Debz O'Dele RNC,MSc DipHE

Mum, Haemoglobinopathy Community Matron | Clinical lead for #NEL Peer mentoring | Patient Advocate All views are my own.

[Debz O'Dele RNC,MSc DipHE @Debbie1Omo]

Thrilled to have contributed to the 2nd Edition of this vital care planning book for healthcare professionals! This chapter on Sickle Cell management highlights why education is key to optimal care. Let's raise awareness! #SickleCell #ACTNOW #EducationMatters #closethegap

[Sickle Cell Society @SickleCellUK]

✨ Meet Your Mentors ✨

First up, meet two of our London team!

This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.

Find out more by scanning the QR code.
#SickleCellSociety #BlackHistoryMonth #Mentoring

[NHS Race & Health Observatory @NHS_RHO]

Today, we launch a co-produced resource to help parents spot signs of jaundice in babies with dark skin tones. It will be shared with every maternity & neonatal service across the country and across primary care.

You can download it here: https://t.co/HmvyfHJyIx

[KWAJO- Social Issues Campaigner @Kwajotweneboa]

One of the most important interviews I’ve done …

My message to the Government 👇🏽

[Sickle Cell Society @SickleCellUK]

Are you a parent in North-East London with a child (12–16) living with Sickle Cell? Join our RHO Transition Project Working Group to help improve the move from child to adult care.
Sign up by Fri 23 May 2025: https://t.co/kMvYlHMaNM

[Debz O'Dele RNC,MSc DipHE @Debbie1Omo]

It was a pleasure to lecture NTPN on Sickle Cell management & emergencies, & LSBU CPPD students on pain management in #SickleCell. Essential learning for all healthcare professionals & this should be standard across all higher education institutions! #closethegap #raiseawareness

[West London HCC Network @HCCWestLondon]

Join Dr Claudine Matthews on her online course about Managing Nutrition in Sickle Cell Disorder! You can join every Wednesday starting from 12th March, for more information please click below
https://t.co/Lqqkj9BrY9

[Sickle Cell Society @SickleCellUK]

✨ Reflecting on an incredible year for our mentoring program across London! We've seen amazing moments—smiles, growth, and real impact for kids with sickle cell. Watch our first video featuring mentees, mentors & clinical leads! 📢 Share & help us reach more! #SickleCell

[Carl Reynolds @drcjar]

excellent news for sickle cell patients today, now need to make more accessible at scale https://t.co/ElGrwfsMoe

[Sickle Cell Society @SickleCellUK]

NEW TREATMENT APPROVED FOR SICKLE CELL! We are delighted that NICE has today approved the groundbreaking gene therapy, Exa-cel, or Casgevy, for use through the NHS in people living with sickle cell disorder. Our CEO John James OBE comments here.

[Caribbean & African Health Network @cahn_uk]

Are you finding it hard to get the right support for your child in school?
We help you organise, communicate, and advocate effectively.

Session: SEND Support & Advocacy for Black Children in Schools
🗓️️ 5th Feb | 6:30 PM | Online | Free

Register: https://t.co/CxI3HRbGWN

[Sickle Cell Society @SickleCellUK]

🎙️ Throwback to our first Sickle Cell podcast episode! Bolaji shared with host Kesewaa how daunting it felt to transition from children’s to adult services. Do you remember your experience? How can doctors make it easier?🎧 Listen now on all platforms. #SickleCellAwareness

[Sickle Cell Society @SickleCellUK]

Today, a plaque honouring the lifesaving work of the UK’s first sickle cell nurse specialist, Professor Dame Elizabeth Anionwu, was unveiled at London’s newest blood donor centre in the heart of Brixton.
Book your appointment to donate blood today: https://t.co/vwsFtx2Dsv

[The Red Cell Network @TRCNHCC]

Open to all NHS staff who support people during a sickle cell crisis, book your webinar place to learn more about the ACT NOW approach and how it supports rapid help for patients. Book now via this link:

https://t.co/Yk2Mjh1laI

[Sickle Cell Society @SickleCellUK]

We are looking for the next Chair for our Board of Trustees. Could it be you?
Further information via the dedicated microsite: https://t.co/Tyaxnvo8xK
#Boardchair #sicklecellawareness

[Sickle Cell Society @SickleCellUK]

🌟 Join us as a Lead Mentor in North East London! Support young people (10-24) with Sickle Cell Disorder through mentoring, leading a team, and organizing activities.
📝 Apply by 29th Jan 2024! 📧 Email: [email protected] #SickleCellAwareness #MentorsNeeded

[Debz O'Dele RNC,MSc DipHE @Debbie1Omo]

🌟 Want to make a difference in 2025? Here’s how!

1️⃣ Donate blood➡️Regular transfusions save lives! https://t.co/kXGvNRsD5f
2️⃣ Advocate➡️Call for better healthcare policies for people with #SickleCell
3️⃣ Learn & Share➡️Spread awareness by sharing this post.
#TakeAction

[Debz O'Dele RNC,MSc DipHE @Debbie1Omo]

Every pint of blood counts, and for someone with #SickleCell, it could mean fewer hospital visits and more time with loved ones. Give a gift of life this Christmas 🎄
Sign up here>>>>https://t.co/kXGvNRsD5f

#DonateBloodSaveLives #Givebloodspreadlove #welistenwedontjudge

[Sickle Cell Society @SickleCellUK]

The festive season can be joyful yet challenging for mental health. This Christmas, we’re highlighting organizations supporting the Black community to foster unity and well-being. Let’s uplift mental health together! 🎄 #BlackMentalHealth #SupportThisChristmas #CommunityCare

[Debz O'Dele RNC,MSc DipHE @Debbie1Omo]

Every pint of blood counts, and for someone with #SickleCell, it could mean fewer hospital visits and more time with loved ones. Give a gift of life this Christmas 🎄
Sign up here>>>>https://t.co/kXGvNRsD5f

#DonateBloodSaveLives #Givebloodspreadlove #welistenwedontjudge

[Sickle Cell Society @SickleCellUK]

📺 Catch Casualty's Christmas Special on BBC One, December 21st at 21:40! 🎄 The episode emphasizes blood donation's importance. Watch for a familiar face and be inspired to donate! More info at @givebloodspreadlove. Let's make a difference together. 🩸 #GiveBloodSpreadLove