My wife @SaritaEdwards talents never cease to amaze me! Including this epic Mustafar cake for 1 of our son's 17th. So proud of my son for staying focused and still loving his action figures despite all the distractions around him at 17. #StarWars#Episode3#theHighGround#CakeArt
@BecauseIMatter The honor was all mine. Sharing the stage with you was a privilege. Thank you for choosing to use your platform to advocate for others. #everyoneiswe#LEAP2026
Today, one of the questions we were asked was what we thought needed to happen to cause change in the medical field…
I jokingly said “burn it down” while being partially honest about it but my answer was simple, we have to stop the respectability politics in medicine.
Today, one of the questions we were asked was what we thought needed to happen to cause change in the medical field…
I jokingly said “burn it down” while being partially honest about it but my answer was simple, we have to stop the respectability politics in medicine.
Family, we did it — the 50th lawn of our 50-state tour is officially complete!
From September 17 to October 8, we (You & I) traveled across this beautiful country mowing lawns for our nation’s heroes — veterans, active-duty service members, Gold Star families, and widows of veterans. That’s 22 days, 50 + lawns, 50 states, and countless stories that I’ll carry with me forever.
To all the incredible people I met along the way — thank you for welcoming me into your yards, your homes, and your hearts.
In this episode of the Being Rare Podcast, Sarita is joined by Swapna Kakani and Jasmine Hightower - and briefly by Brooke Thomas - to talk about newborn screening and state level advocacy. Check out the full episode here: https://t.co/bEzqMAiUJ5
Did you know? Newborn screening happens in the first 24–48 hours of life and checks for dozens of rare but serious conditions. But access isn’t equal — leaving some families in the dark. That’s why advocacy matters. Learn more about our efforts: https://t.co/fM2RuaJz0c
Did you know? Newborn screening happens in the first 24–48 hours of life and checks for dozens of rare but serious conditions. But access isn’t equal — leaving some families in the dark. That’s why advocacy matters. Learn more about our efforts: https://t.co/tM4AFgEfDq
September is Newborn Screening Awareness Month! Every baby deserves a healthy start—and newborn screening makes that possible. This month, we’ll be sharing stories, facts, and advocacy updates to shine a light on why NBS matters, especially for families impacted by rare diseases.
Help us make the Bob Jones High School football season a success! Our fundraiser is live, and your contribution will directly benefit our student-athletes. Click the link to learn more and donate: https://t.co/EyThGtAHIX #BobJonesFootball
For everyone who said the Medicaid "changes, cuts," whatever you want to call them wouldn't affect people with disabilities - LIES! Elijah's Medicaid was terminated! Yes, we have primary insurance but Elijah's care REQUIRES supplemental coverage and support. This is ridiculous!
Help us make the Bob Jones High School football season a success! Our fundraiser is live, and your contribution will directly benefit our student-athletes. Click the link to learn more and donate: https://t.co/EyThGtAHIX #BobJonesFootball