Get fascists out of wellness

Politics of toxicity. Politics of nutrition. Anti-ableism. Anti-stigma.

Me: PhD, humanities, Cantab; ME/CFS since 2017; chronic fatigue since 1998; any pronns.

[Get fascists out of wellness @DarkWaters13]

I went back to work by avoiding toxins--sleeping outside on a plateau between the ocean and the national park for two yrs. No expensive detoxes, just clean air and lots of organic veg. I wasn't wrong, & now I pay taxes again. No thx to mainstream medicine https://t.co/BxswTvdFFc

[Get fascists out of wellness @DarkWaters13]

@BristOliver If you have #MECFS, you quickly learn that official data on your illness is meaningless.

[Get fascists out of wellness @DarkWaters13]

Medicine is changing, but from this tweet thread, it looks like journos have a lot of reading still to do catch up.

[Get fascists out of wellness @DarkWaters13]

This is what ableism looks like. The two groups do have something in common: experience of disabling chronic illness. Those with #MECFS have long been accused of being a cult for these kinds of reasons. This is not new analysis, just recycled prejudice.

[Get fascists out of wellness @DarkWaters13]

And yes, of course we don't trust medicine. When (for example) you are disabled by a medical procedure, then told by every doc you see that "it doesn't happen, therefore it didn't happen," that kind of renews your perspective on medicine. Also when you are told you're not sick.

[Get fascists out of wellness @DarkWaters13]

Note to #pwme: we are not welcome here!

Such useless fomenting of hate. Who knows what any illness is. This is some serious gatekeeping. Let's open the gate and help each other.

[Covid Solidarity @CovidSolidarit1]

I am tired of people posing as Long Covid advocates when they don’t have Long Covid but rather, have other interests to promote. I don’t do that with other conditions.

[Get fascists out of wellness @DarkWaters13]

to make a judgment. Here, we need to look in depth at the scientific claims being made. If we don't have info to decide, then we need to say, we don't know. These skills are ofc both humanities & science skills. But the humanities' attn to the case may be useful, here & elsewhere

[Get fascists out of wellness @DarkWaters13]

One thing I'll miss about twitter is when science influencers inadvertently show just how crucial humanities-style skills could be to good critical reasoning, were that reasoning to take place... the whole concept of the specific case vs the general case is subsumed here 1/2

[Health Nerd @GidMK]

If 9 out of 10 experts agree on something, there's a very good chance that the dissenter is wrong

[Get fascists out of wellness @DarkWaters13]

So GMK wants to say that @fitterhappierAJ is probably wrong bc that is statistically more likely. But that's the wrong way to go about answering the question of whether AJ is right or not. The general law doesn't determine the specific case, and the probabilities don't help us 2/

[Get fascists out of wellness @DarkWaters13]

@GidMK ME/CFS

[Get fascists out of wellness @DarkWaters13]

Your conference looks magical. But if you say you aim to "bring together people of all ... disabilities," and there are no masks and no Zoom option, then it is ok for me to write to you asking how I can attend.

[Get fascists out of wellness @DarkWaters13]

@j_b_kennedy @Nikki_Cutes Exposure to indoor toxins in your sleeping environment?

[Get fascists out of wellness @DarkWaters13]

@MichaelSFuhrer Does the study deal with Long Covid? The Long Covid risk might not correlate with the severity of infection.

[Get fascists out of wellness @DarkWaters13]

@TimHuttonAu Yes, totally. I think supplements are often really key! If only they weren't so stereotyped! (The "expensive urine" stereotype for B vitamins is very ableist to my mind!) I hope you get some improvement.

[Get fascists out of wellness @DarkWaters13]

@TimHuttonAu How are supplements woo? Vitamin D and zinc are important. Good to test levels before you supplement. B vitamins as well, obviously.

[Get fascists out of wellness @DarkWaters13]

@e_quinnIR @lelia_glass @matthewshaer If you have the electromagnetic hypersensitivity(EHS), the more research you read, the more you realise that "scientific consensus" is just what the mobile phone companies want you to think. I know my sensitivity is real. The researchers keep "proving" it isn't! And are believed!

[Get fascists out of wellness @DarkWaters13]

Yep, looks like knowledge of ME/CFS and empathy for patients whom medicine refuses to treat, and prefers to hate, is alive and well in Emory

[Get fascists out of wellness @DarkWaters13]

@matthewshaer Maybe the CDC should look into ME/CFS and Long Covid, so that those of us who've been disabled for many years have to read more than a handful of papers to know more than the doctors treating us. I got better from my own research. I went back to work.

[Get fascists out of wellness @DarkWaters13]

@loulou_mermaid @seraphrdm Electromagnetic radiation can cause tinnitus in people who are electromagnetically hypersensitive. That would be one way of explaining the "sound." People aren't necessarily wrong about their own bodies bc "physics."

[Get fascists out of wellness @DarkWaters13]

@ABertheim @VirpiFlyg Those aren't harmless though! Gadolinium contrast has fairly recently been linked to fibromyalgia (sorry I don't have the ref to hand). Hope you feel better. Sometimes no one wants to do the research if it will make the companies look bad... sometimes we just don't know