Deborah Skolaski

Texas Ambassador for the Rare Action Network (RAN), a grassroots network of rare disease patients, caregivers, advocates and organizations empowered by NORD.

[Rare Action Network @RareAction]

Patient advocates are people just like you who take action & help us push lawmakers to increase access to affordable, quality care & much more. Celebrate #NationalPatientAdvocacyDay by getting involved: https://t.co/4EGe14Wucu. We need more members so we can do more, together.

[National Organization for Rare Disorders (NORD) @RareDiseases]

Minnesota @Twins center fielder @Taylor_Michael3 is raising money for the #RareDisease community this @MLB season in support of @UpliftingAth! He is honoring his sister, who was diagnosed with #Trisomy18.

Donate to Taylor's campaign here: https://t.co/ICAHZTySnO
#WeTackleRare

[Deborah Skolaski @DeborahSkolaski]

Thank you @GregAbbott_TX for signing HB 999 to protect the critical lifeline of copay assistance for TX patients! We also thank @DrSchwertner @FourPriceTX for championing legislation to help patients access the Rx meds they need to live healthy lives! #TXlege #AllCopaysCountTX

[Deborah Skolaski @DeborahSkolaski]

Thank you @GregAbbott_TX for signing HB 999 into law! This legislation will make a big difference in the lives of patients with chronic diseases. Thank you @DrSchwertner @FourPriceTX for protecting the value of copay assistance by championing HB 999! #AllCopaysCountTX #TXlege

[Deborah Skolaski @DeborahSkolaski]

.@GregAbbott_TX has signed HB 999! Thank you, Governor, for standing up for patient communities. @DrSchwertner @FourPriceTX, thank you for your leadership on this critical legislation to ensure copay assistance counts toward patient deductibles. #AllCopaysCountTX #TXlege

[Deborah Skolaski @DeborahSkolaski]

BIG NEWS: @GregAbbott_TX has signed critical legislation to curb a harmful and growing insurer practice! We want to thank @DrSchwertner @FourPriceTX for standing up for patients by championing HB 999. #AllCopaysCountTX #TXlege

[Deborah Skolaski @DeborahSkolaski]

#TXlege just passed HB 999, bringing us one step closer to ensuring #AllCopaysCountTX! Thank you @DrSchwertner @FourPriceTX for championing this legislation that will help TX patients access the treatments they need to live healthy and productive lives!

[Deborah Skolaski @DeborahSkolaski]

Thank you @DrSchwertner @FourPriceTX for protecting the value of copay assistance by sponsoring HB 999! We’re thrilled to see the bill pass through #TXlege, bringing us one step closer to protecting the critical lifeline of copay assistance for TX patients! #AllCopaysCountTX

[Deborah Skolaski @DeborahSkolaski]

HB 999 has passed #TXlege! Thank you @DrSchwertner @FourPriceTX for your leadership on this critical legislation to ensure copay assistance counts toward patient deductibles. #AllCopaysCountTX

[Deborah Skolaski @DeborahSkolaski]

#TXlege has passed critical legislation to curb a harmful and growing insurer practice! As the bill heads to the governor’s desk, we want to thank @DrSchwertner @FourPriceTX for standing up for patients by sponsoring HB 999. #AllCopaysCountTX

[Deborah Skolaski @DeborahSkolaski]

.@loiskolkhorst, please support HB 999 to make #AllCopaysCountTX! Patients who use copay assistance to afford their life-saving medications deserve to have that assistance count toward their deductible. #TXlege

[Deborah Skolaski @DeborahSkolaski]

Insurers use harmful policies to devalue copay assistance for TX patients who need this assistance to access life-saving Rx medications. @loiskolkhorst, please make #AllCopaysCountTX for patients and support HB 999! #TXlege

[Deborah Skolaski @DeborahSkolaski]

.@loiskolkhorst, please step up for the Texas chronic disease community – set HB 999 on the HHS committee calendar! This legislation puts an end to harmful insurer policies and ensures patient assistance counts toward out-of-pocket cost limits #AllCopaysCountTX #TXlege

[Deborah Skolaski @DeborahSkolaski]

A growing and deceptive insurer policy prevents copay assistance from counting toward patient deductibles. @loiskolkhorst, please stand with patients and put HB 999 on your committee calendar! #AllCopaysCountTX #TXlege

[Deborah Skolaski @DeborahSkolaski]

We urge @loiskolkhorst to support TX patients by setting HB 999 on the Senate HHS Committee calendar. Please support this critical legislation to curb harmful insurer practices! #AllCopaysCountTX #TXlege

[Deborah Skolaski @DeborahSkolaski]

Texans living with rare diseases need your help! Urge @loiskolkhorst and the Health Committee to add the rare disease advisory council legislation to their next meeting agenda and make TX the 27th state to create an RDAC!

[Deborah Skolaski @DeborahSkolaski]

Let's make sure that Texans living with rare diseases have a voice! Urge @loiskolkhorst & the Health Committee to add SB 1408, the RDAC bill, to their next meeting agenda. #PatientAdvocacy #TexasHealthcare #RareDisease

[Deborah Skolaski @DeborahSkolaski]

26 other states have an RDAC & Texans living with rare diseases deserve one too! We call on @loiskolkhorst & members of the Health Committee to add SB 1408, the RDAC legislation, to their next meeting agenda.

[Deborah Skolaski @DeborahSkolaski]

The rare disease community in TX deserves a stronger voice in government! Urge @loiskolkhorst and the Health Committee to prioritize SB 1408, the rare disease advisory council legislation, at their next meeting.

[Deborah Skolaski @DeborahSkolaski]

Texas patients are at risk from an unfair insurer policy that stops copay assistance from counting toward their deductibles. #TXLege, please vote with @FourPriceTX and support HB 999 to help patients manage their conditions! #AllCopaysCountTX https://t.co/KCXdYCE8HU