๐ฆ Ehlers Danlos Syndrome |๐คฎ Gastroparesis ๐ฅฑ Chronic Fatigue |๐ Pain Warrior |โฏ๏ธ Bipolar |๐ฅCRPS | My only Talent is I just don't Quit!
@jdibon Iโve built a 5-day delay buffer into my micro-pacing strategy. Discipline is non-negotiable. No EDS flares since 2018, managing constant severe pain without medication since 2019. From wheelchair to first cycling century in 13 months, now attempting a 205-mile ultra this Saturday
@CorKinetic From lived experience. Not exercising/moving pain is severe, muscles weaker, equals more daily dislocations & subluxations, mood negatively affected so pain feels worst, low QoL. Non weight bearing exercise, hurts but less dislocations, mood boost, ๐pain management, higher QoL.
Excited to announce my participation in the incredible #RaceTheShip challenge! ๐ดโโ๏ธ๐ข
We, are a diverse team of #cyclists, racing 185 miles against S.V. Tenacious crew from Great Yarmouth to Tower Bridge.
#fundraising for @JubileeSailing.
Powered by determination, we'll show that together, we can overcome any challenge!
Support us by donating here: https://t.co/1OWDIsoli5
#jst #BringingOurMissionAshore #ehlersdanlossyndrome
@Living_ProofUK
@TheEDSociety@ehlersdanlosuk
๐ Join me, this Saturday, at #Superhero trio - I'm a member of Capt Abi's #jst#team with Nat as we don our capes for the @SuperheroTri! ๐ช
I'm #proudofmystripes and have created my very own #ezra inspired #superzebra costume to raise awareness of #ehlersdanlossyndrome#EDS and #invisibledisability #intestinalfailure #gastroparesis #dysphagia #ChronicPain #klinefelters and #familialhypercholesterolemia
#BringingOurMissionAshore with @jubileeSailing ๐
Donate & be part of the mission:
๐ https://t.co/4pisrjPp12
#findyourpower #fundraiser #charity
๐ This Saturday, our #Superhero trio - Abi (#swim), Nat (#run), & David (#cycle) and #proudofmystripes #EDS - don their capes for the @SuperheroTri! ๐ช
They're not just heroes; they're a beacon of hope. ๐
Kudos to @MarvelUK, @Disney_UK, @ZCTrust, @Pfizer_UK, @EveryoneActive, #jst & @Channel4 for being part of this journey. Let's all rally behind them, support the cause & together we're #BringingOurMissionAshore for #racetheship #Training ๐
Donate & be part of the mission:
๐ https://t.co/4pisrjPp12
#findyourpower #fundraiser #charity
From a novice rider to conquering #L2B in under 5hrs, I've pedaled through #pain and challenges to hit 1,000 miles this year.
Every mile is a testament to #tenacity.
Remember, with perseverance, even the most daunting roads can be conquered.
Keep pedaling, keep pushing! ๐ดโโ๏ธ๐ช #TenacityIsKey #bringingourmissionashore #EDS #jst #ehlersdanlossyndrome
Our #RaceTheShip inclusive cycle challenge mastermind, David, is unstoppable! 8 weeks to go. The perfect time to start training! Find out more: https://t.co/fhyvzEQwsa
Just 8 weeks to #racetheship for @jubileesailing!
Covered 1,164 miles since my first ride on Oct 1st, fuelled by #tenacity.
8 months after first ride completed my first #BHF#L2B in under 5 hours.
No hill too steep, no path too tough!
It's not just the journey, it's the cause that ignites the spirit. Here's to #BringingOurMissionAshore!
We ride as one, for all. ๐ดโโ๏ธ๐ช๐๐ข" #CountdownToRace #UnstoppableTogether
#eds
#ehlersdanlossyndrome
Setting sail on another training ride with my steadfast mate, Graham Strudwick. Chasing the horizon with a tireless spirit for #RacetheShip, every journey begins with a single pedal stroke. Keep the wind in your sails and your dreams on the horizon. #BringingOurMissionAshore๐ฒโต
๐โHalรฒ ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
๐๏ธ Friday, July 14th is YOUR day to explore the majestic S.V. Tenacious #accessible#tallship at Custom House Quay! #Greenock
โฐ Guided tours at 10:00 -12:00 & 13:30-17:00.
No need to book๐ Entry is FREE, donations are welcomed ๐@greenocktele#DiscoverInverclyde
โ The majestic #TallShip#Tenacious, pride of @JubileeSailing, has sailed into the #Liverpool#CruiseTerminal and opened her hatches to welcome you!
Come discover her charm & history, 1pm-5pm this Sunday. I'm David, a proud volunteer.
Don't be shy, come say hello!