#pwme This has to stop, If I can search and find the proper way to help a person in an ME/CFS "Crash" who further falls into a Crisis why cant they. looking for a Doctor & Hospital with University thats doing some Research into ME/CFS studies, clinical trials ect. Suggestions?
I was harassed by social workers, Team care specialists, & Moved to a rehabilitation PT Facility. Which continues to play their pets games about insurance cut being cut off. Not one person here understand Me/cfs, I will be returning home asap. Before they thrust more GET at me .
#pwme I went into an Me/cfs Impending Crash, warning, made by my Neurologist, who said "get to ER", from then to EMS vehicle. I not only "Crashed" but was in a Crisis. The Hospital stay was horrific & barbaric, The lack of care Negligent, Neurologist, Cardiologist, didn't treat.
@JebraFaushay People should really fact check what he thinks he knows, I feel that all those pych meds he took, have taken his mind away, Bruce sing your songs, entertain & stop trying to think you know anything about geopolitics, all you know is looking out from a stage & seeing waving hands.
@DafoeWhitney I do know what you mean Whitney. Sadly, yet so very true, I had to cut my hair to a out 1 inch length, my husband begged me not to. I explained to him how it was just to keep up with, it would knot up in bed. He did chop it all off. We do whatever we need to do to feel better. 💕
Living just one more day with #MECFS is the saddest, most horrifying thing I could imagine. But I’m going to do it. I’m going to wake up tomorrow and let another day slide past me without living it. And I’m going to get up the next day and do it again. Acceptance, letting go, courage, crying, cursing, righteous anger, pulling out what’s left of my hair, whatever it takes to get through one more day and closer to that day when we get real treatments and a cure. It breaks my heart every single day, but I can live with a broken heart. I need to feel freedom again.
#pwME #ChronicIllness