New Video! To mark #WHD2023, three generations of women from one family share their experiences of life with a #bleedingdisorder. Share with your patients and families.
https://t.co/v3xyNrza6l
#WGBD#MedEd
Mother with extremely rare blood disorder, Selva Prakash, thankful for second chance at motherhood.
Learn how a routine blood test (part of her first pregnancy), helped diagnose the rare blood disorder and the specialist care received for the second.
➡️ https://t.co/fjSGpgp52C
Congratulations to @physio_paul on being named Allied Health Professional Researcher of the Year by @BritSocHaem and @NIHRresearch.
He's been honoured for contributions to clinical studies focused on musculoskeletal issues associated with haemophilia.
➡️ https://t.co/JFxlQELYVy
The Women & Bleeding Disorder Committee is gathered in Basel this weekend to advance their work on improving access to diagnosis & treatment for women with bleeding disorders, & to finalise details for the Women & Bleeding Disorder Conference scheduled for May 20 - 22 this year!
IMPORTANT INFO FOR NMOs: EHC have launched an Emergency Displacement Fund to support our NMOs directly impacted by the crisis, who are providing support to people with bleeding disorders & their families who are displaced from their homes. For more info: https://t.co/9VkM7q2FsT
@EHC_Haemophilia today launched an emergency displacement Fund to assist Nstional Haemophilia patient organisations who are dealing with the displacement of people with haemophilia and bleeding disorders from Ukraine. A great initiative @Amanda_Bok@DecNoone
"An integrated, appropriately funded #haemophilia#physiotherapy service can bring immense benefits to people with bleeding disorders. It is in everyone’s best interest."
Read an insightful interview with new #Physio Committee Chair @physio_paul !
https://t.co/zF8azlqDhk
Talking Red Live has brought together Bonnie, left, who has severe haemophilia A and Catherine who has moderate haemophilia B. This is the first time they’ve ever met another woman with haemophilia. Sharing experiences is what today has been all about. #TalkingRed#haemophilia
In light of terrible situation in Ukraine, people with #Haemophilia and other bleeding disorders leaving the country can find the nearest 5 #Hemophilia centres to any address in Europe on the HC locator website https://t.co/jNg3nkwNyj