David Ramsden

Chief Executive of the Cystic Fibrosis Trust. Fighting for Life Unlimited for all! Views are my own.

[David Ramsden @DavidRamCFT]

It's a bit too hot for the hat! Have a fantastic #WearYellowDay and thank you for all you do to support @cftrust

[David Ramsden @DavidRamCFT]

So pleased to be able to share this news!

[Cystic Fibrosis Trust @cftrust]

Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community.

https://t.co/x7TV04xqXU

[David Ramsden @DavidRamCFT]

@cf_ireland Thank you for being such a great source of wisdom and friendship.

[David Ramsden @DavidRamCFT]

Great to meet with the Welsh First Minister yesterday to discuss CF care and innovation and to emphasise the importance of removing any uncertainty about access to life-changing medicines for all those who could benefit in the future as soon as possible.

[David Ramsden @DavidRamCFT]

Thank you for every step, every signature and every pound raised. Now is the time to make the change - no one with CF should have to pay for the drugs they need!

[Nick Smith @ZanzibarSmith]

Petition handed in✅

It's been a challenging week. All worth it to try and make a difference for my little girl.❤️

#CysticFibrosis #trekforcharlie

@cftrust @cf_care @strawfie @RishiSunak @ChrisMRiches

[David Ramsden @DavidRamCFT]

This is an incredible effort by Nick and Liam for a really important cause. Nobody with CF should have to pay for the drugs they need!

[Nick Smith @ZanzibarSmith]

#Trekforcharlie
Tune into @bbcwm radio today at 12:40!

Over halfway to London to deliver the petition for Free Prescriptions for all CF patients in England!💪

Tracker on stories: https://t.co/F2Tz0sEX4R

JG: https://t.co/UX8DoV35vp

[David Ramsden @DavidRamCFT]

A lovely morning for #WearYellowDay (there is even a bright yellow ball in the sky!) in a brilliant #CFWeek2023 Thank you to everyone who is getting involved and at the @cftrust we will not stop!

[AMRC @AMRC]

"...1 in 3 CF families revealed they had run out of food before they could afford to buy more, and 1 in 3 people with CF missed hospital appointments due to the cost."

@CFtrust invite @AMRC charities to get your conditions debated in Parliament next week too.

[David Ramsden @DavidRamCFT]

Great to have the opportunity this week to speak to the Health and Social Care Select Committee (alongside @ChrisAskewCE and @LizAshallPayne) about the potential of data and digital to transform care and support for people with cystic fibrosis.

[David Ramsden @DavidRamCFT]

We are looking for some great people to join the @cftrust Team. Please have a look as there might be a fantastic new role for you! https://t.co/nCXl4tgloT

[David Ramsden @DavidRamCFT]

Fantastic to see this - brilliant work, brilliantly presented! @JoJofoth and @drchloejames Congratulations to all who made this happen!

[Chloe James @ProfChloeJames]

Really proud of our fantastic #MicrobialPuppetMasters team from @SalfordPGRs & @LivUni_IVES Day2/5 is really hotting up @royalsociety #SummerScience so many brilliant conversations so far about #Phages #CysticFibrosis #Bacteria #DNA & #ScienceCareers

[Cystic Fibrosis Trust @cftrust]

Today, we’d like you to tell the Health and Social Care Committee (@CommonsHealth) how paying for your prescriptions in England affects you and your family. #reviewthelist (1/3)

[David Ramsden @DavidRamCFT]

It's that brilliant day again..... #CFWeek #WearYellowDay
Thanks to all who text to donate. 'YELLOW5' to donate £5, 'YELLOW10' to donate £10 or 'YELLOW20' to donate £20, to: 70500.

(⚠Text messages cost the donation value + your standard network charge and ask the bill payer!)

[David Ramsden @DavidRamCFT]

@NormalLife7 @cftrust @DYOO_cft It was great to see you!

[David Ramsden @DavidRamCFT]

Great animation showing how collaboration and partnership are at the heart of making real change!

[AMRC @AMRC]

Many of us wouldn't be here today without research. It’s constantly shaping and improving our health and social care. But do you know who funds and supports research in the UK?

Explore the different ways the charity, public and industry sectors #MakeResearchHappen.

#BSW22

[David Ramsden @DavidRamCFT]

A fantastic Friday at @cftrust clinical trials conference - with inspirational people uniting for a life unlimited!

[Cystic Fibrosis Trust @cftrust]

We are uniting people to stop #cysticfibrosis. Funding vital research, improve care, speak out and race towards effective treatments for all. Cystic Fibrosis Trust is here to make sure everyone with CF can live without limits. https://t.co/eTMdYHp0In

[David Ramsden @DavidRamCFT]

This is a really welcome investment in data infrastructure for research and development. The UK Cystic Fibrosis Registry shows how improvements in care can be driven by trusted data and the importance of focusing on the needs of those we are here to help.

[Transforming health and care @NHSTransform]

Today, up to £200m joint funding between @NHSEngland, @DHSCgovuk and @beisgovuk was announced to improve health data research. This will put the NHS in the driving seat so patients can benefit from more innovative treatments faster.
Find out more: https://t.co/KHMleUhflP

[David Ramsden @DavidRamCFT]

This is a really important report. Things must change and it is great to see the ambition in @asthmalunguk strategy. I look forward to @cftrust working with @swoolnough and her team when we can make a bigger difference together.

[Sarah Woolnough @swoolnough]

🧵 Today, I’m really proud to let you know that we have a new name and look – and a strategy to tackle the unacceptable state of lung health in the UK. We are Asthma + Lung UK @asthmalunguk. We are the UK charity fighting for your right to breathe.

[David Ramsden @DavidRamCFT]

@angelaculhane1 @ProstateUK Good luck with what comes next - you should be so proud of what you have achieved.