

[Gabrielle Peters 👩🏻‍🦽 @mssinenomine]

TTC wants to cut costs.
The number of disabled people needing Wheel-Trans is increasing.
The solution?
Deny them service. After degrading, ableist OT assessment.
This is really horrible.

https://t.co/4wei8bd2z4

[Dhriti @dhritimgupta]

the ttc is about to become even more inaccessible and problematic for its disabled users. the talented @JasonHerterich explains how through a powerful set of stories in his expertly woven deep dive:

[Jason Herterich @JasonHerterich]

Back in February, I learned of a transit accessibility issue that will have devastating implications for disabled Torontonians in the coming years: Wheel-Trans’ Family of Services program (FOS). I investigated this issue for @TheLocal_TO 🧵 (1/8)

https://t.co/PQySFmuZIm

[Pain BC @PainBC]

Fibromyalgia is often referred to as an “invisible illness”. On @DocProjectCBC, @JasonHerterich has several candid conversations with his family on their disbelief and the stigma surrounding chronic pain. Listen here: https://t.co/5wEiLA38CI

[Pain Warriors @PainWarriorsdoc]

Congrats to #painwarrior @JasonHerterich on his @DocProjectCBC story! Jason asks his family a question that has been nagging at him for years...why didn't you believe my pain was real?

[Jason Herterich @JasonHerterich]

I'm really excited for this event by @thewalrus tonight! Tune in to hear the speakers discuss how individual resilience is useful and helpful and how it's harmful when used to inform policy decisions impacting equity-seeking groups. #DisabilityTwitter #NEISvoid

[Discomfort Zone Podcast @DZonePodcast]

Here's a video I recorded to help break the stigmas on #ChronicIllness and #Disability for the #RollingThroughBarriers

[Jason Herterich @JasonHerterich]

Breaking down the perceived barriers and real barriers I face as a #disabled person.

You can help build a barrier-free Ontario by supporting me in my #RollingThroughBarriers Campaign with @sci_ontario by making a donation: https://t.co/SS5esIB43T

[Jason Herterich @JasonHerterich]

Here’s a list of things you should do if you suspect someone is faking their chronic illness:

1) LISTEN to them
2) BELIEVE them

[Jason Herterich @JasonHerterich]

Last year, I interviewed Karina Sturm where we discussed Munchausen’s by proxy. Doctors misinterpreted the chronic illness symptoms of a mother’s children as parental abuse. Even after the allegations were disproven, they continued to follow and haunt her.
https://t.co/rhVnGbDxFM

[Jason Herterich @JasonHerterich]

Now imagine going through that while people are accusing you of faking it to gain attention or to get out of work. I wasn't believed by some people until I grew so weak that I struggled to get out of bed. It's really traumatizing.

[Jason Herterich @JasonHerterich]

Living with a chronic illness is not enviable. It's waking up every day to the worst hangover of your life, minus the party. It's having to rest all the time but never feeling rested. It's having everything you've ever worked for taken away from you through no fault of your own.

[Jason Herterich @JasonHerterich]

CW: ableism, chronic illness & disbelief

Presenting this story as double-sided is dangerous. Why give a platform to a group whose sole purpose is to spread hate speech and to further stigmatize an already marginalized population?

[Discomfort Zone Podcast @DZonePodcast]

#NEISVoid this is for anyone who's been or is currently a chronic illness student

[Gigi Robinson® M.S., BFA. @itsgigirobinson]

I am looking to interview students (past or present) that have experienced difficulties throughout college & have lived with a chronic illness, for a large project I am working on.

Please send me a dm if you are or have been a chronically ill student.
[email protected]

[Discomfort Zone Podcast @DZonePodcast]

@wegohealth Awesome news! I checked my email and strangely nothing is there though

[Discomfort Zone Podcast @DZonePodcast]

@PhotographerWRS and I have an open chat about having a setback with your chronic illness. We discuss our frustrations and the tools we'll use to get back to where we were. We redefine what success means while being chronically ill.

https://t.co/7V1PR3RUkb

[Discomfort Zone Podcast @DZonePodcast]

@AlexStP711 Oo I like them both!

[Discomfort Zone Podcast @DZonePodcast]

#NEISvoid I'm curious if anyone knows of a term that describes being gaslighted while talking with someone about their history of gaslighting you.

Double-gaslighting?
Recursive-gaslighting?
Meta-gaslighting?
?

#DisabilityTwitter

[Lexi @AlexStP711]

@DZonePodcast Gaslight-ception? Gas lighting squared?

[Invisiblenotbroken @Invisiblenotbrk]

New Blog Post:
Parenting, Guilt, Shame, and What To Expect When You Have Teens and add Anxiety Disorders. — @Invisiblenotbrk
https://t.co/3gdOhKmlfa
#MentalHealthMatters #parenting #bloggerlife #chronicpain #disabilities #spoonie