🚨Our CF MRI toolkit - now live! 🫁🧰
Co-developed with people with CF, carers, healthcare professionals & researchers, it contains various resources to support communication of lung MRI results in CF: https://t.co/kWrzkSphvG.
Please share! #MRI#CysticFibrosis
We’ve now collected the data we needed from the research interviews to finalise our toolkit to help support the communication of lung MRI scan results! A huge thank you for all the support and interest - the toolkit will be live very soon! #MRI#CysticFibrosis
🎙️ Living & Breathing It Ep 8 🎙️
@leicsparta’s lived experience story is out now👇🏻
Spotify: https://t.co/iYeASHmZK3
Apple: https://t.co/dFt4Jf4VFT
Trigger warning: Please note that there are references to mental illness throughout the episode.
#LivedExperience#Podcast
Do you have CF? Or care for those that do? Please take part in our research interviews to help support communication of scan results: https://t.co/J2we5hehUR
No time for an interview? Please give us feedback on our poster instead: https://t.co/LT46PnenGg #MRI#CysticFibrosis
🎙️Living & Breathing It Ep 6 & 7🎙️
@karen_packwood’s lived experience journey is out now👇🏻
Spotify: https://t.co/yXZ3oQToJI
Apple: https://t.co/ZVGy3Y5hJu
Trigger warning: Please note there are references to war & its impact throughout both episodes.#LivedExperience#Podcast
Grateful for any help in sharing details of the next phase of my PhD please🙏🏻 Looking forward to sharing the resources we’ve developed! #CysticFibrosis#MRI
Are you interested in taking part in research into lung MRI in cystic fibrosis? Please take part in our research interviews to help support communication of scan results: https://t.co/J2we5hehUR #MRI#CysticFibrosis
Grateful for the opportunity to present at #UKCFC about the cystic fibrosis lung MRI toolkit we’ve been developing. We're keen to get views from the wider community on what we've produced so far - please tell us what you think here: https://t.co/azjRTYD409 #CysticFibrosis#MRI
We're excited that all of our PhD students will be presenting their research at UKCFC - if you're interested in finding out more about what they've been up to then there's still time to sign up!👇
https://t.co/LLMZaeYAS5
#UKCFC#MRI#CysticFibrosis#CFTrust
The second part of my chat with Vicky Lang is out now!👇🏻
Spotify: https://t.co/vruhnkpz1r
Apple: https://t.co/Kq1t1zm75k
Trigger warning: Please note that there are references to abuse throughout the episode.
#LivedExperience#Podcast
🎙️Living & Breathing It Episode 3🎙️
Part 1 of Vicky Lang’s lived experience journey is out now👇🏻
Spotify: https://t.co/2LOL0iJHRj
Apple: https://t.co/rP9zg48zxH
Trigger warning: Please note that there are references to abuse throughout the episode. #LivedExperience#Podcast
🚨Out now!🚨
Grateful to Bethinn for reflecting on the European Cystic Fibrosis Society conference (ECFS) with me, with both of us living with & researching CF.
Spotify: https://t.co/oRmpqixbBl
Apple: https://t.co/fgRma7q8kW
#ECFS25#CysticFibrosis#LivedExperience#Podcast
🎙️Living & Breathing It Episode 4 out Tuesday!🎙️
A special episode drops on Tuesday as I reflect on ECFS ‘25 with Bethinn Evans - available below👇🏻
Spotify: https://t.co/gS7o6JYRnp
Apple: https://t.co/ZVGy3Y4JTW
#ECFS25#CysticFibrosis#LivedExperience#Podcast
🎙️Living & Breathing It Episode 4 out Tuesday!🎙️
A special episode drops on Tuesday as I reflect on ECFS ‘25 with Bethinn Evans - available below👇🏻
Spotify: https://t.co/gS7o6JYRnp
Apple: https://t.co/ZVGy3Y4JTW
#ECFS25#CysticFibrosis#LivedExperience#Podcast
🎙️Living & Breathing It Episode 3🎙️
Part 1 of Vicky Lang’s lived experience journey is out now👇🏻
Spotify: https://t.co/2LOL0iJHRj
Apple: https://t.co/rP9zg48zxH
Trigger warning: Please note that there are references to abuse throughout the episode. #LivedExperience#Podcast
Very pleased to have won the Judges Choice award at the School of Medicine Research Impact Forum today for my presentation on my PhD research! Of course it’s also #WearYellowDay so I was dressed accordingly!
#CysticFibrosis#MRI#CFweek#CFTrust#PhD
Excited to be at #ECFS with the poster from the first phase of my PhD - will be around to talk about it in the poster session this afternoon! #CysticFibrosis#MRI
🎙️Living & Breathing It Episode 2 out now!🎙️
Thanks again to @sarahthejourno for being on the podcast!
Spotify: https://t.co/Yj2onOAkJm
Apple: https://t.co/hddRRZpRK7
#EndometriosisAwareness#LivedExperience#Podcast
🚨Living & Breathing It Episode 2! 🚨
We are back (finally!) - so grateful to @sarahthejourno for sharing her journey living with & researching endometriosis - drops Friday👇🏻
Spotify: https://t.co/mKLcbJrGU5
Apple: https://t.co/ZVGy3Y4JTW
#LivedExperience#Podcast
@TamesideGroup I’m so sorry to hear this news Sue, Clive was an incredible advocate for pulmonary fibrosis - the work you have both done together in raising awareness has been amazing💜