Daniel Longhurst

Fighting a life with Cystic Fibrosis..... and winning 👊🏻🌹Wondering but not lost, over both land and sea 🗺

[Daniel Longhurst @DanielLonghurst]

#GOGimmighoul

[Pokémon GO @PokemonGoApp]

What’s in the box? 👀

You can RT and find out!

Roaming Form Gimmighoul can now be caught in #PokemonGO! We’re celebrating by giving away Gimmighoul-themed prizes!🥳🎉

To claim:

Follow us on Twitter
RT this post with #GOGimmighoul

You’ll get a code to redeem. Let’s GO!

[Pokémon GO @PokemonGoApp]

What’s in the box? 👀

You can RT and find out!

Roaming Form Gimmighoul can now be caught in #PokemonGO! We’re celebrating by giving away Gimmighoul-themed prizes!🥳🎉

To claim:

Follow us on Twitter
RT this post with #GOGimmighoul

You’ll get a code to redeem. Let’s GO!

[Daniel Longhurst @DanielLonghurst]

Brake bleeding bitch today.... 🙄
#mk2crew #SciroccoCartel #sciroccoregister #VWLife

[Daniel Longhurst @DanielLonghurst]

@eleanormaay You slay me 😂🤣

[Imogen Wright @ImogenWright_]

Rest in peace lovely boy 💜😞

[Daniel Longhurst @DanielLonghurst]

Really loving the new @GShockUK @GShock_US @gorillaz Edition watches
👀
👅

[Daniel Longhurst @DanielLonghurst]

This is great but is it legit 🤔🤔

[Emily Louise Smith @els199218]

Lovely people of Twitter; I’m jumping out of a plane for the @cftrust in memory of my friend/sister Rachel who died aged 23. If anyone is feeling kind; https://t.co/13s9RYSZDK THANKS

[Daniel Longhurst @DanielLonghurst]

@skybluecj It's good to see the CF community finally getting some recognition though. This is a big step forward in CF becoming more understood by the public 🙌🏻

[Daniel Longhurst @DanielLonghurst]

Congratulations to @elonmusk and the @SpaceX team for the most amazing test flight of the #FalconHeavy

I'm Speechless.

🚀🛰🌍

[Cystic Fibrosis Trust @cftrust]

Huge congratulations to the CF community and their determination - access to Orkambi for people with cystic fibrosis will be debated in parliament. Likely to be March but date to follow #OrkambiNow

[Daniel Longhurst @DanielLonghurst]

@maggsmcg @CFAware @cftrust @CF_Foundation She will find a way in which it works for her, and only she can do that.
If you want to put her in touch with me at any point I'm more than happy to chat with her, just so she knows she's not alone 🙂

[Daniel Longhurst @DanielLonghurst]

Can't wait for this 🙌🏻🏅💪🏻
@RoughRunners @VisitBristol @cftrust
#TryAndStopMe #roughrunner #bristol #muddy #dirty #fun

[Daniel Longhurst @DanielLonghurst]

@maggsmcg @CFAware @cftrust @CF_Foundation She's a young adult just trying find herself I've been there. The biggest thing with my meds especially a neb was that it's always a reminder I have this condition, a drain on time when I could be out doing things Now though I fit my my cf around my life not the other way around.

[Daniel Longhurst @DanielLonghurst]

@maggsmcg @CFAware @cftrust @CF_Foundation Also it's very easy for people around you looking in to say "why aren't you looking after yourself" but they will never understand what it's like to have to do these things everyday, have other things to thing about aswell as just navigating your way through life.

[Daniel Longhurst @DanielLonghurst]

@maggsmcg @CFAware @cftrust @CF_Foundation The idea that if I wasn't looking after myself I wasn't going to be able to complete all the things that I want to do in life. I have a lot of experiences and adventures to have an I will not be held back or told I can't do it because of the CF. ✌🏻

[Cystic Fibrosis Trust @cftrust]

We've been overwhelmed with success & support for the community-led petition on access to #Orkambi that reached 100,000 signatures in just 10 days.

Join us for a #FBLive from 12:30pm on Weds for an update on what to expect next now the petition has reached the target for debate

[Ed Owen @Ed_Owen]

Great tribute to CF community across UK to have won right for parliamentary debate on Orkambi issue - & huge thx too to patient & determined work of @NickMedhurst, @lbeswickcft & @cftrust team. Time for innovative solution @NHSEngland @VertexPharma https://t.co/kGmKzjTQOp

[Cystic Fibrosis Trust @cftrust]

The #OrkambiNow petition is just shy of 3,000 signatures before it reaches the 100,000 target. Go on, sign it to help secure a future for all who can benefit from this drug and let's see if we can smash that goal before the working week begins tomorrow https://t.co/s893cQ9psl

[Daniel Longhurst @DanielLonghurst]

Time to get back into shape 🏊🏼
I've been going my nebulisers consistently everyday, twice a day, in the last month than I have for the last 4-5 years. Determined to back that up with some swimming and fitness 🤙🏻
@cftrust @CF_Foundation @CFAware
#cysticfibrosis #breatheasy